Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Foreign, Commonwealth & Development Office:
To ask the Secretary of State for Foreign, Commonwealth and Development Affairs, whether he plans to prioritise (a) maintaining and extending financial commitments to multilateral organisations and (b) bilateral aid to partner countries, in the context of the reduction in ODA.
Answered by Stephen Doughty - Minister of State (Foreign, Commonwealth and Development Office)
The Prime Minister has set out a new strategic vision for government spending on defence and security and Official Development Assistance (ODA). Detailed decisions on how the ODA budget will be used will be worked through as part of the ongoing Spending Review based on various factors including impact assessments.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he (a) has taken and (b) is taking to (i) increase and (ii) improve the availability of specialist clinical provision for people with Huntington’s Disease.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Surrey Heartlands Integrated Care Board (ICB) commissions a specialist service that provides support to people with Huntington’s Disease. The service works closely with the Huntington’s Disease clinic at St George’s University Hospitals NHS Foundation Trust. As of November 2024, there are 18 full time equivalent neurology consultants employed in National Health Service trusts within the Surrey Heartlands ICB region. This is seven more than a year previously.
At the national level, there are several initiatives supporting service improvement and better care for patients with neurological conditions, including those with Huntington’s disease, such as the RightCare Progressive Neurological Conditions Toolkit and the Getting It Right First Time Programme for Neurology. NHS England has also established a Neurology Transformation Programme, a multi-year, clinically led programme to develop a new model of integrated care for neurology services. The National Neurosciences Advisory Group developed clinical pathways for adults with movement disorders, including Huntington’s disease. This is being used to inform the proposed changes to the neurology service model, which will in turn be used to revise the service specification for neurology.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how many and what proportion of integrated care boards have specialist clinicians for Huntington’s Disease; and whether Surrey Heartlands ICB has specialist clinicians for Huntington’s Disease.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Surrey Heartlands Integrated Care Board (ICB) commissions a specialist service that provides support to people with Huntington’s Disease. The service works closely with the Huntington’s Disease clinic at St George’s University Hospitals NHS Foundation Trust. As of November 2024, there are 18 full time equivalent neurology consultants employed in National Health Service trusts within the Surrey Heartlands ICB region. This is seven more than a year previously.
At the national level, there are several initiatives supporting service improvement and better care for patients with neurological conditions, including those with Huntington’s disease, such as the RightCare Progressive Neurological Conditions Toolkit and the Getting It Right First Time Programme for Neurology. NHS England has also established a Neurology Transformation Programme, a multi-year, clinically led programme to develop a new model of integrated care for neurology services. The National Neurosciences Advisory Group developed clinical pathways for adults with movement disorders, including Huntington’s disease. This is being used to inform the proposed changes to the neurology service model, which will in turn be used to revise the service specification for neurology.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department plans to establish a specialist Huntington’s Disease Centre in Surrey.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Surrey Heartlands Integrated Care Board (ICB) commissions a specialist service that provides support to people with Huntington’s Disease. The service works closely with the Huntington’s Disease clinic at St George’s University Hospitals NHS Foundation Trust. As of November 2024, there are 18 full time equivalent neurology consultants employed in National Health Service trusts within the Surrey Heartlands ICB region. This is seven more than a year previously.
At the national level, there are several initiatives supporting service improvement and better care for patients with neurological conditions, including those with Huntington’s disease, such as the RightCare Progressive Neurological Conditions Toolkit and the Getting It Right First Time Programme for Neurology. NHS England has also established a Neurology Transformation Programme, a multi-year, clinically led programme to develop a new model of integrated care for neurology services. The National Neurosciences Advisory Group developed clinical pathways for adults with movement disorders, including Huntington’s disease. This is being used to inform the proposed changes to the neurology service model, which will in turn be used to revise the service specification for neurology.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to improve treatment outcomes for people with Huntington’s Disease; and what research his Department is supporting into that disease.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease. One of the priorities of the Framework is improving access to specialist care, treatment and drugs. In England, we published the 2025 Rare Diseases Action Plan on 28 February 2025, which provides further information.
The Department funds research into Huntington’s disease via the National Institute for Health and Care Research (NIHR). The NIHR welcomes high quality funding applications for research into any aspect of human health and care, including Huntington’s disease. For example, the NIHR’s UCL Biomedical Research Centre (BRC) supported the TRACK-HD study. This identified biomarkers for Huntington’s disease and generated a database of brain scans available to scientists and led to the development of a rating scale to measure disease progression. BRC-funded researchers have also developed the first human test for the protein, which has now been validated and used as an endpoint in clinical trials.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Foreign, Commonwealth & Development Office:
To ask the Secretary of State for Foreign, Commonwealth and Development Affairs, which (a) geographical regions and (b) thematic programmes will be prioritised in the allocation of official development assistance.
Answered by Stephen Doughty - Minister of State (Foreign, Commonwealth and Development Office)
The Prime Minister has set out a new strategic vision for government spending on defence and security and Official Development Assistance (ODA). Detailed decisions on how the ODA budget will be used will be worked through as part of the ongoing Spending Review based on various factors including impact assessments.
Asked by: Monica Harding (Liberal Democrat - Esher and Walton)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps he is taking to increase the availability of specialist clinical provision for people with Huntington’s Disease in Surrey.
Answered by Ashley Dalton - Parliamentary Under-Secretary (Department of Health and Social Care)
Working under the UK Rare Diseases Framework, the Government is committed to improving the lives of those living with rare diseases, such as Huntington’s Disease.
Integrated care boards (ICBs) are responsible for working with their local communities to understand the needs of the local populations and make decisions about how best to commission services that meet those needs, including the treatment of Huntington’s Disease, in partnership with other local commissioners and organisations. Details on local clinical provisions are best answered by the ICB, in this case NHS Surrey Heartlands.