Parkinson’s Awareness Month
Debate between Nusrat Ghani and Patricia Ferguson(1 week, 2 days ago)
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Patricia Ferguson (Glasgow West) (Lab)
I congratulate my hon. Friend the Member for Dunfermline and Dollar (Graeme Downie) on securing this important debate at the end of Parkinson’s Awareness Month.
I would like to begin by paying tribute to my old friend and former colleague Margo MacDonald, SNP Member of this House briefly in the 1970s and Member of the Scottish Parliament for the SNP and as an independent from 1999 until her death in 2014. Anyone who knew Margo will remember that she was a force of nature and that anything she did was done with her typical determination, wit and good humour. I credit Margo with my limited understanding of Parkinson’s and its variability, because for all the time she was in the Scottish Parliament she had Parkinson’s, but it did not stop her being one of the most effective communicators and advocates for her constituency.
In my constituency, some 222 people are believed to be living with Parkinson’s as we speak. I want to thank those who care for them—professionals, family members and volunteers alike—for their hard work and commitment. As we have heard, there is no cure for Parkinson’s, and current treatment can manage only some of the symptoms. It can be a frightening disease, and one that can lead to depression and despair.
In Scotland alone there are approximately 30 new diagnoses every week. In 2024, Parkinson’s UK in Scotland produced an excellent report called “Scotland Can’t Wait”. In the report, Parkison’s UK in Scotland highlighted the many challenges that people with Parkinson’s currently face and the problems that will arise if the challenge of the increasing number of people being diagnosed is not addressed. The report drew on experience and robust data and makes some very important points.
It highlights that investing in professional staff who can offer the kind of specialist treatment that people with Parkinson’s need would be an important step forward. Existing staff are already stretched, and if action is not taken soon they will be pushed to breaking point. Ensuring that people get the appropriate medication when it is needed, whether they are in hospital or at home, is also vital. Crucially, the mental health impacts of Parkinson’s need to be addressed, including Parkinson’s dementia, which can be frightening for patients and their families.
A recent freedom of information request revealed that since the year 2020, less than half a million pounds was spent by the Scottish Government on research into Parkinson’s disease. By my calculations, that is something like £34 per person suffering from the disease in Scotland. That seems to me to be a woeful amount of money. I recognise that the effort to find a cure for Parkinson’s will inevitably have to be a global exercise, and one that this Government, I am sure, will want to play a large part in. But everyone has to get their act together and up their game, including the Scottish Government. At the end of the day, we want to find a preventive approach to Parkinson’s, but a cure along the way would be helpful too.
Parkinson’s UK in Scotland called its report “Scotland Can’t Wait”, and rightly so. The 30 people diagnosed every week cannot wait, and the 222 people in Glasgow West certainly cannot either. It is time for Governments on both sides of the border to act and work with Parkinson’s UK and Parkinson’s UK in Scotland to ensure that we do better for people with Parkinson’s for their families and the staff who support them. Parkinson’s UK has shown us the way; it is now time that we follow it.
Madam Deputy Speaker (Ms Nusrat Ghani)
We now come to the Front Benchers. I call the Liberal Democrat spokesperson.
Oral Answers to Questions
Debate between Nusrat Ghani and Patricia Ferguson(1 month, 1 week ago)
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Patricia Ferguson
I am sure my hon. Friend will agree that the UK Government, together with the international community, are looking for a peaceful solution in Syria that puts the people of Syria first. Organisations working with the Syrian communities in Scotland, such as the Scottish Refugee Council, have reported a sense of heightened anxiety among Syrians currently in the asylum system, and wonder whether people seeking protection should be kept in limbo any longer than is necessary. There are also concerns that the pause in decision making may increase the backlog of asylum cases, contributing to the legacy backlog left by the Conservative Government.
Madam Deputy Speaker (Ms Nusrat Ghani)
Order. Ms Ferguson, is there an actual question?
Patricia Ferguson
There certainly is. Is my hon. Friend able to give a timeline for her decision making?
St Patrick’s Day: UK Bank Holiday
Debate between Nusrat Ghani and Patricia Ferguson(1 month, 3 weeks ago)
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Jim Shannon
I believe that when we look past the myths to the message of the man, few in this House would disagree that the holiday should be UK-wide, as indeed should all the national saints’ days for each nation. St Patrick, the patron saint of Ireland, was born to a Christian family in Wales, in Roman Britain, in the late fourth century AD.
