Coronavirus
Pauline Latham Excerpts(4 years, 8 months ago)
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Mrs Pauline Latham (Mid Derbyshire) (Con)
I would like to associate myself with the Secretary of State’s remarks. I wish my hon. Friend the Member for Mid Bedfordshire the very best and hope that her family recover as quickly as possible if they succumb to the virus.
My constituents have developed a test for the virus. They are selling it all round the world, but we are not using it in this country. It costs £5. It is working, and it gives a result within 10 minutes—it is a quick, cheap way to do it. May I urge the Secretary of State to ask the Department to investigate that and ensure that we are using the most effective test possible?
Matt Hancock
Yes, absolutely. My hon. Friend has brought that to my attention before. We have done research into it, and we are working with over two dozen commercial companies that have tests of this kind. In fact, I had a meeting on this today.
NHS Long-Term Plan: Implementation
Pauline Latham Excerpts(5 years, 4 months ago)
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Matt Hancock
I am grateful to the hon. Gentleman for the tone that he takes, and he is absolutely right in his analysis. I know he met the cancer Minister, the Under-Secretary of State for Health and Social Care, my hon. Friend the Member for South Ribble (Seema Kennedy), last week on this point. We absolutely will address it, and we will not miss the less survivable cancers. Indeed, the focus on early diagnosis will of course help survivability, but it is also a focus across all cancers equally, rather than just on those where survivability has improved so much.
Mrs Pauline Latham (Mid Derbyshire) (Con)
This long-term plan for the NHS has been developed by the NHS, not imposed by Government. Does my right hon. Friend agree that this sets the plan apart and means it is much more likely to work for staff and patients alike?
Matt Hancock
Yes, my hon. Friend is absolutely right. The plan is of the NHS by the NHS for the NHS. We in Government will absolutely facilitate it and support it, and of course we are putting in the money, but the NHS as a whole should be very proud of what this plan proposes and the way the implementation is being done in such a rigorous fashion.
Sunbed Use: Health Implications
Pauline Latham Excerpts(5 years, 9 months ago)
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Mrs Pauline Latham (Mid Derbyshire) (Con)
I beg to move,
That this House has considered the health implications of sunbed use.
It is a delight to serve under your chairmanship for the first time, Mr Hosie, and I thank my good friend the Minister for responding to this important debate.
The motion asks the House to consider the health implications of using sunbeds, but I would go as far as calling for a ban. Who needs sunbeds? No one. Many people in the UK believe that they look healthier with a tan, but that could not be further from the truth. Bronzed skin was a trend first popularised by Coco Chanel in 1923, and it has never gone away. From St Tropez to Derbyshire, a suntan continues to be a desired accessory. Over time, people have sought to maintain their tan using artificial means, including the sunbed. In the ’60s, sunbeds were developed for the first time, and in the ’80s they began to be used in large numbers. The industry continued to grow throughout the 1990s and into the 2000s. Today, an estimated 3 million Britons use sunbeds to keep themselves tanned.
According to the World Health Organisation, sunbeds are as dangerous as smoking—many people do not realise that—and in 2009 it classified them as carcinogenic to humans. Worryingly, statistics show that people who have used a sunbed at least once, in any stage of their life, have a 20% higher risk of developing melanoma than those who have never used a sunbed. The first use of a sunbed before the age of 35 increases the risk of developing melanoma by 59%.
Chris Bryant (Rhondda) (Lab)
The hon. Lady is making an important speech. In all honesty, I think of sunbeds as pernicious death machines. They rely on people’s vanity, but we all have elements of vanity in our lives, so let us not decry that. We should be doing far more. One hundred thousand people get a melanoma every year; it is one of the most pernicious forms of cancer, and 10,000 people die. These are death machines, aren’t they?
Mrs Latham
Yes. The hon. Gentleman makes an important point, and we must emphasise the fact that sunbeds are killing machines that nobody needs to use. Nobody needs a tan, and as the hon. Gentleman says, this is purely about vanity. We know there is a lot of vanity in the world, but this is a deadly vanity and it is a waste of everybody’s time and money—sunbeds are also expensive.
Dr Andrew Birnie, a consultant dermatologist and dermatological surgeon, supports the World Health Organisation classification of sunbeds as carcinogenic. He notes that
“it has been shown that the biggest cause of melanoma is high-intensity bursts of ultraviolet light on skin not used to being exposed to UV.”
The World Health Organisations has recommended that countries either ban or limit the use of sunbeds. In reality, there is no such thing as a safe tan unless it comes from a bottle or a can. Indeed, one trainee beautician, Kimberley Platt, said:
“I’m a trainee beautician and part of the course is being taught to spray tan. Our course tutors tell us to steer clear of sunbeds, I wonder why. Has anyone ever looked on Instagram at sunbed burn photos? Horrific. It seems as if to burn, either artificially or in the sun, is somehow a funny thing to do. Dealing with skin cancer is not funny though. Think about the cost of treating skin cancer, not to mention the cost of a life.”
Chris Bryant
Is this particularly an issue in this country because so many people are genetically made for British weather? We have freckles, fair hair and fair skin, which is far more prone to some of the dangers that the hon. Lady mentions.
