Neil O'Brien
Main Page: Neil O'Brien (Conservative - Harborough, Oadby and Wigston)Department Debates - View all Neil O'Brien's debates with the Cabinet Office
(5 years, 6 months ago)
Commons ChamberI recognise the important role that trade unions play in our democracy and the work that can be done with them to enhance workers’ rights in this country. That is exactly what the Government are doing. We want to see workers’ rights enhanced and improved and are already on track to do that. I look forward to our continuing to be able to do so in the future.
A couple of weeks ago, I asked the Prime Minister about a family in my constituency who desperately needed the life-changing drug Spinraza. This morning we have the wonderful news that it will be made available in England. Will she now press for a managed access agreement to be put in place as soon as possible, because the children who need this drug cannot afford to wait a single day longer?
My hon. Friend raised a very important issue at the time, and I am very pleased that NHS England and Biogen have agreed a deal that enables NICE to recommend this revolutionary new treatment. As he said, it has the potential to transform the lives of young children with spinal muscular atrophy and their families, and I will certainly ensure that the Department of Health and Social Care acts on his request that it be made available as quickly as possible.