Sudden Unexplained Death in Childhood

Debate between Tim Farron and Andy Slaughter

Tuesday 17th January 2023 Westminster Hall

[Tim Farron (Westmorland and Lonsdale) (LD)]

It is a pleasure to serve under your chairmanship, Mr Twigg, and a pleasure to follow the right hon. Member for Spelthorne (Kwasi Kwarteng), who made a very moving and thoughtful speech. I especially congratulate him on securing this really important debate.

SUDC is an unimaginable tragedy to strike any family. We are here because people in our communities have reached out to us to share their experiences with us. I know we all feel that it is a huge responsibility and an honour to share their experiences.

I spoke last night and previously to my constituent Charlotte and her husband Andy regarding their little son Wilfred, who was two years and 10 months old when he died a little over a year ago. Charlotte and Andy refer to Wilfred as a

“vibrant, energetic little boy who had a vivacious and fearless lust for life.”

She goes on to say:

“The shock that reverberates into every aspect of your life when your child dies unexpectedly and suddenly is unimaginable”.

Unimaginable it is to those of us who have not personally experienced that tragedy. As I seek to honour Wilfred, perhaps the best thing that I can do is speak briefly about actions that could spare other families from experiencing the grief and tragedy with which Wilfred’s family continue to live.

The challenges are what to do with the evidence and what to do about the lack of evidence. Those are the two things that it would be good to consider. Let me first turn to what to do about the evidence. Wilfred passed away at two years and 10 months. At 10 months old, he suffered his first febrile seizure. He was never referred for further investigations to ascertain the cause or to ascertain whether a febrile seizure could lead to anything more dangerous. Wilfred had his sixth febrile seizure, which led to a cardiac arrest, and he passed away just a few days later.

Research by the US branch of the charity Sudden Unexplained Deaths in Childhood shows that roughly a third of sudden unexplained child deaths happen to children with a history of febrile seizures. So they are not totally unexplained, are they? At least some of them are not. However, febrile seizures are mostly not treated as serious or potentially serious. Most NHS trusts do not have a pathway to deal with children who have suffered a febrile seizure, and that surely must be addressed urgently. Febrile seizures must be seen as a red flag that all NHS providers should be aware of, and they should be equipped to act accordingly.

I want also to refer to something that tends to affect not very young children, but young people who are still minors: deaths caused by undiagnosed heart conditions. In particular, I want to refer to the work of CRY—Cardiac Risk in the Young—which does tremendous work in screening young people, particularly those who have any kind of family history but even those who do not, to see whether there is a potential risk. Thousands of people have been assessed by Cardiac Risk in the Young, which is a wonderful charity that works across the north-west and further—indeed, it has done sessions in Kendal. I encourage the Minister to look into how we can screen young people, particularly if there is any family history, to ensure that we do not lose them to undiagnosed heart conditions.

That is what to do with the evidence. What do we do about the lack of evidence? Simply, for the children we lose to sudden unexplained death, it is indeed totally unexplained: there are no clues. We ask collectively today that the Government prioritise scientific research into sudden unexplained deaths among children, potential causes and modifiable risk factors. We also ask that the Government and the NHS prioritise medical education to increase awareness.

[Andy Slaughter (Hammersmith) (Lab)]

I agree with what the hon. Gentleman said. I am here because a constituent told me about the tragic death of her two-year-old nephew in 2021. I am educating myself, with the help of SUDC UK, but it is difficult because there is so little debate, publicity and awareness. I hope that this well-attended debate will mean that research and education is forthcoming. It is a very rare but absolutely devastating condition.

[Tim Farron]

I agree with the hon. Gentleman.

In memory of Wilfred, in honouring his family, and as we remember all those who have tragically died and we seek to support their loved ones, we ask that the Government take practical steps to help us to tackle the horror of sudden unexplained deaths among children.

I spoke to another family—I will not name them—who talked about the loss of their child not so long ago. The mother said to me:

“It clouds everything you do, feel and breathe. I hate that it happened to him and not me. I will never not be able to see him in A&E, thinking this can’t be happening, he is healthy, and I left him a couple of hours ago absolutely fine.”

There is a reason why it is such an uncomfortable issue, but it is important to grasp uncomfortable issues, not only in honour of the memory of Wilfred and everybody else who has passed away and to honour their families, but to prevent any other families from going through the same thing in future.

