Brain Tumours

Rupa Huq Excerpts

Monday 18th April 2016 Westminster Hall

[Mrs Maria Miller (Basingstoke) (Con)]

It is a great pleasure to serve under your chairmanship, Sir Edward. I congratulate the hon. Member for Warrington North (Helen Jones) on such an excellent start to the debate. I also pay tribute to my hon. Friend the Member for Castle Point (Rebecca Harris) for her excellent chairmanship of the all-party parliamentary group on brain tumours, and to other hon Members who support her in that work.

My contribution will be succinct. As the hon. Lady pointed out, this is the largest cancer killer of children and adults under the age of 40, yet just 1% of research funding is given to find a cure or new treatments. The hon. Lady said that this felt to her almost like a Catch-22, and I think she is entirely right: a lack of research means that there can be difficulty in having effective professional development, which leads to continued late diagnosis. The fact that 61% of brain tumour patients are being diagnosed in A&E is backed up by information from my local hospital and Dr Lara Alloway, a consultant in palliative care there, who said that brain tumours are

“most frequently diagnosed when people present as an emergency with stroke-like symptoms, headache or confusion. It is less common for people to be diagnosed as an outpatient.”

The lack of early diagnosis was also picked up by my local primary care trust. However, the issue is not just a lack of early diagnosis, but a lack of guidance from NICE. There are just seven pages of guidance on this matter, but more than 30 pages for blood and haematological disorders. The limited evidence base makes it very difficult for doctors and GPs to be able to diagnose in the fashion that the hon. Lady talks about.

It would be difficult to do justice to the number of constituents who have contacted me about this debate. I pay tribute to them all. I pay particular tribute to Olya Elliott, who lost her son, to Sandra Welch, who was diagnosed after a year of seeking help from her GP—that was too late to be cured—and to the gentleman who talked about his daughter, who had died at the age of 44. The list goes on, and it is very difficult to talk about it. I think that the debate today will do a great deal to send a positive message to all those constituents. I pay particular tribute also to Jan Pearson, who came to my surgery on Friday and spoke incredibly movingly about her son Tom, aged 21. He was diagnosed with an inoperable tumour on his brain stem at the age of 18. He was diagnosed because of the tenacity of his mother, who identified the symptoms after five years of insisting to his GP and other medics that he needed help and support. It was really only through her tenacity that he got the brain scan that diagnosed his tumour, but unfortunately it was too late for it to be operable.

[Dr Rupa Huq (Ealing Central and Acton) (Lab)]

May I draw the right hon. Lady’s attention to my constituent, Caroline Fosbury, mother of Ella? Caroline lost her daughter at the age of 11. She said that it is a three-way cycle between support, awareness and research, and the family have started Ella’s fund to campaign for more research.

[Mrs Miller]

That positive effect in terms of fundraising is so important. When I speak to my constituents who have lost loved ones, that is often the way they can find most solace. The hon. Lady makes a very good point.

I also pay tribute to those who support my constituents who have gone through such appalling losses, particularly St Michael’s hospice, which cares not only for individuals who are going through the last hours of their lives, but for bereaved relatives and carers.