Endometriosis Workplace Support

Tracey Crouch Excerpts

Tuesday 29th October 2019 Westminster Hall

[Alec Shelbrooke (Elmet and Rothwell) (Con)]

I beg to move,

That this House has considered endometriosis workplace support.

It is a pleasure to serve under your chairmanship, Mr Pritchard. This issue affects not just the Minister’s Department, but the Department of Health and Social Care, the Department of Business, Energy and Industrial Strategy, the Department for Education and the Department for Work and Pensions.

I thank Dr Larisa Corda, who is an obstetrician, gynaecologist and fertility expert—she is in the Public Gallery—the many hundreds of women who have contacted me, and the very brave women who have made the journey to London today to support this debate. I will not reveal the names of the people who have written to me even if they are happy for me to do so, because I want to maintain their confidentiality and ensure that it remains their choice. In opening the debate, I will cover the following areas: the disease itself; the poor diagnosis and medical expertise in dealing with this debilitating condition; its impact on women’s lives; its impact on workplace activity; and the protections that many women feel are not honoured, despite strong workplace health assessment laws.

The disease is often described as cells from the womb growing in other places, but that is a gross underestimation. I believe that that simplistic description is among the reasons why women find it hard to get employers to understand the terrible condition that they are suffering from. According to Dr Corda, since the start of this year more than 100 women have taken their lives as a direct result of this disease.

Endometriosis comes with many symptoms, which occur not just at the time of a woman’s period. The most common are abdominal cramps, back pain, severe menstrual cramps, abnormal or heavy bleeding, painful bowel movements, pain urinating, painful sex, difficulty becoming pregnant, and nausea or sickness. According to endometriosis.org, people with endometriosis are more at risk of several diseases. The risk of ovarian cancer is 37% higher than for the general public; the risk of endocrine tumours is 38% higher than for the general public; the risk of kidney cancer is 26% higher than for the general public; the risk of thyroid cancer is 33% higher than for the general public; the risk of brain tumours is 27% higher than for the general public; the risk of malignant melanoma is 23% higher than for the general public; and, according to cardiosmart.org, a heart attack is 62% more likely. That series of statistics does not describe the impact of the symptoms; I will give some real-life examples later, but the stark truth is that 30% to 50% of women become infertile from the disease.

[Tracey Crouch (Chatham and Aylesford) (Con)]

I congratulate my right hon. Friend on securing this incredibly important debate. I am sure millions of women around the country will be enormously grateful that he is raising this issue at the highest level. Does he agree that one of the challenges that many people face is that there is a significant lack of understanding of the condition? That leads to all sorts of things, including dreadful delays in diagnosis and a lack of understanding in workplaces of what the chronic pain really means to those women.

[Alec Shelbrooke]

My hon. Friend summarises the biggest issues that those women face. I will talk about the real-life experiences of the women who have contacted me, but one of the most important things—I hope other Members will expand on this—is that there are support networks out there, because women often suffer in silence. As I said, this subject goes beyond the DWP: certainly, the Department for Education and the Department of Health and Social Care have a role to play.

In June 2015, the BBC carried out a study on 15,000 women in Scotland. It found that women with the condition had a 76% chance of miscarriage, which is unbelievably high. The article reported that women with endometriosis had a trebled risk of ectopic pregnancy. The chance of premature birth was 26% and the chance of having a caesarean was 40%.

Later, I will talk about the impact on women of abnormal and heavy bleeding and bowel movement impacts, which can be distressing in the workplace. I am aware that the issue I am about to talk about falls under the authority of the Department of Health and Social Care, but it is vital to add context and explain why this disease has a knock-on effect in the workplace. I ask the Minister to ensure that this debate is fed into the relevant Ministers in the Department of Health and Social Care.

The House of Commons digital engagement team put out a survey only last Thursday, and there have been 2,610 responses, 1,083 reactions, comments and shares on Facebook, and 215 retweets. I want to cite some of the quotes from it. Again, I will not put the names out there; I will just set out the reports.

“At 18 I am currently being put through medically induced menopause to try and fight back against my endo, it’s horrific, it’s debilitating and it’s exhausting. The pain I have I cannot even describe, and two operations later I am no further to being pain free or living a normal life. My next step is a hysterectomy, I haven’t even had children yet and this is what is being recommended to me. My life has been overtaken by operations, drugs, injections, sickness, anxiety, depression and a whole load of awful nights with no sleep and no rest. I am currently finishing my A Levels and I am absolutely terrified of what life will be like after. My dream is to become a primary school teacher, but I think that dream is unachievable. How will I find an employer who will understand that I often have to lay in bed because as soon as I move I will throw up, or that I have had to have time off work because I’ve got to have my ovaries removed? It’s about time that endometriosis is taken seriously, and people understand that life is so challenging and excruciating, but we carry on, smiling through the pain, simply because we have no alternative.”