Mrs Latham
Again, the hon. Gentleman makes an important point. We are not built for the sun; otherwise we would be black. That is why people in Africa do not have the problems that we have. We tend to go on holiday for a couple of weeks, burn like mad, come back and think it is great, but it is damaging to the skin. One need only look at people who spend a long time either on sunbeds or in the sun. When they get older they look like dried-up prunes, and nobody wants to look like a dried-up prune. People think that they are making themselves look healthier, but they are not; they are deeply damaging their skin, and we must try to persuade the Minister that a ban on sunbed use is the only thing we can do.
Frighteningly, over the past 30 years cases of malignant melanoma have more than quadrupled in the UK, and the scary truth is that it is now the second most common form of cancer in those aged 15 to 34. A melanoma is not easy to treat unless caught early. There are around 15,400 new melanoma skin cancer cases in the UK every year—42 every single day. Every 24 hours in the UK, six people die from a melanoma, and in 2016, 2,285 people died of the condition.
In the United States of America, Europe and Australia, combined sunbed use is estimated to have been responsible for more than 450,000 non-melanoma skin cancer cases and more than 10,000 melanoma cases every year. It is no coincidence that the rise in that aggressive form of skin cancer aligns with the popular use of sunbeds. The current updated body of scientific evidence strongly suggests that indoor tanning significantly increases the risk of melanoma. A large amount of data from observational studies provides enough information to infer that sunbed use causes melanoma, using all the epidemiological criteria for causality.
Dr Nicole Chiang, a consultant dermatologist who treats skin cancer patients on a regular basis, has noted that the risk of melanoma more than doubles when sunbeds are used at a young age of below 35 years. Sunbeds cause three times more DNA damage than natural sunlight, and it has been estimated that 20 minutes on a sunbed could be equivalent to approximately four hours in the sun. Just one sunbed session can increase someone’s risk of developing squamous cell skin cancer by 67%, and basal cell skin cancer by 29%. Even more important is the increased risk of melanoma, which is the deadliest form of skin cancer.
I was concerned to learn that data from Cancer Research shows that more than 25% of the UK’s 3 million sunbed users are unconcerned about the dangers that sunbeds pose. Indeed, I was on the radio today and I heard some people talking about this issue. They said, “Well, so what? It doesn’t matter. It will be okay.” I believe it is important to dispel the fake news, often used in the marketing of sunbeds, that they provide a “controlled” way of getting a “safer” tan. Sunbeds are no safer than exposure to the sun.
A 2008 study published in the journal “Pigment Cell & Melanoma Research”—that sounds like something from “Have I Got News For You”—came to the conclusion that to achieve a tan, the skin must be exposed to ultraviolet radiation, and therefore “safe tanning” is a physical impossibility. It is also important to dispel the myths perpetrated by the sunbed industry about vitamin D benefits from sunbeds. Due to the carcinogenic risk associated with sunbeds, their use cannot be justified. We can take a tablet in the winter to ward off vitamin D deficiencies. A further myth is the idea of the base tan—the dangerous and fanciful assertion that getting an initial tan from a sunbed will protect the skin from the sun. Guidelines from the National Institute for Health and Care Excellence explain that getting a tan provides little protection against later exposure to sunlight, and the resulting skin damage outweighs any later protective effect.
Throughout my time in Parliament, I have focused on the prevention and treatment of skin cancer as a result of personal experience. I have had the privilege of working with a cancer charity, Melanoma UK, which I thank for its support in gathering evidence for this debate. I know only too well the devastating effect that that cancer can have on people’s lives. What is most insidious about melanoma in particular is that it is impossible to treat in its late stages, and it often results in a drawn-out, very painful death. Last year I had my own personal scare. I found a mole, which was malignant. After a tortured three weeks waiting for the results I found out that, luckily, the tumour had not spread—but it was malignant. The fear was magnified by the fact that my own brother died from a melanoma when he was only 54. I have therefore always taken a close interest in that type of cancer and its causes.
My brother went to his GP three times in a year before the GP eventually said, “There’s nothing wrong with you, but I will refer you”—just to get him out of his surgery, I think. By that time it was far too late, and my brother died from his melanoma a few years later; but he was never able to work again, because muscle and lymph glands had to be taken away, so he could not do his job. Neither I nor my brother used sunbeds, but given my experience of the awful disease of melanoma I cannot comprehend why anyone would want to increase their risk of contracting it. Research shows that many people who contract it probably would not have done, if they had never been able to use a sunbed.
I want to refer to some case studies highlighting the horrific effect that sunbed use can have on individuals and their loved ones. I thank the House of Commons outreach team for helping me to collate a vast and wide-ranging response, obtained thanks to the power of social media. I am so grateful to those who participated in the initiative. There were some interesting and informative discussions. I was taken aback by the significant number of responses from people who said they regularly used sunbeds in their youth and today have, or have had, a melanoma. One such lady, Jade Luelle Cope, said that she used sunbeds often between the ages of 15 and 32, and was diagnosed with malignant melanoma at 38. She stated that she does not think that it was a coincidence.
