Long Covid: Impact on the Workforce

Wendy Chamberlain Excerpts

Thursday 31st March 2022 Commons Chamber

[Wendy Chamberlain (North East Fife) (LD)]

I thank my hon. Friend the Member for Oxford West and Abingdon (Layla Moran) for securing this important debate, and I must thank the hon. Member for City of Chester (Christian Matheson) for bringing to life the reality of many of our constituents and what they experience day to day. No one wants to be in the position of experiencing long covid, the variety of symptoms that it presents with and its timescale. With people having experienced long covid symptoms since the very first wave, it is clearly a difficult and debilitating issue for the country to deal with.

A little over a month ago, I raised the issue of long covid and employment in an Adjournment debate answered by the Under-Secretary of State for Work and Pensions, the hon. Member for Hexham (Guy Opperman). Although I was grateful for his responses then, I would like to raise some issues again—my hon. Friend the Member for Oxford West and Abingdon has raised some of them—because there is very much more that we could be doing.

When I was here a few weeks ago, I quoted the Office for National Statistics figures, which said that in the four weeks to 2 January, 1.3 million people across the UK were suffering from long covid. That number is now estimated to be 1.5 million, and that is an incredibly fast uptick. Like others, I have recently had covid myself. I was in my bed for four days. Like the hon. Member for City of Chester said, I had a good day and I did too much, and I ended up back in my bed again. Although thankfully for me it was mild and I seem to be very much back on my feet, there is no doubt that regardless of the strain or variant, long covid can still be the result. Even if symptoms are mild for many, the reality is that mild symptoms can still result in long covid. That number shows an incredibly fast uptick, and I stand with colleagues across the House when we say that clearly this condition will not go away, and the Government cannot close their eyes to it.

Indeed, this morning I met RESULTS UK to talk about work we have done on equitable covid access. There is no doubt that unless we do more to help developing countries and other parts of the world in managing this pandemic, we will see future variants, so the risk of long covid does not go away.

Scottish National party colleagues are always talking about Scotland’s doing a lot better compared with elsewhere, but I think the Scottish Government are letting down long covid sufferers in Scotland. As my friend the Member of the Scottish Parliament for Edinburgh West has shown, of the 119,000 long covid sufferers in Scotland, only 1,000 had been referred to the long covid support services announced by Chest, Heart & Stroke Scotland by the end of February. A recent Freedom of Information request showed that of the much-needed £10 million long covid support fund announced by the Scottish Government last September, not a single penny has been allocated or spent. I am an absolute believer in devolving decision making to the place where it can be most effective for our constituents, but the Scottish Government are failing in delivering this support, whether through inefficiencies, errors or something else. My constituents in North East Fife and my SNP colleagues’ constituents deserve better, and I hope to see better in future.

Turning to the impact of long covid on the workforce, I want to focus specifically on those who would otherwise be working, but cannot as a result of their medical condition. I thank those Members who have already highlighted where employers are trying and helping people to work. We have to acknowledge, though, that there are employers out there not doing right by constituents and members of staff, and we must work hard to ensure that they do what is required.

I do not want to repeat my entire speech from a month ago, but I will turn back to a few key points that I do not feel were properly addressed then. Will the Government commit to extending the period that claimants for benefits have to complete their application forms? For someone with a debilitating condition, particularly relapsing remitting ones, which long covid often presents itself as, four weeks is just not enough time to complete a 30-page form, including the collection of evidence. Particularly when experiencing some of those symptoms, they simply cannot concentrate for the length of time required. It takes up more time and resources to apply for a two-week extension. As I raised in the last debate, why do we not just automatically apply that extension to give people more time, rather than taking up DWP time and resources, as well as those of the person, to request that extension? It would be a cheap and straightforward step to give enough time in the first place.

Will the Government commit to consulting with disabled people, including those with long covid or other relapsing remitting conditions, such as ME, about the design of those application forms to ensure that they are properly able to explain the impact of their conditions? I appreciate that the Minister is from the Department for Business, Energy and Industrial Strategy, but we have had a cross-Government approach to covid, and we need a cross-Government approach to long covid, too.

