Rare Cancers Bill

Paulette Hamilton Excerpts

Friday 14th March 2025 Commons Chamber

[Paulette Hamilton (Birmingham Erdington) (Lab)]

I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for bringing forward this important Bill and for his tireless work in championing the need for a greater focus on research into rarer cancers. Having worked as a district nurse for over 25 years, I have seen time and again the devastation cancer brings, not just to those diagnosed but to their families, friends and communities. The harsh reality is that one in two of us will face cancer at some point in our lives; it is an issue that touches all of us in some way.

While we have made significant strides in cancer treatment and survival rates, progress has not been equal. Some cancers, like the rarer, less survivable cancers, have been unjustly left behind. Cancers such as pancreatic, oesophageal, liver, brain and stomach still face staggeringly low survival rates. Currently, the least survivable cancers have a five-year survival rate of just 16%, compared with 55% for all other cancers. This disparity is not just a statistic; it is a failure in our services and the way these cancers are researched, which has cost lives, shattered families and left too many of us without hope.

A key driver of this has been the chronic underfunding and lack of focus on research into these cancers, which has meant that we lack tests and the tools and treatments needed to give people a fighting chance. The consequences of this neglect are devastating.

This issue is deeply personal to me. I have lost loved ones to pancreatic cancer, a disease that steals lives with ruthless efficiency. I lost my best friend, a woman full of life and love, to this cruel illness. She endured months of uncertainty before finally receiving a diagnosis in August, only to pass away shortly after. Her story is of delayed diagnosis, missed opportunities and a system that failed her. Sadly, her story is not unique. I find it truly shocking that in 2025, more than half of those diagnosed with pancreatic cancer will die within three months and only 7% will survive.

Pancreatic cancer is the fifth biggest cancer killer in the UK but receives only 3% of the UK cancer research budget. This lack of investment has meant we are not seeing the treatment breakthroughs that have transformed outcomes for other types of cancer. It does not have to be this way. We know that sustained research funding and strategic focus from the Government can dramatically improve survival rates—we have seen it work for other cancers. I particularly welcome the Bill’s proposal to nominate a named lead to focus on these rarer cancers, ensuring that they are no longer overlooked, as well as its provisions to give people a better opportunity to take part in innovative, cutting-edge trials. That is why I support the Bill.

The Rare Cancers Bill offers a road map to bring real-life, lifesaving changes to those diagnosed with life-threatening diseases. It is not just about policy, but about people; it is about giving hope to those who have been left behind. As chair of the all-party parliamentary group on the less survivable cancers and vice-chair of the Health and Social Care Committee, I firmly believe that through the provisions of this Bill, we can start—I say start—to bring forward access to innovative treatments that could turn the tide. I say to Members of this House, “Let us be bold. Let us make a difference. Let us ensure that future generations have a better chance of survival than those who came before them. Let us send a clear message to patients and their families that they are not forgotten. This is our moment to make a lasting impact—let us make it count. Let us support this Bill.”