Oral Answers to Questions

Debate between Mark Ferguson and Andrew Gwynne

Tuesday 19th November 2024 Commons Chamber

[Mark Ferguson (Gateshead Central and Whickham) (Lab)]

T7.   Usher syndrome is a rare inherited disease that can lead to both deafness and blindness. As chair of the Usher syndrome all-party parliamentary group, I have met many of those who suffer from Usher syndrome. What assessment has the Department made of the adequacy of support for those suffering from Usher syndrome and their family members?

[The Parliamentary Under-Secretary of State for Health and Social Care (Andrew Gwynne)]

The UK rare diseases framework aims to improve the lives of people living with all rare diseases. I am more than prepared to meet my hon. Friend to look at the adequacy of support available to people with Usher syndrome.