Hospice and Palliative Care

Luke Charters Excerpts

Monday 13th January 2025 Commons Chamber

[Harpreet Uppal (Huddersfield) (Lab)]

It is an absolute honour to follow the hon. Member for Wimbledon (Mr Kohler), who made a wonderfully poignant speech. I thank him for securing this debate.

As the Member of Parliament for Huddersfield, I have had the privilege of witnessing at first hand the exceptional work of hospices such as Forget Me Not children’s hospice and Kirkwood. These organisations are lifelines for individuals and families facing life-limiting conditions. I welcome the recent announcement of the expansion of hospice funding, which is a crucial step in addressing the financial challenges that these vital organisations face.

Hospices such as Forget Me Not and Kirkwood do not just offer medical care but provide emotional, psychological and practical support to patients and their families. They ensure dignity and compassion at every step of their journey, addressing the full spectrum of needs for those they care for. Steve, a local dad whose son, 10-year-old Ethan, receives support from the Forget Me Not hospice, spoke of its life-changing work for Ethan and the whole family. Steve said:

“When he’s here he’s comfortable, it’s a lovely environment. It’s not clinical and he’s treated like a normal person.”

They are not just care providers but community builders, offering spaces of comfort and support during life’s most difficult times.

Huddersfield University is leading on joint work with local hospices about research and clinical practice in end-of life-care. It includes working with Kirkwood hospice to create a postgraduate certificate in end of life care, the first of its kind in the UK to link with a hospice. While I am sitting next to my hon. Friend the Member for Spen Valley (Kim Leadbeater), I must pay tribute to how she conducted the debate on her Terminally Ill Adults (End of Life) Bill. There is no doubt that she has moved the debate on funding for hospice care, and I thank her very much.

The expansion of hospice funding is a significant and welcome development, but we must acknowledge that many hospices, including those in my constituency, still face immense financial pressures. Forget Me Not children’s hospice recently launched an urgent appeal to address a £1 million funding gap. The expansion of funding must be part of a larger, ongoing strategy to ensure that long-term commissioned funding for hospices is part of the 10-year NHS plan.

[Mr Luke Charters (York Outer) (Lab)]

St Leonard’s hospice in my constituency lovingly cared for my uncle with extraordinary compassion last year in his final weeks. I hear my hon. Friend’s calls for hospices in her constituency but does she agree that, because of their empathy and the important work that they do, we must all campaign for the funding that our hospices desperately need?

[Harpreet Uppal]

I absolutely do. I pass on my condolences to my hon. Friend and his family, and pay tribute to the local hospice and the work that it has done to support his family.

I want to raise NHS England’s £26 million funding for children’s hospices—formerly the children’s hospice grant. Traditionally, that funding was distributed centrally by NHS England but last year, as has been mentioned, it was disseminated by integrated care boards. That has caused delays to many children’s hospices’ access to their funding, including Forget Me Not. It is critical that the funding is ringfenced for children’s hospices, and I hope that the Minister will review whether it can again be centrally distributed, to avoid further delays.

The new funding for hospices is an important milestone. I welcome the Government’s approach and thank the Minister for his work. I know that the hospice sector very much welcomes the additional funding, but can it also mark the beginning of further Government support for these essential services? Hospices are an integral part of our healthcare system, and we must ensure they have the resources and support that they need to continue their vital work, including the specialist doctors and nurses that are needed in many hospices.

Through Government action, community support and the tireless effort of hospice staff and volunteers, we can ensure that hospices not only survive but thrive, continuing to provide the compassion and dignity that every individual deserves.