Childhood Cancer Outcomes

Taiwo Owatemi Excerpts

Tuesday 26th April 2022 Commons Chamber

[Taiwo Owatemi (Coventry North West) (Lab)]

Thank you, Mr Deputy Speaker. I would like to start by thanking the hon. Member for Gosport (Dame Caroline Dinenage) and the Backbench Business Committee for bringing forward this important debate. I am so grateful to contribute following so many powerful and moving speeches today.

As a trained cancer pharmacist, I am only too aware of the issues associated with childhood cancer, which is why I want to use my time here to raise awareness concerning a key issue that specifically affects childhood cancer outcomes. Outside infancy, cancer remains the most common cause of death in children and the most common disease-related cause of death in teenagers, yet less than 4% of all cancer research funding is spent on cancer that primarily affects children. Childhood cancer research has been underfunded and neglected for decades in comparison with investment in researching cancers that affect adults. That unacceptable inequality of resources has fatal consequences for children in the United Kingdom.

This was the case for Ben Crowther, a seven-year-old boy from my constituency of Coventry North West, who tragically died in 2019 due to the aggressive form of childhood cancer called rhabdomyosarcoma. Though RMS can occur at any age, it most often affects children, as we have heard from many Members in the House, and therein lies the crucial distinction. Ben’s type of cancer most often affects children, yet research into that type of cancer has largely plateaued in recent years. Ben was treated with the best medicine available to him at the time. However, much of the treatment was decades old, and Ben’s doctor could not recommend that he join any clinical trials to give him a better chance of survival because there were simply no ongoing clinical trials for that form of cancer that he could join.

[Nadia Whittome (Nottingham East) (Lab)]

My hon. Friend is making an extremely powerful speech in memory of her constituent Ben. One of my constituents died at the age of only five years old from a brain tumour, and tragically he is far from alone. While 80% of children survive childhood cancer as a whole—still far too low—80% of children with brain tumours die within five years of diagnosis. It is the biggest cancer killer of those under the age of 40, yet brain tumours receive less than 1% of the national spend on cancer research. Does she agree that funding must be increased in order to improve outcomes for children and adults with brain tumours?

[Taiwo Owatemi]

I agree. My hon. Friend makes an important point. We need more funding for cancer research across all cancers.

His medical team did everything they could to save Ben but, in the end, decades of circumstantial neglect of RMS patients failed him. With Ben in mind, I just wish to make two brief points today. The first is that this Government must do better to encourage research into cancers that primarily affect children, not just adults. Parent-led charities and special named funds such as Pass the Smile are fundraising at grassroots level, but it is not right that the burden of raising funds should fall on the shoulders of bereaved parents. Secondly, we must treat the issue of childhood cancer outcomes with more urgency. We regularly call childhood cancers “rare”, but we must not lose sight of the fact that cancer is the disease that most commonly kills children.

Finally, I wish to thank Ben’s parents, Sarah and Scott, for allowing me to share Ben’s story, for their bravery and, above all, for their desire to ensure that no other family goes through what they have been through. I hope that the Government will listen to the stories that Members have shared today, and take the necessary steps to encourage greater awareness and improve research into cancers affecting children.

[Mr Deputy Speaker (Mr Nigel Evans)]

Thank you. There is now a three-minute time limit.