Beverley Chesters passionately advocated a ban. Describing her experience, she said,
“without a doubt these killing machines”—
as the hon. Member for Rhondda (Chris Bryant) called them earlier—
“need to be banned in a heartbeat!”
She used sunbeds in her late teens and early 20s, when
“it was the norm for everyone to walk about with the supposed ‘healthy glow’. How very naive was I. I cannot recall ever any health warnings regarding sunbeds, and yes a pair of goggles given for eye protection and that’s it! Now all these years later I have malignant melanoma, first diagnosed last August…since then I have 2 more separate melanomas, and also waiting for results of 2 further biopsies. I would not wish this horrible disease on anyone. If only I knew then what I know now I would never ever have put myself in that position of risking my life, all for a tan. My body looks like a patchwork quilt.”
Similarly, Vicki Brennan noted that she used sunbeds and now has a malignant melanoma. Tragically, she comments:
“If I knew the statistics back then I would have made an informed decision not to use them, it scares me to think how many people are putting themselves at risk. And as for banality...Tell this to the thousands enduring treatment and those who are dying. You don’t just cut skin cancer out and carry on as normal. Please ban sun beds.”
A lady who came to a meeting that I was chairing had four young children, and was only in her 30s. She knew she was not going to survive, because she had a melanoma. She was going to leave the four young children for her husband to bring up, and they would not know their mother at all because they were so young.
The heartbreaking consequences of melanoma, aligning with sunbed use, were highlighted by Elaine Broadhurst. She said she and her brother used sunbeds as teenagers.
“We had one in our own home. There was no legislation or advice on the dangers. My brother was diagnosed with melanoma and died from it two years ago aged 46, leaving a wife and two young children. I’m convinced that the sunbed use contributed to losing my brother to this deadly disease and that sunbeds should be banned.”
Hundreds of people wrote similar testimonials, which illustrate the huge personal impact that the condition has on people’s lives, and the regret that many feel, having used a sunbed repeatedly and contracted the condition as a consequence. I encourage Members to take the time to read through some of the comments on the House of Commons Facebook page.
It is important to stress that it is clear that the majority of people use sunbeds purely for cosmetic reasons and vanity. The significance and dangers of cosmetic tanning are supported by many case studies and scientific research. It is said that people feel more confident, and sometimes even slimmer, when they are bronzed. However, in reality, over time when people over-use sunbeds their skin can age prematurely, making it look coarse, leathery and wrinkled—prune-like. In the worst-case scenario sunbeds can cause burns, scars and ulcers known as basal cell carcinomas. Dr Birnie observed that there has been rising incidence of the condition in younger people, and especially in women who have used tanning beds in their teens and early 20s. I am sure that that is not the aesthetic that young people craving a tan are trying to achieve.
I am particularly concerned to learn of a trend towards sun tanning addiction, where people use the sunbed for a quick and lasting tan. Some research suggests that as many as one in 50 sunbed users are addicted to them. There are stories of people using a sunbed daily for a long period of time. I was on Radio Sussex this morning and a lady said she had for three years used a sunbed at home for an hour a day. She now has a melanoma. That is excessive use, but lower use is still deadly. Scientists from Germany and the US recently published a study showing that almost 20% of indoor tanning users have addictive symptoms.
I would like high street tanning salons that offer sunbeds to raise awareness of the potential health implications of using sunbeds, as happens with cigarette packets. I understand that the British Association of Dermatologists has explained that many tanning salons fail to provide adequate information. However, I should prefer an outright ban to the use of nasty pictures of people with burns.
There is work to be done outside the legislative reach of Parliament. I would encourage the fashion and beauty industry to take an active role in discouraging the use of sunbeds. I commend initiatives previously adopted by the fashion industry, such as when in 2012 Kate Moss and her then modelling agency, Storm, aimed to raise awareness of the dangers associated with sunbeds, to put heavy tans out of fashion. At the same time directors from 11 UK model agencies including Elite, Premier Model Management, Storm and Next signed up to a zero tolerance policy on sunbed use, to protect new and established models from the health and cosmetic effects of using ultraviolet tanning beds. It would be good to see such work continue and perhaps go further. Perhaps there should be more articles in girls’ and women’s magazines to explain the dangers of tanning in that way. We all know that models are generally young and thin—that is another issue—but they do not need a tan to look beautiful. Twiggy, in the 60s, was pretty beautiful, and she has continued to be. I doubt whether she uses a sunbed.
In 2003 the World Health Organisation responded to the serious public health challenge and published a guidance document on sunbed legislation. Since then, a number of organisations and individuals in the UK have called for an outright ban on the use of commercial sunbeds. We should also look at the practice of selling them privately, because there is then no control over how people use them. The Sunbeds (Regulation) Act 2010 banned the use of sunbeds by under-18s, but many people feel that the ban did not go far enough. It was a start, but only an all-out ban is acceptable. That idea is being explored by our European partners. France’s health watchdog says that the risk of cancer from sunlamps and sunbeds is proven and authorities should act to stop people being exposed to artificial ultraviolet rays. France is one of a number of countries that have already limited their use.