Housing: Long-term Plan

Debate between Tim Farron and Andy Slaughter

Tuesday 9th February 2016 Commons Chamber

[Tim Farron (Westmorland and Lonsdale) (LD)]

I beg to move,

That this House believes everyone deserves a decent, affordable home to live in; regrets that many people are priced out of the communities in which they grew up due to rising house prices and rents; acknowledges the achievements of the Coalition Government in implementing Help to Buy, bringing empty homes back into use and increasing support for self-build; condemns the present Government’s housing reforms which will lead to fewer new affordable homes for rent and breakdown in communities by selling off affordable homes with no guarantee of replacement; further notes their devastating impact on supported housing of the most vulnerable including those with learning disabilities; recognises the need for a huge increase in the supply of homes due to decades of under-delivery by successive governments; notes that an increase in apprenticeships and other skills training within the construction industry is required to meet that need; further notes the particular challenges of affordable housing in rural areas; regrets that the average cost of a home in London is now over £500,000; endorses the proposal of London Mayoral candidate, Caroline Pidgeon, to convert the Olympic precept into a funding stream that would enable 200,000 new homes to be built in London; acknowledges the benefits of building sustainable homes; and calls on the Government to set out a long-term housing plan to meet the housing needs of future generations which includes lifting the borrowing cap for councils and at least ten new garden cities.

Nothing robs people of their freedom more than poor housing, unaffordable housing or insecure housing. Housing is fundamental to our liberty and it is the entry point to a civilised society, yet despite being one of the world’s richest countries, we have a housing crisis in Britain that stunts freedom and crushes aspiration for many millions of people who want nothing more than to have a decent, secure and affordable place to live.

House prices are now almost seven times average incomes. In my constituency in Cumbria, house prices are 10 times average local incomes. Home ownership is falling, especially among those below the age of 40, and a majority of those who manage to get on the housing ladder have had to rely on the bank of mum and dad. Britain needs an approach to housing that provides people with a genuine opportunity to access the housing they need at an affordable cost, but this is not happening for too many people. That is why I have made housing a key priority for the Liberal Democrats and why we have chosen to talk about housing in our first Opposition day debate of this Parliament.

For decades successive Governments have not built enough homes, leaving the UK with a crippling undersupply and an industry producing only around half the houses that we need. This desperate lack of supply has fuelled rising house prices, with millions now priced out of the communities in which they grew up or the places in which they work. At the same time the lack of affordable housing to rent is at crisis point, with 1.6 million households on the social housing waiting lists and 100,000 homeless children, the most vulnerable people in our society, being let down. I wonder whether it is a coincidence that those sections of society most in housing need are those sections of society least likely to cast a vote.

None of this will be fixed by accident or by blinkered ideology. Put simply, we need house building on a scale not seen since the post-war housing crisis was alleviated by Harold Macmillan, whose wise, effective and dogma-free pragmatism saw the building of 300,000 homes a year—the same number, incidentally, as Liberal Democrats have been calling for and continue to call for to tackle our present housing crisis. However, the Government have not yet demonstrated a Macmillan-style commitment to solving this crisis. They have introduced a short-term target of building 1 million homes by 2020, but even that falls well short of need. Of course, setting even an inadequate target is no guarantee that that target will be met.

As a matter of urgency, the Government must give us a long-term plan for fixing the problem of housing supply. We need to know how many homes their current strategy is set to deliver in 20 or 30 years’ time and how those homes will be delivered. Unless we build enough homes to meet demand year after year, housing costs will spiral further out of reach. For those with aspirations of getting on to the housing ladder, their dream will become less and less likely to become a reality.

The coalition Government made a good start on tackling the housing crisis. They inherited a situation in which house building across the UK had dropped to its lowest level since the 1920s, and a waiting list that had increased to 1.7 million in England alone—even higher than it is today. We brought 70,000 empty homes back into use, released enough public sector land for more than 100,000 homes and oversaw the building of 700,000 more homes. We made a start on Ebbsfleet garden city and got rid of 1,000 pages of planning guidance. There was a sincere commitment on the part of the coalition to bring housing back from the brink and to provide homes to buy and to rent. Before anyone jumps in, let me add that that record was far from perfect, but it stands out as a rare example of where a Government took real action to tackle housing need.

Since May 2015, however, without the influence of the Liberal Democrats, the Government have moved in the wrong direction. They have brought forward a Housing and Planning Bill that will all but destroy social housing, that will prevent the building of affordable homes for rent and that merely tinkers around the edges in an attempt to increase supply, rather than pushing forward the ambitious, radical plan for housing that Britain desperately needs.

[Andy Slaughter (Hammersmith) (Lab)]

Before the hon. Gentleman gets carried away with this Manichean view of how wonderful things were then and how terrible they are now, let me point out that he is right in the sense that the income needed to buy shared ownership housing in London in April this year will be £90,000. However, under the coalition Government, it was £85,000 for three bedrooms or more, which is not really affordable either, is it?

[Tim Farron]

The hon. Gentleman makes the point that I made a moment or two ago, which is that the coalition’s record was far from perfect. What I would say, however, is that those years were the only time since the 1970s that a Government saw a net increase in the social housing available. It was a matter of a few thousand houses, which is small beer, but that is significantly better than the record of the previous Administration. Perhaps one of the greatest shames that hangs over the 13 years of the Labour Government is that Labour somehow managed to build fewer council houses than Margaret Thatcher, which is quite an achievement.

