Sudden Adult Death Syndrome Debate
Full Debate: Read Full DebateSteve Rotheram
Main Page: Steve Rotheram (Labour - Liverpool, Walton)Department Debates - View all Steve Rotheram's debates with the Department of Health and Social Care
(11 years, 8 months ago)
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I beg to move,
That this House has considered the e-petition relating to preventable cardiac deaths arising from Sudden Adult Death Syndrome.
I shall explain the slight typographical error in the motion in a second, but Mr Amess, you will have to excuse me if, at times, my throat is a little raw; that, and my slightly delicate disposition when standing or sitting, can be explained by the fact that I and my right hon. Friend the Member for Leigh (Andy Burnham) took part in a charity bike ride from Salford to Liverpool yesterday for the Love Leah charity. We are both suffering, but it is a pleasure to serve under your chairmanship this afternoon.
I thank colleagues on the Backbench Business Committee for agreeing to hear my application on behalf of the Oliver King Foundation and for providing time in the busy parliamentary schedule for what I hope will be a preliminary debate, with a full debate in the Commons Chamber before the summer recess. Today’s motion enjoys the support of 65 MPs from seven different political parties and every region of England, Scotland, Wales and Northern Ireland. Some Members, such as my hon. Friends the Members for Halton (Derek Twigg)and for Liverpool, Wavertree (Luciana Berger), have expressed their disappointment at not being able to be here in person, but they send their full support.
I will use my introductory contribution to set the scene and set out a number of specific areas. Today’s debate is the result of the sterling work by the OK Foundation in setting up an e-petition that attracted more than 110,000 signatures. That is no mean feat—getting 100,000 people to sign any petition is impressive, and it shows the dedication of those involved. I would like to place on record my gratitude to the family and friends of Oliver King, to Councillor Jake Morrison, to Dr Zafar Iqbal of Liverpool FC and to the many committed volunteers who have worked tirelessly to support the OK Foundation’s campaign. It is true to say that we would not be here today were it not for their outstanding efforts.
Unite the Union, the GMB, and the National Union of Teachers have also pledged support for the campaign, and I thank them for their very welcome backing. I also thank our local radio stations and in particular Pete Price and Tony Snell for all they have done to raise awareness of the OK Foundation’s relentless campaign, and to Marc Waddington of the Liverpool Echo for his comprehensive coverage of the issue.
I know colleagues will talk in more detail about the OK Foundation, but I would like briefly to pay tribute to the parents of Oliver King, who have used the tragic death of their beloved son as a mechanism to achieve what they hope will be a lasting and inspiring legacy. Oliver was just 12 years of age when he died of sudden arrhythmic death syndrome. He excelled at sport, but his family were totally unaware of his condition until they received the tragic news of his death in March 2011. Quite simply, Oliver could have been saved if an automatic external defibrillator had been to hand. However, despite their utter devastation at the loss of their child, Mark and Joanne decided to try to prevent other parents from having to go through the same heartache that they had, which has led them here to Westminster and today’s debate, and to their request for the Government to act.
I am most grateful to the hon. Gentleman, not only for allowing me to intervene, but for securing the debate. A moment ago, he mentioned a number of hon. Members who could not be here. May I take the opportunity to do something for my hon. Friend the Member for Loughborough (Nicky Morgan), who cannot speak in the debate by virtue of being a Government Whip? She has a constituency case that mirrors the one the hon. Gentleman describes—that of Joe Humphries, a 14-year-old who died on a training run last October. The tragedy for the family is indescribable, but his father has set up the Joe Humphries Memorial Trust, and a community launch will take place at Rothley parish church on 13 April. I know that they will draw a great deal of comfort and support from the words of the hon. Gentleman and from this debate, and they will know that this House is deeply concerned about this sort of tragic incident.
I thank the hon. and learned Gentleman for his contribution. Until I did some research, I did not realise what a huge problem SADS actually is. I drew out some statistics, which I will share with the Chamber: some 250 people die every single day in the UK as a consequence of sudden arrhythmic death syndrome or one of its counterparts, and some 270 schoolchildren die in British schools from SADS each year. The disease kills more people in Britain every year than lung cancer, breast cancer and AIDS combined; it is an absolutely huge issue, and it is fantastic that the OK Foundation has brought it to our attention in Parliament, because Oliver’s story is like that of any of the 60,000 SADS victims across the country each and every year.