I know that many members of the public support the banning of sunbeds. I was very pleased that Melanoma UK’s recent petition to ban sunbeds in the UK received in excess of 15,000 signatures. While I received a mixture of responses on both sides of the argument from the parliamentary outreach exercise, I was struck by the support from some people in the beauty industry. I am pleased that some individuals in the industry have recognised the dangers of sunbeds and champion the safe alternative of a spray tan.
One such example is Tonina Healey, a beauty salon owner who took the decision to ban the use of tanning beds in her salon and instead has promoted a spray tan. She said:
“I have always been very uncomfortable at the use of sunbeds. I took the decision to stop the use of tanning beds in my salon, I think one of the things that should be of major concern to all salon owners, is the issue of control. I have seen articles relating to tanning addiction and of clients going from salon to salon in order to achieve ‘double’ sessions. No one in the beauty industry can legislate for that and I for one, do not want to invite a lawsuit my way—does anyone in this industry really need that kind of hassle? I do believe that that will come one day, a salon in the UK will be sued when someone develops melanoma. I don’t want that on my plate and I certainly don’t want the illness of a client on my conscience. We trained in beauty to make our clients feel good, not to watch them die horrific deaths. We support a ban.”
Brazil and Australia have already banned sunbeds commercially. Brazil was the first to ban sunbeds in 2009, the only exception being where doctors prescribed their use for health reasons. In the same year, the World Health Organisation classified exposure to UV sunlamps, sunbeds and tanning booths as carcinogenic to humans. Australia followed Brazil’s ban in 2013. Annual rates of malignant melanoma in Australia were 10 times the rate in Europe for women, and more than 20 times for men. Professor Grant McArthur stresses the success of the ban in Australia, saying:
“The Sunbed ban in Australia has been highly effective. We estimate that one unnecessary death per week has been prevented by the ban. The greatest burden of deaths from Sunbeds falls in people aged 20-40. I plead that the UK save their young people by banning sunbeds”.
To conclude, it is my view that there should be an outright ban on sunbeds, and I hope I will receive the support of colleagues in that. While the temptation to achieve that sun-kissed glow is understandable, risking contracting such a devastating disease is not. The unnecessary exposure to UV is nonsensical, and I implore anyone to get a fake tan through a bottle or can, not the sunbed. It seems wrong that people should have the option of damaging their health so greatly, purely in pursuit of cosmetic gratification.
The evidence is clear: for over three decades, deliberate sunbed exposure to UV for cosmetic purposes through sunbeds has been driving up the incidence of skin cancers and driving down the age of their first appearance. I stress again the shocking figures that people who have ever used a sunbed are 20% more likely to develop melanoma later in life than people who have never used one, and those who started using sunbeds before the age of 35 were 87% more likely to develop melanoma than people who have never used a sunbed.
I also believe that action needs to be taken to further raise awareness of melanomas and what causes them, including over-exposure to UV through sunbeds. That action should include providing stronger and clearer warnings about the consequences of sunbed usage. Being aware of the possible consequences of the sunbed should lead to a cultural and generational shift, with people avoiding exposing themselves to UV unnecessarily. It is vital that people are conscious of the impact that this awful condition can have on one’s health and personal life—something that I myself have experienced through my own personal circumstances. Please may we have a ban on sunbeds?
Mrs Latham
I thank the Minister for his thoughtful response. I hope that we can get something in the Be Clear on Cancer campaign and the Green Paper, because that would take us to the next stage. If we can prevent melanomas, it will obviously be a good thing. I thank the hon. Member for Rhondda, who talked about killing machines. Unfortunately, he is no longer in his place, as he has had to become a diplomat, educating the Germans to be diplomatic.
I also thank my hon. Friend the Member for Ayr, Carrick and Cumnock (Bill Grant), the hon. Member for Linlithgow and East Falkirk (Martyn Day), and the Opposition spokesman, the hon. Member for Washington and Sunderland West (Mrs Hodgson), who all made thoughtful contributions. This issue does have a very 1980s feel, as the Minister illustrated with the good example from “Only Fools and Horses”. However, it is still happening.
The Minister said that education is very important. I support a campaign for “Sun Safe Schools” in Mid Derbyshire. We had a broadcaster who died in his early 30s from a melanoma—not from sunbeds. A lot of the money raised for him was spent in schools to make them sun-safe schools, where children learn an amazing little song about slipping on a T-shirt, slapping on a hat and slopping on sunscreen. It educates not just the children, but their parents: keep covered up and keep the sun cream on.
That did not happen in my day. When I was a child, there was no sun factor. We just put on Nivea, got burnt and put on camomile lotion after that. Today, there are options for people and it is important that we educate as many children as possible, because they will educate their parents. I actually challenge builders in the street if I see them without a top on, getting burnt, and ask them if they put on sunscreen. They are very polite, usually, about my intervention.
We need to keep talking about this issue, because I passionately feel that nobody should die from a melanoma. There are familial traits, but we need to educate as many people as possible about sunbed use and over-exposure to the sun, whether on the beach, in the countryside or in the back garden. If the Minister could include it in the Green Paper, it would be an excellent step forward.
