Accessibility Challenges: Invisible Disabilities

Martin Whitfield Excerpts

Monday 18th June 2018 Commons Chamber

[Martin Whitfield (East Lothian) (Lab)]

It is an honour to stand in Parliament tonight to raise the important matter of the accessibility challenges faced by those in society who have invisible disabilities.

The World Health Organisation estimates that 1 billion people across the world carry a disability in some form, which is a telling statistic. We should consider the suggestion in an American survey that nearly 74% of people have disabilities that are hidden. However, I by no means wish to use parliamentary time to shun or ignore the accessibility challenges for those who rely on wheelchairs or mobility assistance. We have made huge progress, but there is still a long way to go to ensure that—from street furniture to narrow doors, steps and bollards—Britain is open and inclusive for all, yet these infrastructural improvements must go hand in hand with challenging the preconceived attitudes that exist towards both people with visible and people with invisible disabilities.

I want briefly to explain why I am so proud to stand here tonight. It stems from the tireless work of a young woman whom I have had the privilege to know, teach and fundraise for, and someone whom I am proud to call a friend. Grace Warnock is a diligent and inspirational campaigner for disability awareness, and someone whom I had the pleasure of teaching in Prestonpans in my constituency of East Lothian. She was diagnosed with Crohn’s disease, a condition which I watched my mother suffer from in her 60s. I am sure that Members across the House are aware of the disease, particularly the challenges they face on a day-to-day basis. From the start of this debate, to the House adjourning this evening, one more person in the UK will be diagnosed with Crohn’s disease, and that person will join the 300,000 people in the UK with the disease. It is a disease that has no cure.

I have had the pleasure to speak to Crohn’s and Colitis UK, which is not just dedicating valuable time and effort to research this condition, but—for the purposes of this debate, I want highlight this role—is at the forefront of the campaign to end the societal stigma attached to this disease. Crohn’s and Colitis UK is clear that overriding stigmas and false assumptions often challenge people with inflammatory bowel disease. That is why its own research shows that 49% of people living with this condition have been abused or verbally questioned for using an accessible toilet.

When Grace was just in primary school, she too experienced this. She noticed early on how people looked at her differently when she came out of an accessible toilet. She was faced with their bemusement, and people saying, “Why are you using those toilets?” Worse, she often faced glares of hostility. She could sense people were looking at her angrily, thinking, “You should queue like the rest of us.” Grace could have ignored this—she could simply have pretended she did not acknowledge this antagonism—yet she went home and decided to do something about it. She did not want to shout at these people or to scream in their faces; she wanted to educate them.

[Jim Shannon (Strangford) (DUP)]

I thank and commend the hon. Gentleman for bringing forward this very important debate. The “Not all illnesses are visible” slogan is being taken on board by my local council in Northern Ireland. Ards and North Down Borough Council is promoting the slogan in all the toilets in the council areas. Does the hon. Gentleman agree that more firms and businesses and more public bodies should ensure that people understand that a wheelchair is not necessarily the only reason for accessing a disabled toilet and that many people with hidden illnesses have the same need to do so?

[Martin Whitfield]

I am grateful to the hon. Gentleman for his intervention. It is true that the fact that something is not visible does not mean it is not there. Indeed, it was the absence of anything visible that seemed to upset the people who saw Grace standing outside the accessible toilets.

Grace went on to develop “Grace’s sign”—a powerful visual aid to articulate her inclusive message. I will abide by parliamentary protocol and hold back from displaying the sign, but for those not aware of it I should explain that it depicts a conventional wheelchair symbol, alongside which are a man and woman standing, both with an emphasised red heart. Why the red heart? Grace is asking all of us to think about those invisible disabilities, but she is also asking people to think using their hearts—to hold back and have the empathy to recognise that people with a range of different conditions may need to use accessible facilities.

The sign projects a powerful message: think with your heart and do not rush to judgment. Think and express yourself with compassion and decency. I am very proud at how far the sign has travelled across Scotland—from the Parliament building in Holyrood, to airports, shopping malls, leisure centres, businesses, council offices and the school where I used to teach. Slowly but surely, attitudes are changing across Scotland. I believe it is now the time to spread the campaign across the whole UK.