The debate is crucial to raise awareness of the condition. We as parliamentarians have to date not done enough to address people’s concerns. I hope the fact that my right hon. Friend the shadow Health Secretary is in his place and will be responding for the Opposition demonstrates just how seriously we are taking the issue. I would like to place on record my thanks to the Leader of the Opposition for meeting campaigners in recent months, which is something that the Health Minister has refused to do so far.
I will briefly outline what sudden arrhythmic death syndrome is—or SADS, as it is known.
Will the hon. Gentleman explain what he just said in more detail? I am very concerned if he is saying that any Minister has refused to meet campaigners. If that is the case, I assure him that it should not be. I certainly do not have any problems with meeting anybody. I know that some people turned up at my constituency office unannounced on a Sunday morning, which was not very helpful—obviously, I was not there—but I am quite happy to meet any campaign group on the issue.
It is fantastic that the Minister has agreed to meet campaigners. Some are here, and if she has time at the end of today’s debate, I am sure that they would be happy to spend a few minutes trying to organise something more substantial in future. I am sure that people will welcome what she has said.
SADS is a term that is used to describe a group of medical conditions that lead to sudden, unexpected and life-threatening instability of the heart rhythm. It has also been commonly referred to, as it is in the motion, as sudden adult death syndrome, but given its propensity to strike in children, it is now often referred to simply as sudden arrhythmic death syndrome. In the majority of cases, the unstable heart rhythm—the arrhythmia—develops a rhythm called ventricular fibrillation, in which the ventricles, which are the main pumping chambers of the heart, lose all rhythm and regularity and start beating at rates in excess of 250 beats per minute. Ventricular fibrillation causes sudden collapse, seizure-like activity and cardiac arrest—in other words, the total loss of heart function—but if it is diagnosed quickly and if cardiac massage and shock from a defibrillator are applied, normal heart rhythm and signs of life can be restored.
I am most grateful to the hon. Gentleman for allowing me to intervene. He has just touched on the importance of speed in an emergency, and I wonder what level of knowledge, understanding and expertise would be required of a member of the public to be effective in an emergency and to use the defibrillator to the best effect?
All I can tell the hon. Lady is that if I can use a defibrillator, anyone can use one. We had people come into the House to demonstrate what an AED does. I was under the illusion that it was like something out of an episode of “Casualty”: someone picks up two paddles, says, “Stand back—clear,” and applies the shock to the person through that method. It is not like that. An AED is a small computerised unit that talks someone through the process, so believe me, literally anyone can use one. That will destigmatise the use of these devices for certain people who think that if they do it wrong, they will cause further complications.
I declare an interest as a first responder who on a number of occasions has had to attempt resuscitation. Defibrillators are indeed incredibly easy to use. One of the saddest things is turning up at someone’s house and finding people just standing around, worried or frightened that if they attempt cardiopulmonary resuscitation, they will cause more damage. Actually, the training that is necessary is minimal. I therefore commend not only the e-petition, but the words of the hon. Gentleman up to now. This is something that is very simple. It is so sad to turn up two or three minutes in and find that people have not started CPR, at which point the chance of survival is so much less.
I will highlight some of the statistical evidence relating to what the hon. Gentleman says, but if nothing else, if we can debunk the myth that we will do damage if we try to intervene and that the use of defibrillators will cause complications, that will be a start. The campaigners who have come here today do not believe that this is the end of a process; rather, it is the start of the momentum that they are building to ensure that this issue is more widely recognised.
I congratulate my hon. Friend on securing this very important debate. He will share my sadness at the death last week of Eleanor Murphy, who was the mayoress in Barrow last year and who, along with her husband, the mayor, was able to raise £40,000 to buy 20 new defibrillators to be placed around Barrow. Does he agree with me that a great tribute to her life and their effort would be to encourage more firms and shops to agree to have defibrillators on the outside of buildings, which was their big cause towards the end, so that if someone collapses in the street, people do not need to go inside a shop, which might be closed, to be able to save their life? The Co-op is a particular example.