However, I would still like not only a ban on sunbeds in commercial premises, but a total ban on the sale of sunbeds in this country. I know that is draconian, and I am not a great “banner” of things, but nobody needs a sunbed—they are not necessary to anybody’s life. I thank the Minister for his thoughtful response. I hope that this has moved the debate forward. Since it is 10 years since anything has happened on this issue, let us hope it is not another 10 years before we move forward again on this particular type of cancer.
Question put and agreed to.
Resolved,
That this House has considered the health implications of sunbed use.
Oral Answers to Questions
Pauline Latham Excerpts(5 years, 10 months ago)
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Matt Hancock
Yes. The hon. Gentleman is right: that is absolutely critical.
Mrs Pauline Latham (Mid Derbyshire) (Con)
What advice can the Minister give to elderly and vulnerable people who missed out on the first wave of flu jabs? Are they still available?
Steve Brine
Yes, they are still very much available. People should make an appointment through their GP or their wonderful pharmacist.
Prevention of Ill Health: Government Vision
Pauline Latham Excerpts(6 years ago)
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Matt Hancock
I said the opposite actually. There are environmental and economic factors, and they are very important. My point was that having a record level of jobs in this country is a benefit.
Mrs Pauline Latham (Mid Derbyshire) (Con)
In my constituency of Mid Derbyshire, there is an amazing group of community pharmacies that are saving people going into hospital and getting them out quicker. I invite my right hon. Friend to come and see them. He does not need to go to France; he can come to Mid Derbyshire instead.
Matt Hancock
I will actually be in Derbyshire later this month visiting a neighbouring constituency, but it looks like I have just put another stop on the itinerary.
Acquired Brain Injury
Pauline Latham Excerpts(6 years, 5 months ago)
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The Parliamentary Under-Secretary of State for Health and Social Care (Steve Brine)
I beg to move,
That this House has considered acquired brain injury.
After the last three hours, I think the expression is—and now for something completely different.
For the past hour and a half, some of us English Members have endured watching the match—Tunisia 1: Spurs 2; I mean, England 2. It is a pleasure to be in the House, and we are very grateful to SNP Members for enabling us to watch the match.
I rise to speak to the motion in the name of my right hon. Friend the Prime Minister. I pay tribute to the hon. Member for Rhondda (Chris Bryant) and my right hon. Friend the Member for South Holland and The Deepings (Mr Hayes) for their persistence at business questions and elsewhere, and for securing this debate in the House. Brain Injury Awareness Week took place last month, which makes today’s debate especially timely.
Let me first recognise the important work of organisations such as Headway and the United Kingdom Acquired Brain Injury Forum in raising awareness and in providing information and support to those living with acquired brain injury and to their friends, families and carers. I know that some of them are with us this evening, and I thank them for their persistence during the family dispute we have had in the Chamber for the past three hours.
Acquired brain injury—ABI—is an injury that takes place after birth in an otherwise healthy brain. It includes traumatic brain injuries such as those caused by road traffic accidents, falls or assaults, and non-traumatic brain injuries related to illnesses or medical conditions, including meningitis, stroke or brain tumours. While prevalence estimates for ABI are quite hard to make, the number living with it is thought to be over 500,000 and could be as high as 1 million people. The total cost of brain injury in the UK has been estimated by our officials to be at least £1 billion per year.
Mrs Pauline Latham (Mid Derbyshire) (Con)
My hon. Friend talks about the cost of brain injuries. My constituent Stuart Tranter asked me to lobby the Government to put more money into brain tumour research, which has been very much the poor relation, and I have been successful. I congratulate the Government on having doubled that money since Tessa Jowell, who used to serve on the Opposition Benches and then went to the House of Lords, died. I am very grateful to the Minister and the Department for putting so much money into that much needed research.
Steve Brine
I thank my hon. Friend. This is the first time I have been at the Dispatch Box since Baroness Jowell passed away. As I said during the debate when she was sitting in the Under Gallery with her lovely family, I did not know her well but the one time I met her I was left in no doubt about her determination on this subject. It is great that we are able to do so much. I pass on my condolences to Jess, her daughter, whom I have got to know a little, and her family. The trauma of the immediate is horrible and it goes on for a long time. Our thoughts are with them. I thank my hon. Friend for what she has said. We will do well by Baroness Jowell, especially through the money that we will put into research to try to instigate new research projects, which have traditionally been thin on the ground in this area. We are hoping to stimulate the research market.
ABI can have a devastating impact on our constituents’ lives; even minor head injuries can cause short-term impairment. Those surviving more severe injuries are likely to have complex long-term problems affecting their cognitive and functional ability, personality, close relationships and ability to return to any form of independent life.
Oral Answers to Questions
Pauline Latham Excerpts(6 years, 9 months ago)
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Mrs Pauline Latham (Mid Derbyshire) (Con)
The Parliamentary Under-Secretary of State for Health (Steve Brine)
It is good to be back.
As I have repeatedly said at the Dispatch Box, pharmacies are a vital frontline service for our NHS, with over 1.2 million health-related visits every day. Community pharmacies have again stepped up during this winter period, and I thank them for their hard work. They have vaccinated more than 1 million people against seasonal flu since October. The Government are committed to ensuring that pharmacies and pharmacists are further embedded in the wider health service.
