Oral Answers to Questions

Liz Twist Excerpts

Wednesday 17th March 2021 Commons Chamber

[The Prime Minister]

My hon. Friend makes a really good point about the mental health impacts of flooding. Anybody who has been a victim of flooding or who visits a family that has been hit by flooding will know the immense distress that flooding causes. That is why the NHS will get an extra £500 million to address those issues and to give more support for the mental health needs.

[Liz Twist (Blaydon) (Lab)]

Prime Minister, in December 2019’s election campaign you visited Samantha Parker at her home in Darlington. Samantha has the rare genetic condition PKU—phenylketonuria. You vowed to do your utmost to get her access to the life-changing drug Kuvan on the NHS.

[Mr Speaker]

Order. The hon. Lady just said “you.” We cannot use “you.” I am not responsible for this.

[Liz Twist]

Apologies. The Prime Minister vowed to do his utmost to get Samantha access to life-changing drug Kuvan. Last month NICE published draft guidance, which would make Kuvan available to children but not to adults like Samantha—great for children, but devastating and discriminatory for adults like Samantha. Prime Minister, speaking as chair of the all-party parliamentary group on PKU, I now ask, what action will you take to deliver on your commitment to Samantha Parker, and make Kuvan available for her and for other adults with PKU?

[The Prime Minister]

I thank the hon. Lady very much for raising the case, which I well remember. I am glad that the National Institute for Health and Care Excellence has now extended the treatment’s availability to children with PKU. Clearly, we need to do more, and I am very happy to take it up.