Madam Deputy Speaker
Order. The hon. Lady needs to be sitting in the appropriate part of the Chamber to make an intervention. Mr Shannon, you should continue.
Jim Shannon
Shortly before he was 16, Patrick was captured from the villa of his father, Calpurnius, by a group of Irish raiders who took him to Ireland and forced him into slavery. Six years later, he escaped home to Britain, his religious faith strengthened during his time in slavery. The story of St Patrick is a wonderful one. It is a great story of love, of a missionary and of Christianity.
Patricia Ferguson
I thank the hon. Member for giving way, and I thank you for your guidance, Madam Deputy Speaker—my apologies.
The legend of St Patrick is a very famous one. We Scots like to think he was born in Kilpatrick in Scotland, but wherever he was born, the things he represents, as the hon. Member says, are things that we can all gather around. I think the fact that the celebrations around St Patrick’s day are so lively probably does have something to do with the fact that, actually, he was Scottish.
Rare Cancers Bill
Debate between Nusrat Ghani and Patricia FergusonFriday 14th March 2025
(1 month, 3 weeks ago)
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Patricia Ferguson (Glasgow West) (Lab)
I thank my hon. Friend the Member for Edinburgh South West (Dr Arthur) for bringing forward this Bill. If, as we always say, politics is the language of priorities, then my hon. Friend has got his absolutely correct. I thank all Members who have shared their experiences and their stories, some incredibly moving. They should be what inspires us to take forward all the action we are proposing today.
I was struck by the fact that the hon. Member for Wokingham (Clive Jones) and I have something in common, which we probably would not want to have in common, in that we were both diagnosed with breast cancer in 2008. I have to say, my breast cancer was a strange breast cancer, and it always feels slightly strange talking about it, because no one’s ever heard of it. It is not a rare cancer as such, because it is a breast cancer, although there are some who argue it is actually a soft tissue sarcoma—whatever, it was treated as a breast cancer. It is called a phyllodes tumour.
Unlike other breast tumours, phyllodes tumours do not go into the ducts, but into the connective tissue. It presents differently from other cancers of the breast, and the treatment is also different, in that the only treatment that works is excision. Excision can be anything from a lumpectomy to a mastectomy. The hope is that there are clear margins, which mean the patient will be okay, but—and it is a big “but”—when a malignant phyllodes tumour is present, it can spread, and it can be difficult or impossible to treat. That is when it becomes a very different outcome.
I mention it today not because it is a rare cancer, but because it can be difficult to diagnose. It does not show up in a mammogram, for example, and there is no definitive explanation why such tumours occur. Some research is going on just now, but it is not conclusive as yet. A lot more work needs to happen, and because incidence is so low, it is difficult to research. The things we know about it for certain seem random to me. They tend to occur more often in the left breast. Why? I have no idea. They usually occur when a patient is in their 40s. As I have said, they do not seem to respond to chemo or radiotherapy, and they are not thought to be genetic or hormonal.
The reason I mention my case is that it can be a lonely thing to have an unusual cancer. When trying to explain it to family and friends, you say, “No, it did not show up in a mammogram. No, I am not getting chemotherapy or radiotherapy. No, I do not know why it happened. No, I had not heard of it either.” You begin to doubt yourself a little, and you begin to question what is actually going on. For someone with a very rare cancer, it must be incredibly difficult when there is not a background of research, not anything that they can read, and no one can give them a pamphlet about it and tell them what is happening.
It seems to me that we should know more about cancer full stop. We have got to 2025, and we know some things about cancer. We know how to treat some cancers, but there are so many others that we do not have the answer for. We need people to be diagnosed more quickly, which means that we have to have the research. We need people to have the best possible treatment, which means we have to look at the drugs and find out what works and what does not work, and where a drug can be transferred from one thing to another successfully. Crucially, we have to know why it is that some people get cancer and others do not.
This Bill will make a huge difference to the lives of some of the people we have heard about today. For some, as we know, it will not be soon enough. It is the responsibility of every single one of us to make change happen, and we have an opportunity today to take that step forward. My hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) spoke about her sister, Margaret, who I worked with for a time in the Labour party. While I was listening to the other speeches, I was reflecting on what my hon. Friend said. I think we all need to be angry. We need to say—to shout it from the rooftops—that change begins today.