Mrs Latham
I thank the Minister for that answer. Will he come to Derby to meet a constituent who has pharmacies that are working very hard to keep patients out of hospital, therefore saving the NHS money through their innovative ideas?
Oral Answers to Questions
Pauline Latham Excerpts(7 years, 9 months ago)
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Nicola Blackwood
I thank the hon. Gentleman for drawing our attention to this issue. Sometimes the simplest solutions are the most effective. We want to make sure that such innovations are driven across the NHS more effectively, which is exactly what our academic health service networks are there for.
Pauline Latham (Mid Derbyshire) (Con)
Nicola Blackwood
AMR is a global issue. We are world leaders in this, and we are working proactively with international partners to identify new and innovative approaches to the treatment of a range of challenging resistant infections, including malaria.
David Mowat
The volume has increased greatly, and there are something like 2,000 more people being diagnosed every day. The hon. Lady is right: of the eight cancer standards against which we judge ourselves, we meet seven, and the 62-day one has not been met. We need to do more to achieve that, and the cancer strategy set out a pathway for doing so. We have particularly invested in the early diagnosis component; we have invested £200 million in early diagnosis and getting a 31-day all-clear or referral for treatment. That is the pathway to meeting the 62-day target. She is right to raise this, because it is an important indicator and we need to do better.
Pauline Latham (Mid Derbyshire) (Con)
The Secretary of State for Health (Mr Jeremy Hunt)
We know that a strong primary care system is the bedrock of the NHS, which is why I am pleased to announce today that NHS England will publish the new GP contract, agreed by the Government, NHS England and the British Medical Association. It will see almost £240 million extra invested in GP services; require GPs to establish whether overseas visitors are eligible for free care, allowing the NHS to better recoup the costs of that care; and improve access for patients by removing extra funding if GPs regularly close for afternoons during the working week.
Pauline Latham
Will the Secretary of State consider putting a GP in every A&E department so that they can additionally triage patients who are not so ill and advise them to go home and see their own GP on another occasion?
World Autism Awareness Week
Pauline Latham Excerpts(8 years, 7 months ago)
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Pauline Latham (Mid Derbyshire) (Con)
I congratulate my right hon. Friend the Member for Chesham and Amersham (Mrs Gillan) on securing this important debate. I realised the importance of this subject just before the last election when I met a group of parents in my constituency who were talking about the problems that they had experienced. I had previously met people with autism, but I had not understood the pressures that parents and families are put under by the diagnosis, or even by not having a diagnosis of their children’s problems.
I met people who had never received a diagnosis and did not think that they would get one because nobody seemed to recognise that their child had autism. However, it was clear from what they said that the children in question were suffering from a form of autism, although it had never been recognised. Those parents were at the end of their tether and did not know where to turn to next. It is not just mums who have this problem; there were also a lot of dads at that meeting. It is not only about children; it is often adults for whom even less support is available. Whole families are affected, and autism can cause such a big strain that it affects the parents’ marriage or partnership. Many of those situations break down when people have one, two or even three children with autism.
I want to focus on local situations in Derby and Derbyshire, where I feel that the system is failing children who need the diagnosis and help in schools. Through an active group in the area—particularly in Spondon—I have met many people who have autism or whose children have autism. Last year and this year the cathedral has been lit up blue to highlight National Autism Week and to show people that there is a problem in that area. I commend it on that.
Hannah Bardell (Livingston) (SNP)
The hon. Lady is making interesting and powerful points and has mentioned the problem that people with autism face. In my office I have employed someone on the autistic spectrum. Does the hon. Lady agree that we need to change the narrative in some respects, because people on the autistic spectrum have specialist and incredible skills, and it is so important that we are positive about those people and the opportunities that they provide to society?
Pauline Latham
I completely agree. There are some incredible people with autism, but I am talking about the problems that they need to overcome to access proper education and help for themselves and their families. We must focus on the fact that it is the system, not the people, that is the problem.
In Derbyshire, families have to wait far too long between getting a referral for autism spectrum disorder and a diagnosis. Local authorities need better training for local authorities and schools regarding education, health and care plans and dealing with ASD pupils. We need a better transition from special educational needs statements to the new EHCP, and that has been badly managed in my area.
ASD behaviour and management strategies should be a mandatory part of the teaching qualification for teachers and teaching assistants. There also seems to be a lack of knowledge by parents on the legal rights and services available to them as a family dealing with autism, and we as a society need to recognise that and put out more information for those who are dealing with autism. Guidelines from the National Institute for Health and Care Excellence recommend a maximum of three months between a referral and first appointment for an autism assessment. It has been estimated that in Derby that takes closer to 12 months, which is far too long when a child is having problems with their behaviour in school and needs help now.