Absolutely. What campaigners, or indeed anyone who is sensible enough to understand that we are in times of austerity, will say is that it is not for the Government to do everything. The example given by my hon. Friend of £40,000 being raised and the example of the OK Foundation, which has put defibrillators in all Liverpool schools, and of other organisations that are doing sterling work, prove that this is a partnership. This is something that charities can help with, but it does demand action from the Government.
I congratulate the hon. Gentleman on securing the debate. Will he join me in congratulating small communities such as Lockerley in my constituency? I learned on Friday night that there is a defibrillator in the village hall, and I was told at a meeting there of, I have to say, predominantly quite elderly people that the instructions for the defibrillator were very easy to understand. They made exactly the point that the hon. Gentleman makes: the machine talks people through the process.
Yes. Certain people expect us, as parliamentarians, to know everything about everything, but actually we do not know an awful lot about an awful lot. I hope that if it does nothing else, today’s debate and the publicity that will be generated through the campaigners will ensure that people are aware of exactly the point that the hon. Lady raises.
I join in the congratulations to my hon. Friend, to the OK Foundation and, indeed, to the Backbench Business Committee. He mentioned that the OK Foundation has funded every primary school in Liverpool to have a defibrillator. Does he agree with me that that sends a powerful message throughout the country that that policy should be adopted in all our schools?
My hon. Friend and city of Liverpool colleague will know that where Liverpool leads, others often follow. The hope is that other people will recognise that what Liverpool has done is progressive. It has been done with the help of the mayor of Liverpool, the city council and, of course, the OK Foundation and it will demonstrably save lives. We do not know when that will happen, of course, because we do not know when someone will have an attack, but at some stage, that provision will save someone’s life. That will be a tremendous legacy of all the work and campaigning that the OK Foundation has done.
What is perhaps even more heartbreaking than the sudden loss of life, if such a thing is possible, is the sudden loss of life when it is avoidable. There is a quick, simple and extremely effective device that can save lives. The treatment will not cost millions of pounds in research or development, nor is it a procedure that people require a medical degree to administer. Instead, it is as simple as first aid training in schools and defibrillators in public buildings.
At this point, I declare an interest: I unashamedly want there to be a defibrillator in every public building, in much the same way as there are fire extinguishers and fire alarms in every building. As the London Ambulance Service pointed out in its briefing for today’s debate,
“56 people died in London from a fire in 2011 compared with 10,000 Londoners who suffered an out of hospital cardiac arrest—yet fire extinguishers are statutory in every building—and defibrillators are not”.
We have them here in Parliament. If they are good enough for us in Parliament, they are good enough for every other public building.
I will shortly come on to the main argument with regard to my desire for defibrillators in public buildings, but before I do that, I am keen to touch on another element of tackling SADS: screening. Three young people die each week from SADS, and in more than half of the cases the cause is a genetic problem affecting the heart. I believe that targeted expert assessment of families in which there is a high risk of inherited cardiac disease or in which there has been a sudden unexplained death will lead to a considerable decrease in the number of SADS victims annually. No one is claiming that that is a panacea; it is simply a vital step in the diagnosis of those most at risk.
I praise organisations such as Cardiac Risk in the Young, which is subsidising screening for young people, ensuring that those who believe that they need an ECG—electrocardiogram—can afford one. The OK Foundation and others are also doing that, but screening should be more widely available.
The hon. Gentleman said earlier that Liverpool leads the way. He will be aware, as the right hon. Member for Leigh (Andy Burnham) will be aware, because we were both at the same event, that Liverpool John Moores university does an enormous amount of work on the screening of young sportsmen. A huge amount of work is being done and it is being done, again, in Liverpool.
Again, I could not agree more. John Moores and other universities have done fantastic work. I looked at some of the material from the Football Association. It runs the association football medical screening programme for youth trainees, which involves the screening of 750 youth players. The International Olympic Committee has recommended that all countries screen their athletes to minimise the risk of SADS. That indicates the benefits of screening, so let us look at an early intervention strategy for at-risk groups as an initial step.
Even in the past week, it has been pleasing to see the Football Association and the British Heart Foundation form a £1.2 million fund to ensure that 900 defibrillators are made available to clubs in non-league football and the women’s super league. That is real action that will make a real difference, but although it is encouraging that sport has woken up to this condition and recognised what I would term its social and moral responsibility, there is more work for the medical profession to do and more support for the Government of this country and our partners across the developed world to give.