Will the Government accept that the evidence of doctors and specialists who truly understand complex conditions, such as long covid, is relevant to the assessment of how people’s day-to-day lives are affected? Are they afraid that hard evidence will make it more difficult to minimise payments to those in need? Sometimes we are left to wonder just that.

Will the Government publish their decision making matrix for assessors and submit it to independent scrutiny to ensure that it allows for suitable decisions to be made relating to complex conditions such as long covid? That will also have the additional benefit of considerably increasing trust in DWP. We hear about that a lot in this Chamber, and we know it is incredibly low. Finally, will the Government provide proper training to staff in DWP centres—both front and back office—relating to assessments and work coaching? We want to ensure that they are equipped to work with claimants suffering from this new and complex condition. We have heard the variety of symptoms that it creates, but I am pretty sure that increasing people’s anxiety and stress will do nothing to help them.

Those who cannot work because of a health condition are the other side of the workforce coin. Everyone must be supported, and those who are less visible must be given the support they require.

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[Jim Shannon (Strangford) (DUP)]

It is a pleasure to speak in this debate, which brings back many memories, as the hon. Member for City of Chester (Christian Matheson) said. There will be no one in the Chamber today who is not reflecting on those who have been lost over the past two years. As of last week, we have lost 3,200 people in Northern Ireland and 157,000 across the United Kingdom of Great Britain and Northern Ireland. It is fair to say that every family and every person has been touched by the loss of someone to covid. We cannot help but think of those numbers in this debate.

I congratulate the hon. Member for Oxford West and Abingdon (Layla Moran) on setting the scene and on her hard work with others on the APPG to bring this matter to a head and to highlight and better understand these issues.

I was first elected as a councillor in 1985, and I sat in the Northern Ireland Assembly for 12 consecutive years. When I first became a Member of the Legislative Assembly in 1998, one of the biggest issues in my office was benefits, and it continues to be the biggest issue—benefits, housing and planning, in that order.

The hon. Member for Putney (Fleur Anderson) talked about ME, and others will recognise this story. When I was an MLA, people with ME would come to me when they had to fill in benefits forms. They said, “My doctor says there is nothing wrong with me.” And I said, “Are there any other doctors in the practice you could speak to?” I am not disrespecting doctors, as they are excellent people, but there was no understanding of ME then. We had to fight incredible battles to get the evidence to prove these people had ME. They said they had chronic fatigue, and they did. It was called ME, and it was a disease. That supports what the hon. Lady, the hon. Member for Oxford West and Abingdon and others have said.

I am not saying anyone here is special, but I commend the hon. Member for City of Chester for his very personal story, which the hon. Member for North East Fife (Wendy Chamberlain) also mentioned. His personal story resonates, and he knows that I missed him. I said to him, “We missed you. Where have you been?” He did not tell me everything he had been through, but he told me some of it—he told it all today. Others in the House have been affected, too, so we thank him for his story.

Although I have been double-jabbed and boosted, I was informed by a test after getting home from the House on an early Saturday morning that I had covid. I could not understand it, because I had no symptoms. A lady from the NHS back home phoned me on the Saturday morning and said, “Mr Shannon, how do you feel?” And I said, “Would you be shocked to know that I feel great?” She said, “Well, do you have any symptoms?” And I said, “I have no symptoms. As a matter of fact, I do not think I have felt this well in the past two weeks.” The lady could not understand it, and she told me that I was asymptomatic. I am not sure what that means—

[Wendy Chamberlain]

It means you are special.

[Jim Shannon]

My wife says I am special. I thank the hon. Lady for being most complimentary.

I did not have any symptoms, but I isolated as instructed, because I follow the rules—that is the way to do it. Although I was fortunate and blessed to be asymptomatic and not ill with covid, that is not the case for the many people who did not come through covid unscathed. We have all mentioned that 1.5 million people, 2.4% of the population of this great nation of the United Kingdom of Great Britain and Northern Ireland, have self-reported ongoing covid symptoms that have persisted for more than four weeks, as of 31 January 2022. Forty-five per cent of them, 685,000 people, first had or suspect they first had covid-19 at least one year previously.