The reality is that the Housing and Planning Bill will tinker around the edges. It will not bring forward the ambitious, radical plan that Britain desperately needs. Indeed, it has redefined what an affordable home happens to be—apparently, it would include houses of £450,000 in London under its starter homes initiative. There is nothing wrong, by the way, with the idea, at least, of starter homes, but they are for better-off renters. Shelter has calculated that someone would need a £40,000 deposit and a £50,000 salary, and much more in London, to afford one.

There is a place in the market for starter homes, but the way they are being introduced has three fundamental flaws. First, they will not be kept affordable in perpetuity so that future generations can benefit, and the lucky few who get one will make a huge profit. Secondly, they will be instead of, not as well as, other forms of affordable homes. Thirdly, they will be exempt from the community infrastructure levy and section 106 requirements.

Housing and Planning Bill

Debate between Tim Farron and Andy Slaughter

Tuesday 12th January 2016 Commons Chamber

[Tim Farron]

Given the time pressures, I shall limit my remarks to my amendment 109. I have made it clear that right to buy is, quite simply, the wrong spending priority at a time of great housing need when resources should be focused on building new homes. In my view, it is also being used as a means to reduce social and affordable housing at the very time that such homes are most desperately needed, particularly for the 1.6 million people currently rotting on a social housing waiting list who are often struggling to bring up children in temporary and inadequate accommodation.

Paying for the extension of right to buy through selling off high-value council housing is simply absurd and will have a crippling financial effect, taking away resources that are much needed by councils to build homes in their areas. The fact that no definition of “high value” is given in the Bill provides far too much wriggle room, with no guarantee of replacement—with the exception of amendment 112, which relates only to London. It has been discussed at length, so I shall not go into any further detail. I see no good reason, other than a political one, for not extending the deal to all regions and not just to London. London is so often the focus of attention when it comes to housing, but the housing crisis is just as real in many other places, especially in rural parts of Britain, including the west country, Cumbria, Northumberland and North Yorkshire.

The extension of right to buy, furthermore, is not genuinely a voluntary option for housing associations, as the Government have attempted to claim. The only voluntary aspect was the vote taken by members of the National Housing Federation last September, in which 45% of associations either voted against or abstained, masking the fact that many felt that the extension was already a done deal. The choice on the table was essentially between the immediate death of social housing or a slightly more drawn-out affair.

To cast this assault on social housing, and especially the assault on rural communities, as something willed by the housing associations is just bogus. The Bill puts many small and specialist housing associations, particularly those in rural areas such as mine, in an extremely difficult position. Some are worried about the impact it will have on maintaining additional services to residents—jobseeking advice, for example, which is often crucial to getting people back on their feet. I would therefore like to see the right to buy extension taken out of the Bill altogether. If the extension is to go ahead, however, a commitment to replacing the property sold off must be included. That is what would be achieved by my amendment 109.

Let me make it clear that I am not opposed to right to buy in principle. I am a supporter of the aspiration of those who wish to own their own home, and I want us to support housing associations as they seek to build mixed developments to give people the opportunity to get on to the housing ladder.

There are two possible reasons for extending right to buy. The first is to encourage aspiration and the second is to decimate and get rid of social housing. If it is the first that people care about most, legislating to extend right to buy would be focused on ensuring replacement, in which case my amendment 109 should be supported. This would provide people with the opportunity to buy their own home without at the same time depleting affordable housing stock for other families in need.

If the motivation were simply to reduce social housing—those motives are too depressing at this time even to bother discussing—the policy would be exactly what the Government are doing: right to buy would be extended and housing associations would be press-ganged to go along with it, with verbal expressions of intentions to replace homes. That would also mean ensuring zero guarantee in the legislation that any replacement must happen.

Sadly, it is clear that this Government’s reasons for press-ganging housing associations to extend right to buy are based on a pretty grubby desire to get rid of social housing. We know what happens when intentions to replace homes are expressed, but not enforced, in legislation. We have had many decades of experience of that. We know that one-to-one replacement simply does not happen. Even in recent years, since the one-to-one replacement policy was introduced in 2012, only one in every nine homes sold has been replaced.

My amendment 109 is designed to overcome that problem and guarantee the replacement of homes by insisting that before a home is sold off under right to buy, a replacement home must first be identified. This could be a home within a new planned development or an existing home that is acquired by the housing association with the proceeds of the sale. Housing associations should be required to identify that replacement property and communicate the plan to the regulator before selling the home.

[Andy Slaughter]

Will the hon. Gentleman give way?

[Tim Farron]

Probably not, because there is not much time left and I do not want to prevent others from speaking.

In addition, the replacement home should in most cases be equivalent to the one sold off. It should be located in the same local authority area and there must be an initial presumption that the replacement home would be the same tenure unless there is a strong case for changing it, based on local need. This would avoid the squeezing out of social homes for rent, which are often occupied by some of the most vulnerable people in our communities, in favour of other potentially more profitable tenures. My amendment would provide not only a one-for-one replacement of homes, but in many cases like for like. I urge Members to support it.