A simple ECG can expose whether a patient has irregular electrical or structural problems with their heart that can lead to SADS. Currently, however, standard cardiovascular risk assessment screening is not as precise as it needs to be in identifying symptoms relating to sudden cardiac arrest, which is why the British Heart Foundation is undertaking vital research into the genetics around SADS, on which it hopes to publish a report shortly. In the meantime, the Government can play a leading role in encouraging pathologists and coroners who determine that a person has died of SADS to inform immediate family members to ensure that they receive an ECG at the earliest possible opportunity. The Government should also support the medical industry’s work to improve the scientific precision of screening. Such Government measures should form part of the proposed new national strategy to improve heart safety and reduce preventable deaths from sudden cardiac arrest, as set out in the motion.
I hope that today’s debate and any subsequent debates will achieve a number of things, but it is pivotal that the imperative relationship between CPR and defibrillators is exposed: a defibrillator on its own cannot save a life; CPR on its own has an outside chance of saving a life, but the two together have a more than 50% chance of saving a life. How do we know? Ask people such as Fabrice Muamba. His collapse on a football pitch, in front of thousands of spectators at White Hart Lane and millions watching on television, was perhaps the most graphic illustration of SADS, and his recovery is the best example of what can be achieved with swift and targeted intervention.
Bystanders witness more than half the cardiac arrests that occur in public, but not enough people have the life-saving skills to help those heart attack victims. CPR is the first action in the chain of survival and is crucial in the first minutes after a cardiac arrest, because it helps keep oxygen moving around the body, including the brain, which is why the British Heart Foundation campaign tells us to phone 999 and press hard and fast to the beat of “Staying Alive”. It is a simple message, which works, and we have all seen it on television. CPR essentially buys a patient time. A defibrillator starts the heart, but cannot be used on a still heart, so unless CPR is administered, a defibrillator is effectively useless.
That point is crucial, and is at the heart of—forgive the pun—why colleagues and I, in consultation with my right hon. Friend the Member for Leigh, chose to include first aid in today’s motion. Medical experts believe that CPR combined with a defibrillator shock can triple the survival chances of somebody who has suffered a cardiac arrest outside hospital. I shall repeat that: it can triple survival chances. That is extraordinary. CPR and a defibrillator shock can buy paramedics time to arrive, prevent serious brain damage and ultimately increase the chance of a full recovery. I am not sure that there is any need for further debate. If someone’s child or loved one had a cardiac arrest, would they not want to triple their chance of survival?
I thank the hon. Gentleman for securing the debate. I add my sentiments to those expressed already on the wonderful work that the OK Foundation and the King family have done. I pay tribute to South Central ambulance service, which does wonderful training in my constituency. Does the hon. Gentleman agree that, although it is tremendous that community organisations have invested in equipment and training in their localities, a benefit of a national push, such as that that we had with digital hearing aids, is that it drives down the cost of equipment and training, no matter who pays for it? It is important to get across that message about why we should put more oomph behind such work.
It is an excellent point, which I will mention later in my contribution. The hon. Lady is absolutely right. If we persuaded the Government, Government bodies, large organisations or a combination of people to purchase AEDs, the price would plummet because they would order in bulk. I think they are £1,200 to £1,500 per unit at the moment, but empirical evidence from other countries shows that, when they are purchased in large volumes, their price comes down to almost 40% of the original cost.
Finally, I shall address directly what the Government can do to help, and it is simple: legislation. It can be done in a controlled and progressive manner and, in the current economic conditions, it need not cost the earth. Legislate first in education: enshrine mandatory emergency life skills training in the curriculum; ensure that every child who walks out of school at 16 or 18 possesses life-saving skills, and ensure that this Parliament, here and now, commits to having a new generation of life savers. We have the support to do it. Will we need to come back with another 100,000 signatures to get the Government to act? According to a British Heart Foundation survey in 2011, 86% of school teachers agree that such skills should be part of the curriculum, 78% of children said that they wanted to be taught how to save someone’s life in an emergency, and 70% of parents thought that children should be taught emergency life skills in school. When we place emergency life skills education in the context of my earlier point about the relationship between CPR and defibrillators, we begin to see just how many lives we could save daily, monthly and yearly.
