Assisted Dying

Susan Elan Jones Excerpts

Thursday 4th July 2019 Commons Chamber

[Nick Boles (Grantham and Stamford) (Ind)]

I beg to move,

That this House has considered the functioning of the existing law relating to assisted dying.

Six years ago this week, on a sunny July day like today, my father made a decision. At home in Devon, in the bed that he shared with my stepmother for more than 30 years, with his family around him, he took communion for the last time, said a few words of goodbye to each of us, and asked the district nurses to switch off the oxygen and make him comfortable. He could have clung on to life for several more days, but he was ready to go and, after talking it over with my stepmother, made his decision. A few hours later, he slipped away, with my brother by his side. This was the best of deaths: the saddest moments in our lives, filled with love and gratitude, and even joy.

A few months ago, Geoff Whaley made a similar decision. Cut from the same cloth as my dad, he was a gentleman of the old school, but Geoff had motor neurone disease and recognised that he was likely to suffer horribly in the final days and weeks of his life. He knew that his only chance of a good death was to arrange to go to Dignitas in Switzerland. Geoff was a determined and organised man, but there were some things that he physically could not do. He needed his wife Ann’s help. When someone tipped off social services about their plan, the police turned up at the Whaleys’ door and Ann was interviewed under caution. That caution remains on her record.

Thanks to the support of Ann and their daughter Sarah, Geoff died on his own terms, but several months earlier than he would have needed to had the same procedure been available here in the UK. Under Swiss law, none of the family was allowed to be present at his cremation. Yet Ann would describe herself as one of the lucky ones, because she and Geoff could afford the cost—the air fares, the hotels and the fees—of going to Dignitas. Every year, hundreds of other people in our country face the prospect of great suffering at the end of a terminal illness—suffering that cannot be alleviated by our wonderful palliative care nurses—and have no legal means of doing anything to stop it.

[Susan Elan Jones (Clwyd South) (Lab)]

I am most grateful to the hon. Gentleman for giving way during what is a heartfelt speech, but will he please answer the question of why he feels that the vast majority of disability organisations in this country remain opposed to assisted dying?

[Nick Boles]

I thank the hon. Lady for her question. It is incredibly important to understand all the concerns raised, perhaps especially those from such groups. What I think drives that very understandable concern is the fear that although a law might start off tightly constrained, there will be what people refer to as “the slippery slope”, and it might then be abused somehow: there might be situations in which people come under pressure to take their own lives when, in fact, they do not want to do so at all.

All I would say to the hon. Lady—I am happy to have further conversations with her about this—is that in jurisdictions such as Oregon, where for 20 years now there has been a law of the kind that was proposed here, there is no evidence of that slippery slope argument leading to people being put under pressure. If ever there were to be such a change of the law here, it would of course be essential to have safeguards that would prevent that and ensure that disabled people knew they had the same right to life as any of us, for as long as they wanted.

--- Later in debate ---

[Martin Vickers]

I thank the hon. Lady for that intervention. As I mentioned earlier, every situation is different and I think the complexity of framing a law that covers everything is beyond us, to be honest.

[Susan Elan Jones]

I am conscious that the late Lord Walton of Detchant spoke passionately on this subject. He was a great neuroscientist, but he was also president of the Muscular Dystrophy Campaign, one of the great disability organisations. He spoke and wrote at length on the issue of vulnerability: it is a massively difficult ethical issue, but it has to be considered.