I think of the wall outside St Thomas’s Hospital, where some ladies from Manchester, Liverpool and elsewhere met us two or three months ago. I was walking to the hotel one night, many months ago, and passed the wall. It is a wonderful memorial to those who have passed on, and it is good that those ladies and others organised the wall to give people an outlet for their feelings.

Two years after the first lockdown, the long-term effects of covid are becoming clear. We need to put protection in place for employees with this long-term illness that doctors cannot pinpoint. These people struggle daily to live with it, but they are not protected by the Disability Discrimination Act 1995.

This Government should urgently produce guidelines for employers in both the private sector and the public sector on managing the impact of long covid among their workforce. We should also launch a compensation scheme, as the hon. Member for Oxford West and Abingdon mentioned, for all frontline key workers living with long covid. I agree with the APPG that the scheme should mirror the armed forces compensation scheme, which we discussed on Monday night, recognising the relapsing nature of long covid and going beyond the existing pay scheme.

Long covid is a debilitating illness. There is a gentlemen I have known ever since he came to Ards. He is the pastor of a church in my constituency, and he almost lost his life to covid. He is 6 feet 4 inches, and this big, strapping man was brought to his knees. He walked up the hill to Stormont in the “Voice for the Voiceless” protest, and I thought he would have to lie down. Long covid has hit him incredibly hard. He has one day of good and then three days of bad. He has headaches, stomach upsets, blood clots, reduced lung function and chronic fatigue. His church is happy to allow him to rest as he needs. Had he worked for another employer—I will not mention them—he would not have that protection. We must improve the current care pathways for long covid, with a view to ensuring the healthcare system is capable of meeting current and future demand.

In a Westminster Hall debate, I mentioned a constituent who had brain fog. The shadow Minister, the hon. Member for Denton and Reddish (Andrew Gwynne), has lived that. It is important to say that one of our friends and colleagues in this House has lived with long covid and has found it incredibly difficult, as have others, to deal with. You are not far from our thoughts—

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[Marion Fellows]

It is a pleasure to speak in this debate. I thank the hon. Member for Oxford West and Abingdon (Layla Moran) and the hon. Members who have already spoken in the debate.

The hon. Member for Oldham East and Saddleworth (Debbie Abrahams) talked about staff being disciplined because they have long covid. The hon. Member for City of Chester (Christian Matheson) gave a personal testimony and explained much more about how it affects families in their entirety. The hon. Member for North East Fife (Wendy Chamberlain) talked about application forms, which are the bane of all our existence. If someone is not well, they become far more difficult. The hon. Member for Putney (Fleur Anderson) raised the idea of employer guidelines. The hon. Member for Strangford (Jim Shannon) gave his unique take on it, mentioned his wife and family, and brought a personal touch to the debate.

The scale of long covid cannot be underestimated, as we have heard, and has a significant impact on the UK workforce, especially key workers. The ONS’s latest monthly estimates show that over the four-week period ending 31 January, an estimated 1.5 million people across the UK—2.4% of the population—self-reported experiencing long covid. That included 119,000 folk in Scotland.

That data shows that long covid symptoms that persist for longer than four weeks appear to have a higher prevalence in adults between the ages of 35 and 49. A survey last month by the Chartered Institute of Personnel and Development, which has already been referred to, found that a quarter of UK employers cited long covid as one of the main causes of long-term sickness absence among staff. These are things that we are having to deal with. Key workers appear to be more at risk of long covid, which must be looked at.

We are still learning about the true impact of long covid on an individual’s physical and mental health. We know what the most common symptoms are, but we still do not understand the long-term issues. The CIPD report points out that, as it is a new condition, people sometimes do not know that they have it and it takes a long time for them to be given a diagnosis. There is a double burden of uncertainty regarding how best people with long covid can navigate their work, which affects sickness absence and their return to work.