The Government, though the Department for Business, Innovation and Skills, should introduce legislation such as the Canadian province of Manitoba’s Defibrillator Public Access Act. In Canada, public consultation and medical expertise identified the most likely places for a person to suffer a cardiac arrest—apart from in hospital, of course—and legislated to ensure that all those buildings, such as gyms, football stadiums, golf courses, schools and airports, had to have an AED fitted by January 2014.
There is also a financial argument: fitting AEDs could save the NHS millions of pounds, because survivors would not need the same degree of critical care or, potentially, aftercare. To discredit further the myth that it would be too expensive, let us once again put it into context: a defibrillator costs about the same as a PC and if we put AEDs in public buildings, that cost will come down, as the hon. Lady identified, as it does for other equipment ordered in bulk.
I thank the hon. Gentleman for allowing me to intervene again. It occurs to me that he said earlier that there are defibrillators in this building, but I am ashamed to say that I do not know where they are. I do not know if I am alone in that. It is important therefore not only to have them in buildings and for people to know how to use them, but for people to know where they can be found. There is no time in an emergency to wonder where one is—everybody needs to know.
The hon. Lady is right, but there are people who know where the defibrillators are. On behalf of the OK Foundation, I asked a few police officers. We are very cosseted here. People such as police officers and other security staff know where the defibrillators are. She is right in that, just as there has to be a chart that says where the fire extinguishers or first aiders are—where someone can get treatment should they cut themselves—the same process should apply to identifying where the nearest AED is. It is not beyond the realms of Parliament for us to pull together legislation to cover the good point she raises.
I know about the costs associated with AEDs. The Association of Primary Schools and the OK Foundation said that every primary school in Liverpool should have one, which would be a considerable benefit. They have now got an AED, which they purchased together, fitted in each school. Pinehurst primary school in my constituency was the first to benefit, but now all 122 primary schools in the city have AEDs. As I said earlier, where Liverpool leads, the rest of the country needs to follow, because AEDs will save young people’s lives. We need to make that happen across the whole country and encourage our devolved partners to follow suit.
I conclude by reiterating why today’s debate matters. We cannot put a price on a life. If something practical can be done that has the ability to save a life and falls within what we politicians might call the envelope of affordability, we in Parliament have a duty to act. In times of austerity, when we look for ways of saving money and reducing the burden on the NHS, investing in screening research and equipping an entire future generation with emergency life-saving skills that will keep people alive, increase survival rates and reduce the demand on hospital care is a step we should all support. Every minute that goes by after a person has suffered a cardiac arrest reduces their survival chances by 10%. Although CPR can keep the heart going, it is not enough in itself. Britain should aspire to achieve survival rates such as those in Seattle, where more than 50% of sudden cardiac arrests lead to a full recovery. Our survival rate is currently somewhere between 2% and 12%.
Now is the time to act and for Parliament to say, “Enough is enough.” Now is the time for levels of screening of young people to increase, for teaching CPR to be mandatory in schools, and for the Government to initiate a new legal requirement for a defibrillator to be installed in all schools and prominent public places. We need a cohesive national strategy to improve heart safety in the UK. I hope that Government Front Benchers are listening. They have the political authority to address the issue. Let us hope that they have the moral fibre that is needed to act.
I am grateful for the intervention, but it rather makes my point. Once we stipulate, for the sake of argument towns of 30,000, we can imagine that in the towns without that level of population people will think, “Well, we’re all right, so we won’t do much work on it.” That is the problem with a more prescriptive approach.
While we are discussing ambulance services, and referring again to the speech of the hon. Member for Bassetlaw, I wish to set the record straight on the East Midlands ambulance service. EMAS has been struggling for some time, with a number of difficulties that the hon. Gentleman and I are familiar with. As mentioned by my hon. and learned Friend the Member for Harborough (Sir Edward Garnier), my hon. Friend the Member for Loughborough (Nicky Morgan) has been involved in a campaign following the death of Joe Humphries, who did not live in her constituency but went to school there. As a result of her work, for which I am grateful, Leicestershire has 109 static defibrillators in public areas, 14 of which were installed in partnership with the Leicestershire police, and there are 24 Heartstart schools in the county.