The Children and Families Act 2014 mandated local authorities to move from special educational needs statements, which outlined a child’s needs and how help would be given, to an education, health and care plan for each child. It also reduced the amount of time that children with special educational needs had to wait for an education, health and care plan from 26 weeks to 20. However, in Derby city the average wait is 35 weeks, and that is after people have already waited for 12 months. Derby local authority did not make sufficient plans to prepare itself for that change, and it has been on the back foot ever since. Until February 2016, only 12% of statements had become education, health and care plans, which is really unhelpful for families. That gap causes delays in the child’s educational development, and places additional stress on the families caring for them.
I believe that Derby city is now asking schools to complete the education, health and care plans even though they are not meant to, and the training provided to school staff on changes to the law has been labelled by some parents as “diabolical”. Admin staff at schools do not understand the difference between a special educational needs statement and education, health and care plans, because they often copy and paste them. Without an EHCP, children on the autistic spectrum disorder are managed by inexperienced staff with a fundamental lack of understanding of ASD.
Derby city local authority has to employ consultants who know what they are doing to help make changes, but they cost four times as much as usual school administrative staff. When all local authorities claim that they are short of money, that seems to be a complete waste of money, although if it gets the process completed more quickly for families and children with autism, it is obviously better for them. However, that money could be better spent on mental health care for autistic children and their families.
If local authorities consistently ask schools to carry out the care plans, as is happening in Derby, we must ensure that schools are given the necessary funds and training for that. There is no obvious legal accountability if deadlines are not met. We must support the parents and siblings of children with ASD. Early diagnosis is key to avoiding the mental health problems associated with not knowing what is wrong and being able to deal with it, and we must move faster to help those children and families to deal with their problems.
Mrs Anne-Marie Trevelyan (Berwick-upon-Tweed) (Con)
I congratulate my right hon. Friend the Member for Chesham and Amersham (Mrs Gillan) on securing the debate and on her tireless work over many years to raise awareness of autism and to start to change Government priorities around those in our country who are not neuro-typical beasts.
My hon. Friend the Member for Bury St Edmunds (Jo Churchill) and the hon. Member for Argyll and Bute (Brendan O'Hara) have described movingly some of the experiences of families and those who suffer from autism. As my right hon. Friend’s Autism Act 2009 was going through the House, I was battling to find support and a diagnosis for my eldest young son. It was evident to me that my very bright and articulate son was not like other boys of his age. He had an extraordinary level of concentration and extremely good reading skills and could converse at length with adults in a most unusual way, but he was also very anxious, fearful of noise and bright lights and unable to cope with anything unexpected in his day—the slightest change to the time we left the house, and all hell broke loose.
Once my son started his schooling, at the age of three, his young life and day-to-day experience became increasingly more challenging, and school life, which demands conformity, became something he was entirely unable to cope with. We struggled on for several years, because no one seemed to have any ideas; teachers said nothing except, occasionally, “Well, come and pick him up early if it gets too much”, “Is it all right if I call if he’s getting difficult in class?” or “Will it be all right if I don’t feed him with everyone else because it seems to be a problem in the canteen?”. I was just a mum with a little boy who seemed to have so many talents but could not cope with daily life.
Eventually, my GP, a wonderful man, referred us to a child psychologist in Newcastle, whose failure to correctly diagnose my son as autistic was nothing short of shocking. Not only did he fail to see what was becoming obvious to our family and our friends, who were trying to support us, but he tried to medicate my son with Ritalin, claiming that he suffered from attention deficit hyperactivity disorder—two behavioural traits entirely absent from my son’s behaviour. The doctor had failed to speak with my son’s teachers, having claimed that he had, before making his diagnosis, and it was only because I fought back against the medical profession’s failure that my son was not inappropriately drugged.
Thanks to huge financial support from my family, we eventually found a team of paediatric doctors based at Great Ormond Street hospital in London, 350 miles from our home in Northumberland, who quickly diagnosed my boy as an Asperger’s syndrome sufferer. We received support, understanding and guidance from these wonderful specialists who empowered us, James’s parents, to challenge school rules and regulations in order to get the changes to his learning environment so that he could once again enjoy and thrive in it. We have encountered two or three teachers for whom medals would be inadequate to recognise how they have put themselves out and learned themselves what it means to be an autistic little boy so that they can help other children coming through the system afterwards. As I say, medals will never be enough for them.
Without good friends, good luck and financial support, I know that our son would have fallen out of school by the time he was six or seven. The pressures that normal life put on our autistic children should not be underestimated. No right-thinking person would ask a child with a broken leg to run up the stairs, but the invisibility of autism means that these children are asked to do things that, given their hypersensitivities or gaps in neurological connectivity, simply ask too much of them.
Pauline Latham
My hon. Friend’s son was extremely lucky because he had a mum who was prepared to fight and had the ability to fight. There are many parents like her who will fight for their children, as most parents want to do. However, some parents do not have the ability or the confidence to do that, and these are the ones that are really being let down by the system.
Mrs Trevelyan
I absolutely agree with my hon. Friend. This is part of the reason I am here. I decided that advocacy was needed for those who are unable to access the system, who do not know how to fight back or who are too honest and quiet folk trying to get on with their day, muddling through it with difficult jobs and complex family environments. For such people it is too hard to fight what still today seems to be an implacable system in so many parts of our country.
