Brain Tumours

Edward Leigh Excerpts

Monday 18th April 2016 Westminster Hall

[Sir Edward Leigh (in the Chair)]

There are still people trying to get into this most important debate, and I am happy to allow everybody to come in and for people to stand at the back if they need to.

Before I call Helen Jones to move the motion, I should say that 30 colleagues have put their names in to speak, so I will be imposing a time limit soon—I know the mover of the motion will want to bear that in mind when she makes her speech. I should also say that those who want to make an intervention, but are also hoping to catch my eye to speak later, might consider that an unwise thing to do.

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[Helen Jones]

I am going to wind up my speech, if the hon. Gentleman will forgive me.

This is a real chance to save lives, so I say to the Minister: read the report and champion its recommendations in government. That way we can have world-class scientists in this country and save the lives of many people, including young people, who will have the chance to make an enormous contribution to this country. It is as simple as that. This cancer has been neglected for far too long. That now has to change. [Applause.]

[Sir Edward Leigh (in the Chair)]

Order. I know this is a sensitive subject, but I am afraid that people in the Public Gallery must not clap; I am sorry.

As I said earlier, a very large number of Members have written to Mr Speaker, and they often quote the fact that they want to speak on behalf of constituents, so my aim is to get everyone in and I will now have to impose a four-minute limit. I would be grateful if colleagues could resist the temptation to take too many interventions, because that will mean that someone at the end of the queue does not get in. I know that the first speaker will want to abide by that, because of her long experience.

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[Pauline Latham (Mid Derbyshire) (Con)]

It is a pleasure to serve under your chairmanship, Sir Edward. I congratulate the hon. Member for Warrington North (Helen Jones) on securing this debate. Today’s attendance is testament to how many of us have been approached by constituents, not just now but before the petition, asking us to come and speak on this subject. I will not take up too much of the House’s time.

Last November, I visited the children’s brain tumour research centre at the University of Nottingham, which gave evidence to the Committee’s report. The research centre is an outstanding medical research facility that provides vital support for children and their families as they undergo treatment, and for families who have lost a loved one to a brain tumour. The research centre also services Derbyshire—everyone with a brain problem has to go across to Nottingham—and it gives an outstanding service. The amazing work done in such centres is being held back, as has been said, by a lack of funding, which has been a problem for decades.

Brain tumours are the biggest cancer killer of children and people under 40, yet brain tumours receive just 1.5% of the £498 million spent on research into cancers. I am in no way saying that money should be taken away from research into other cancers; rather, I am pointing to the success that increased funding has achieved in other cancers, such as breast cancer and prostate cancer, for which patients now have an 80% five-year survival rate, compared with less than 20% for brain tumour patients. The lack of funding for brain tumours creates a Catch-22 situation, because researchers are not attracted into the field as the funding is not there for them to work with. As the report states, existing levels of funding have not been sufficient for researchers, such as those at the children’s brain tumour research centre, to make significant advances in their understanding of this horrific disease, although they are working very hard and feel that they are almost on the edge of a breakthrough.

As well as an increase in funding for research on brain tumours, we need greater investment in educating healthcare professionals on the symptoms of brain tumours. Too often people are misdiagnosed by GPs. That is not really the fault of the GPs, because they have to know everything about everything, which is not possible. They sometimes think that the symptoms with which they are presented could not be a brain tumour, and therefore they fail to send the patient for a scan, which is the only way to diagnose a brain tumour. That leads to a situation where 61% of brain tumour patients are now diagnosed at A&E, with children being a high proportion of them. Again, there is a Catch-22 because late diagnosis makes it harder to place patients in clinical trials to research much-needed cancer drugs. Also, the later they are diagnosed, the less chance there is of a cure.

Building on the success of the HeadSmart campaign in incorporating the symptoms of brain tumours, and the variants in children, young people and adults, into National Institute for Health and Care Excellence guidelines on cancer would help GPs to know when they are dealing with a brain tumour and would therefore increase scan referrals, which is the only way that a brain tumour can genuinely be identified. Early diagnosis would greatly increase survival rates and improve the quality of life of those who are diagnosed.

Will the Department tell us whether it believes that the current levels of funding are adequate for progress to be made on improving survival rates for this disease? We need extra funding. A constituent came to me who had been diagnosed with an incurable brain tumour. He wants more money to go into research, not to help him, but so that the people who come after him can have better care and better diagnosis so that they can be cured. We also need the extra funding—

[Sir Edward Leigh (in the Chair)]

Order.

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[Edward Argar]

My hon. Friend is absolutely right. We need to see the amount of funding increased to the £30 million to £35 million proposed in the petition. I was disappointed by the Department’s official response, which essentially appeared to abrogate responsibility for helping to identify and address areas with insufficient funding. I echo my hon. Friend the Member for Mid Derbyshire (Pauline Latham) in asking whether the Minister thinks that the current level of funding is adequate. If it is not, what steps will the Government take not to pass the problem to the voluntary sector, but to take the lead in addressing and filling that gap?

The Petitions Committee was right to state that brain tumour patients have been let down by a lack of leadership from successive Governments. This is not a party political issue; it is about getting it right. I hope that the Minister’s response, as his responses normally are, will be positive, constructive and encouraging. It is through the efforts of Jake McCarthy’s family and friends and people like them across the UK that we are having this debate. We owe it to them and to Jake to rise to that challenge.

[Sir Edward Leigh (in the Chair)]

We have 15 more speakers. If they all stick to about four minutes, we should get everyone in. Members of the public have written to their MP and their MP is here. They want to hear their MP speak, so I know that everyone will try to keep to their four minutes from now on and not take too many interventions.