The hon. Member for Bolton West also talked about the Heartstart scheme and its success in her area, although I can see that that may not be the case universally throughout the country. What is happening because of the debate, however, is that not only are we holding it and everything is being recorded in Hansard, but I will certainly go away and not hesitate to have that conversation with the relevant Minister in the Department for Education. An extremely forceful message has come out of this debate about the need for such training to be included in the national curriculum. I could not possibly give my own views on that, but the argument has been advanced extremely strongly and it has much merit and power.
I was not aware that the Minister is an anti-legislationist parliamentarian.
My right hon. Friend the Member for Leigh (Andy Burnham), off the top of his head, suggested a population of 30,000 as a starting point. It does not matter whether the threshold is 30,000, 25,000 or 50,000; basically, there has to be a starting point. Even if the threshold is 30,000, once automatic external defibrillators are in place, they are there for life, and we can then start to concentrate on places with fewer than 30,000 people. We could do that for large factories or organisations before we go to the small ones. There is no magic wand and provision will not happen overnight, but we need to start somewhere.
Thank you, Mr Streeter. First, I thank all right hon. and hon. Members for taking part in the debate on behalf of the campaigners, and obviously I thank the campaigners, who have made a long journey in certain cases to come to Parliament today to hear what we have been saying and what the Minister has been saying. Can I just pick the Minister up on one point? It is very important to some people here; we have a doctor and other medical staff here. She continually made reference to heart attacks; I think that what she meant was cardiac arrests, which are a very different thing.
I just wanted to put that on the record.
Many excellent points have been raised in the debate. What we have seen demonstrated during the past three hours is the clear and absolute desire for Parliament to act. I understand that the Minister has a difficult job. There are obstacles and challenges to overcome in relation to cardiac arrest and SADS, including raising awareness and overcoming people’s initial fear of helping someone who has sustained a cardiac arrest. The hope is that this debate will have teased out some of those things.
We have also heard about a number of issues that are not directly relevant to the Minister’s remit, so she may well have to have conversations not just with the relevant Education Minister, but with the Department for Business, Innovation and Skills and certainly with the Department for Communities and Local Government in relation to the planning issues. However, that does not mean that she or the Government can abrogate their responsibilities. As has been highlighted, some of these things are cost-neutral; they just need action. We are not asking for money or, at worst, they cost very little. They simply require political will.
A few weeks ago, after the debate was announced, I received numerous phone calls and e-mails from organisations and charities that have been campaigning for years on this issue, so it is only right that they receive recognition for their efforts. Therefore, in praising again the efforts of the OK Foundation, I would also like to pay tribute to SADS UK, the British Heart Foundation, Cardiac Risk in the Young, the London Ambulance Service, Hearts and Goals, the Arrhythmia Alliance, the North West Ambulance Service, AED Locator, the Community HeartBeat Trust, Kays Medical and Liverpool football club and the great Steven Gerrard, the England captain, who has also recently come on board and lent his support—my right hon. Friend the Member for Leigh (Andy Burnham) is shaking his head.
There is growing momentum for action, and campaigners will not give up on this issue until progress is made. Including first aid training in the school curriculum would take up 0.2% of the timetable, but have an incalculable value.
Can I add my own tribute to the organisations—most of them—that my hon. Friend has just listed? Obviously, we do not doubt the Minister’s good will, but I think that we will have been disappointed by the response, particularly on the issue of legislation. With that in mind, may I encourage my hon. Friend to return to the Backbench Business Committee and make a request to bring this issue to the Floor of House? It seems to me that Parliament might take a different view from the Government on the need for legislation. I think that we should try to test the mind of Parliament on this issue. I hope that my hon. Friend will not be put off and will pursue his campaign in that direction.
I am happy to confirm to my right hon. Friend that I think that, following the discussion that I will have immediately after this debate, the next step will be for us to push the Backbench Business Committee for a further debate in the main Chamber so that we push this issue to a vote, because I genuinely believe that defibs will save thousands of lives every year. No one in their right mind doubts that, so it is for the Government to show their resolve and to back the campaigners. A national lead is needed on this issue. We have not been given that today, so we will push in the future for that lead.
Question put and agreed to.
Resolved,
That this House has considered the e-petition relating to preventable cardiac deaths arising from Sudden Adult Death Syndrome.