Independent Living Fund

Debate between Nicholas Dakin and Mary Glindon

Wednesday 8th July 2015 Westminster Hall

[Mary Glindon (North Tyneside) (Lab)]

I congratulate my hon. Friend on securing this important debate. Does he agree that there will be a bigger problem, given that local authorities that have already had their budgets cut by £4.6 billion are not receiving enough money to compensate for the ILF money lost? That will definitely affect our constituents.

[Nic Dakin]

My hon. Friend is absolutely right to put her finger on that area of serious concern. If we believe the people who are experiencing the transfer—and I have no reason not to—the smooth transfer that was promised clearly is not happening. The reality on the ground is that many ILF recipients, their families and the people they employ to deliver their care still do not know where they stand, which is clearly unacceptable.

Independent Living Fund Recipients

Debate between Nicholas Dakin and Mary Glindon

Wednesday 18th June 2014 Westminster Hall

[Nic Dakin]

I absolutely agree.

Let me move on to my second constituent, Jon Clayton, who illustrates what my hon. Friend said. He also receives ILF. Like Ashley, he employs carers who understand his disability. His sister writes:

“My brother Jon is quadriplegic, having been involved in an accident which was not his fault at the age of 18. He is now 54.

He is one of life’s truly inspirational people; an accomplished mouth artist—a gift he only knew he had after his life changing accident—living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.

He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.

His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing…This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends.

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function—the ILF—from being eroded.”

[Mrs Mary Glindon (North Tyneside) (Lab)]

Does my hon. Friend think it is a disgrace that, last month, when people such as his constituent turned up at Tothill street, the doors of the Department for Work and Pensions were locked against them? Those people simply wanted to hand a letter in to the Minister’s office, but no one was available, and I had to take the letter in by the back door.

[Nic Dakin]

I am sure all those who turned up to present the letter will want to thank my hon. Friend for carrying out that duty on their behalf. Obviously, it would have been much better had they been able to access the Department themselves, and I am sure the Minister and his colleagues will reflect on that. Sometimes these things happen, sadly, but the Minister has heard my hon. Friend’s concern, and I am sure he will want to address it.

A fundamental concern for Jon, Ashley and others is whether they will be able to employ their specialist staff in future. The question was raised with North Lincolnshire council, which responded on 9 June 2014 with these words, which are rather bureaucratic:

“We appreciate this situation may cause you concern as an existing Independent Living Fund customer and would wish to reduce any worry or anxiety you may have.

Allocation of future monies will be based on your updated assessment and support plan and on future Local Authority funding so at this stage we cannot give any specific guidance on the amount of monies that you may receive from us or cannot give guarantees on the future employment status of any Personal Assistants you may currently employ.”

As hon. Members can imagine, such “reassurances” serve only to heighten anxiety and build mistrust.

I return to my central question: will the Government guarantee that Ashley, Jon and all those currently receiving ILF will not lose their independence as a result of the Government’s decision to close the fund? I believe that that decision is aimed at saving money, but it might end up costing far more in other budget areas, such as health.

A better way forward would be for the Government to engage with ILF recipients—they clearly had an opportunity to do so recently when my hon. Friend the Member for North Tyneside (Mrs Glindon) went with recipients to the DWP—to learn from their experience and to find ways of shaping future services that are cost-effective, but that continue to deliver true independence.

Oral Answers to Questions

Debate between Nicholas Dakin and Mary Glindon

Thursday 13th December 2012 Commons Chamber

[Mrs Mary Glindon (North Tyneside) (Lab)]

7. What discussions he has had with the Chancellor of the Exchequer on the implications of the autumn statement for investment in new energy infrastructure.

[Nic Dakin (Scunthorpe) (Lab)]

18. What discussions he has had with the Chancellor of the Exchequer on the implications of the autumn statement for investment in new energy infrastructure.