What has Grace achieved aside from what I have already mentioned? The Edinburgh Evening News awarded her “local hero” status and she won a Young Scot award and a British Citizen award. Recently, she also won the Prime Minister’s prestigious Points of Light award. People will not hear too many voices on this side of the House praising the Prime Minister, but I take this opportunity to thank her for the unique honour she bestowed on Grace. At her high school, Grace also received an award for her work outwith the school in the community.

In Scotland, this is the year of the young people—a fitting celebration of the flair, creativeness and compassion that I know, as a teacher and a father, young people hold. I am sure all Members would agree that those traits are at the very core of Grace’s sign. I hope they will also agree that we need to take the ethos of Grace’s campaign and begin applying it to all hidden disabilities. As I prepared to discuss this matter, it was striking how many organisations and charities came forward to ask me to advocate on behalf of the causes that they represent. There is also the wonderful debate that we have just had in this Chamber.

[Ian Murray (Edinburgh South) (Lab)]

I pay tribute to Grace. Will my hon. Friend join me in agreeing with all those organisations, including Headway in my constituency, which rehabilitates people with severe head injuries, that they need access to these toilets? In that way, they can take people with acquired brain injury into the community and have access to proper facilities.

[Martin Whitfield]

I thank my hon. Friend. I was listening to the previous debate, which mentioned the stigma of an acquired brain injury and the fact that it is hidden and not obvious—someone behaves in a way that others immediately think of as irrational or drunk. That is so wrong. People should take the time to pause and think that there may be an explanation. The tutterings, mutterings and open hostility are unacceptable in this day and age.

The reality for those with these conditions is that such challenges appear every day, and it is far from unique to just one disability. ME is a hidden condition that was not even acknowledged as a disability until recently. Today is Autistic Pride Day 2018; there is the issue of the ability to raise accessibility challenges for people with autism. The National Autistic Society notes that nearly half of all autistic people in Britain often do not go out because they worry about the public’s reaction to their condition.

My constituent Grace rose to the challenge brought about by the stigma regrettably associated with her condition. She wants to extend the challenge to Parliament, to Whitehall and to MPs across the House, because when public institutions and people in buildings of this magnitude and importance are seen to do something, they start to shape the debate in society. I am pleased that the Secretary of State for Scotland has given me verbal notice that he will do all he can to get this into Dover House. I am encouraged by the interest shown by the Leader of the House and I will invite the Minister to say whether she could support this with something on behalf of the Government. I will of course be writing to you, Mr Speaker, in your enviable position on the House of Commons Commission, to seek your assistance with this matter, but I encourage all Members across the House to see whether they can take the campaign to their constituencies.

As well as asking the Government to back the campaign, I would like to ask the Minister what statistics she has on hidden disabilities and what the Government’s strategy is to ensure that we are tackling those stigmas head on. Further, will the Government be willing to incorporate formally the concept of hidden disabilities in the brief carried by the Minister with responsibility for disability?

[Mrs Sharon Hodgson (Washington and Sunderland West) (Lab)]

My hon. Friend is making an excellent speech. Does he agree that dyslexia is also a hidden disability that brings with it stigma? People, even as adults, will resist admitting that they are dyslexic. As a society, we have to be aware of that, as well as all the other disabilities he speaks about.

--- Later in debate ---

[Martin Whitfield]

I am very grateful to my hon. Friend for that intervention. The stigma of a hidden disability, and the very word disability itself, does no justice to the individuals who suffer day in, day out. They suffer because of the ignorance of society around them. What I take from knowing Grace is that here was a young woman who, rather than wanting to shout at people, wanted to educate them. She wanted to remove the stigma. She wanted to ask people to think before they react. It is for society to make an environment that is welcoming for people both with hidden disabilities and visible disabilities, and perhaps move to a stage where we stop perceiving things as a disability and look at people as individuals. If we could get to that point, we would be a grown-up society. I have to say it took a young girl, Grace Warnock, to really show that and to help me to articulate that demand.