Welfare Reform (People with Disabilities)

Madeleine Moon Excerpts

Tuesday 30th June 2015 Westminster Hall

[Mrs Madeleine Moon (Bridgend) (Lab)]

I draw attention to the interest that I declared in a previous debate. I would rather not repeat it.

We have talked a lot about language. Language is critical, because we are talking about a spectrum of capability and disability. Sometimes, it is all too easy to lump the disabled all together. Part of the problem is that that has happened, largely in this place, but also in the media and, sometimes, in the mind of the public. That is dangerous. We in this place are responsible for ensuring that the public are given a wider and clearer understanding of what we are talking about. We have failed in that. It is time that we stopped, looked at our language, and were clearer.

There is no doubt that there has been some language of “shirkers” and “scroungers”, but there has also been a failure to recognise that some of the people who undergo assessments are terminally ill. They have been assessed by their GPs and consultants as having life-ending conditions. They are the people about whom I want to talk. They should not have to face accusations of being shirkers. They should not face onerous assessments and a requirement that they justify their access and right to benefits.

These are people whose lives are able to continue only because of the carers who care for them with deep love and affection. They are people for whom the assessment process brings huge fear, not only of not getting the benefit, but of not being able to stand up and describe what their life is like—of not being able to say, “I deal with incontinence every day. I can’t swallow. I can’t speak. In fact, I can’t even articulate to you how bad my life is.” We need to recognise that too many people in this country endure that on a daily basis.

I remember, when my husband was passported on to personal independence payment, having to talk, on the telephone, about what his life was like. I have to say, that is not easy. We should not place people in that position. A few days later, I received a letter that said, “If you don’t hear from us by this date, please come back to us.” I did not hear, so I went back to them, and they said “You don’t need to ring us. You don’t need to talk to us.” I had got myself into a state before I rang, and I am somebody who has dealt with disability all their professional life. I had made 20 or 30 phone calls before I got through, and to be told, “Oh, we don’t know why we send those letters out. We don’t need to talk to you; it’s under process,” is insulting.

Let me mention briefly the DS1500. It is an extremely painful thing for someone to receive, because it basically tells them, “This life is about to end”—potentially in six months. I have dealt with people with terminal cancer who have refused a DS1500 because they do not want to be told that. They do not want to know it, and yet it is a huge passport for people to other benefits. We have to look at the DS1500, because many GPs are loth to discuss giving a DS1500 to someone who is terminally ill. We cannot allow that to continue.

We have to look at how we ensure that people who have life-ending illnesses are dealt with compassionately and with dignity, and we are not doing that now. We need to ensure that their carers are enabled to carry on in a way that makes them feel trusted and respected by the state, not like a scrounger or someone who is not dealing with the worst horrors that life can bring. We must always remember that disability benefit fraud is at 0.5%. Let us keep that in mind.

[Sir Roger Gale (in the Chair)]

I apologise to the hon. Member for Islwyn (Chris Evans) because we have run out of time for non-Front-Bench speeches. I am placing your presence on the record, but you may seek to intervene in one of the winding-up speeches.