The legislation of my right hon. Friend the Member for Chesham and Amersham—the Autism Act 2009—has begun to change attitudes towards autism, and I am now 10 years on from the battles I had to fight. The general population is becoming aware, slowly, of this invisible disability. The challenge is its invisibility—until it becomes visible through a crisis.
Many of our greatest artists and scientists have been on the spectrum—men and women who see the world differently from those of us who are “neuro-typical”, as my son always refers to me—mostly as an insult, I suspect, but I take it as it is! As a nation, we should value those who offer an understanding of our world that we neuro-typical folk simply do not have. They are vital to our growth as a nation, both culturally and economically.
The genius of the great Alan Turing brought us the computer—possibly the greatest leap since the steam engine—yet he was shunned and misunderstood throughout his life. We can read about his school years, which were truly awful. The damage that society inflicted on him through a lack of understanding and a blatant disregard for his difference in character highlights what we must reverse, 70 years on, to ensure that no child on the autistic spectrum is lost to us or our nation.
Small changes to the school environment and support for families that are bringing up autistic children with day-to-day tasks, which can reduce their stresses, can lead to positive and thriving outcomes for these wonderful members of our communities. Most importantly, we need a team of paediatric experts across every part of our country who can diagnose autistic children early on, and we need councils and schools that are trained and flexible in supporting these children to fulfilling lives.
I recently met a family in my constituency with three boys, two of whom have been diagnosed. I also have in Alan Carrick, at Northumberland County Council, a passionate advocate for all our special needs children, and he is particularly interested in supporting those on the autistic spectrum. It is difficult for him to meet the needs of each and every autistic child because there is not enough flexibility for him to provide preventive and creative solutions for individual families, which would provide practical support.
If we can reduce the day-to-day pressures on parents through low-cost early interventions, we will increase the chances of these families staying together. There are obvious long-term, value-for-money arguments for investing in these families early on to stop long-term costs to the state of family breakdown if we fail these children and their families at the early stage. I call on our Government to encourage our councils to be creative and forward thinking in their support for our autistic children—most urgently of all by getting speedy diagnosis so that support can hopefully follow.
Brain Tumours
Pauline Latham Excerpts(8 years, 7 months ago)
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Pauline Latham (Mid Derbyshire) (Con)
It is a pleasure to serve under your chairmanship, Sir Edward. I congratulate the hon. Member for Warrington North (Helen Jones) on securing this debate. Today’s attendance is testament to how many of us have been approached by constituents, not just now but before the petition, asking us to come and speak on this subject. I will not take up too much of the House’s time.
Last November, I visited the children’s brain tumour research centre at the University of Nottingham, which gave evidence to the Committee’s report. The research centre is an outstanding medical research facility that provides vital support for children and their families as they undergo treatment, and for families who have lost a loved one to a brain tumour. The research centre also services Derbyshire—everyone with a brain problem has to go across to Nottingham—and it gives an outstanding service. The amazing work done in such centres is being held back, as has been said, by a lack of funding, which has been a problem for decades.
Brain tumours are the biggest cancer killer of children and people under 40, yet brain tumours receive just 1.5% of the £498 million spent on research into cancers. I am in no way saying that money should be taken away from research into other cancers; rather, I am pointing to the success that increased funding has achieved in other cancers, such as breast cancer and prostate cancer, for which patients now have an 80% five-year survival rate, compared with less than 20% for brain tumour patients. The lack of funding for brain tumours creates a Catch-22 situation, because researchers are not attracted into the field as the funding is not there for them to work with. As the report states, existing levels of funding have not been sufficient for researchers, such as those at the children’s brain tumour research centre, to make significant advances in their understanding of this horrific disease, although they are working very hard and feel that they are almost on the edge of a breakthrough.
As well as an increase in funding for research on brain tumours, we need greater investment in educating healthcare professionals on the symptoms of brain tumours. Too often people are misdiagnosed by GPs. That is not really the fault of the GPs, because they have to know everything about everything, which is not possible. They sometimes think that the symptoms with which they are presented could not be a brain tumour, and therefore they fail to send the patient for a scan, which is the only way to diagnose a brain tumour. That leads to a situation where 61% of brain tumour patients are now diagnosed at A&E, with children being a high proportion of them. Again, there is a Catch-22 because late diagnosis makes it harder to place patients in clinical trials to research much-needed cancer drugs. Also, the later they are diagnosed, the less chance there is of a cure.
Building on the success of the HeadSmart campaign in incorporating the symptoms of brain tumours, and the variants in children, young people and adults, into National Institute for Health and Care Excellence guidelines on cancer would help GPs to know when they are dealing with a brain tumour and would therefore increase scan referrals, which is the only way that a brain tumour can genuinely be identified. Early diagnosis would greatly increase survival rates and improve the quality of life of those who are diagnosed.
Will the Department tell us whether it believes that the current levels of funding are adequate for progress to be made on improving survival rates for this disease? We need extra funding. A constituent came to me who had been diagnosed with an incurable brain tumour. He wants more money to go into research, not to help him, but so that the people who come after him can have better care and better diagnosis so that they can be cured. We also need the extra funding—