[Wendy Chamberlain]

Briefly, on that point, the fact that first wavers with long covid did not necessarily have a covid test is a key issue. The Department for Work and Pensions and the Government should look at that. When GPs are looking at a list of symptoms that can only be long covid, there should be an acceptance that that is what people are suffering from.

[Marion Fellows]

I thank the hon. Lady for the intervention. Hon. Members have already spoken about ME, which is non-specific and can sometimes be difficult to diagnose. The main issue that I would raise in that regard is that people should be believed.

Support is already being delivered across Scotland for those suffering from long covid and the Scottish Government are committed to doing more. They recognise and acknowledge the impact that long covid can have on the health and wellbeing of those affected and have encouraged all employers to apply fair work principles and a flexible approach to dealing with the impacts of covid-19 to protect the health and wellbeing of the workforce.

In the event that NHS Scotland staff are absent due to covid, current temporary measures ensure that they are paid as if they are at work and that they are not subject to corresponding sickness absence triggers. The Scottish Government continue to support NHS colleagues with the provision of those temporary sickness absence measures in the event that they contract covid-19.

Again, the Scottish Government have a long covid strategic network that helps to bring together clinical experts, NHS boards and lived experience. For any disease or issue, lived experience can give those who are trying to help a real experience of what needs to be done. Following analysis and planning by the strategic network to identify where additional resource is needed, the first tranche of funding to NHS boards will be given early in the next financial year, which starts tomorrow. The fund will provide additional resource to support NHS boards to develop and deliver the best models of care appropriate for their populations.

This debate is about the effect on the workforce. It is important that the workforce know what may be wrong with them and that employers know what long covid is about. The Scottish Government carried out a marketing campaign in October and November last year to raise awareness of long covid and to signpost people to the appropriate support. The campaign supported the production of posters for display in community pharmacies and GP surgeries across Scotland in different languages, social media posts and a campaign toolkit that was sent to 250 direct partner contacts, with an additional distribution of approximately 3,000-plus places.

I mention the APPG and its good work. It recommended that the UK Government commit £100 million per annum to funding research into diagnostic and treatment pathways for long covid patients. The Scottish chief scientist office is funding patient-led and Scottish-led projects with a total commitment to funding. Again, that work is being done and disseminated widely.

I cannot finish without talking about statutory sick pay and its effect on people with long covid. It has a disproportionate impact on groups that are already disadvantaged in terms of work and health. To limit further health and inequality, the UK Government must ensure a liveable sick pay for all. The SNP is clear that we must have a system fit for the 21st century and we need to look at the people who are earning the least, because someone cannot even get statutory sick pay if they are earning less than £120 a week, which is the case for many.

The fact that the Government have moved away from having statutory sick pay from the first day of sickness has a huge impact on people. The Prime Minister claimed we should be more like the Germans and not go to work when we are sick, which is quite ironic considering that Germany has one of the best sick pay systems in Europe, with laws requiring employers to pay staff 100% of wages for the first six weeks of sickness. By contrast, the UK has one of the lowest. I remember being in this Chamber and listening to a Conservative Member saying that £96.35 a day in statutory sick pay was quite a good benefit. When she was told that it was £96.35 a week, she was quite shocked, and I was quite shocked that she did not know that. It is absolutely appalling. We are one of the richest countries in the world, and people cannot afford to stay off sick. It is just disgraceful, and the fact that people now have to qualify and wait—is it two weeks?—before they can even access it is just absolutely ridiculous.

The Government did not bring in an employment Bill in the last Queen’s Speech, but they should in the next. Flexible working would also help people with long covid, as it would help them on the days when they are better able to work and perhaps do not need to trail into work. Again, there was a BEIS consultation, which ended over three months ago. Can we find out what has happened to that?

In conclusion, while employment law remains reserved to Westminster, the SNP Scottish Government are using their fair work policy to promote fairer working practices across the labour market in Scotland. I really urge the Minister to look at what is happening with low statutory sick pay, and to look at helping such people—and not just people with long covid, but as they are the subject of this debate, that would really be a huge improvement in the lives of those unfortunate enough to have this terrible condition.