Glenfield Hospital Children’s Heart Surgery Unit

Lilian Greenwood Excerpts

Wednesday 19th October 2016 Westminster Hall

[Liz Kendall]

I share the hon. Gentleman’s concerns. We have to be aware that it is not just about the essential, vital emergency care and surgery when it is a matter of life or death and whether children can reach a centre in time. It is also about ongoing care and support. It is not just that they have one or two operations when they are little; they need care and support right through into adult life.

We must remember that children are part of families, and families have obligations. They have other children they need to get to school and they have work commitments. To throw that up in the air when they have those arrangements and their children need ongoing care and support is denying those patients choice.

[Lilian Greenwood (Nottingham South) (Lab)]

My hon. Friend is doing an excellent job in presenting the case. My young constituent, Jack Phillips, will be celebrating his first birthday later this month thanks to life-saving open heart surgery at Glenfield. His dad, Christopher, wrote to me:

“At such a devastating time having the support of our family who were able to visit from Nottingham regularly while we were in Leicester was vital to us.”

Is that not one of the issues about a centre being within easy reach of other parts of the east midlands?

[Liz Kendall]

My hon. Friend is absolutely right. We have to think about people’s needs in the round—the need for high-quality surgery; ongoing care and support; and, critically, help for those families for whom this is a terrible, frightening and ongoing experience. Making the east midlands the only place without a heart surgery unit does not make sense.

It does not have to be this way. In its own standards, NHS England says:

“Networks will need to establish systems to ensure that referrals…between centres are managed in such a way as to ensure that each clinician is able to achieve their numbers”.

Its own standards say that people need to work together so that everyone can achieve the best. However, at the moment NHS England is not developing the work. I am a long-standing champion of patient choice, but the current proposals deny choice to patients from across the country who use Glenfield children’s heart surgery unit on an ongoing basis.

[Liz Kendall]

The hon. Gentleman makes an extremely important point. The clinicians at the unit and the hospital bosses have striven continually to improve patient care. They are not complacent for a second. They bust a gut to keep making improvements. Those improvements will, I am sure, be recognised and acknowledged by the 58 patients in the hon. Gentleman’s constituency who are receiving continuing care at Glenfield. He is right to say that NHS England needs to look in detail at the improvements that have been and are being made. When NHS England came to the centre in September—I was more than a little disappointed that it had not made a visit before it launched its proposals to close the unit—it found that some of its perceptions were wrong.

One important standard for improving care is co-locating—bringing together, in other words—the different children’s services, which includes not just surgery but other heart support, paediatric intensive care and wider services available to children. NHS England initially marked Glenfield down for not having plans to co-locate services. I am afraid that that was completely and utterly wrong. On coming to the centre it discovered that there are indeed such plans. I would like the Minister to confirm that University Hospitals of Leicester trust has plans to complete the co-location of all the services before April 2019, and has secured all the capital budget necessary to build its new children’s services hospital. To put all that at risk when the hospital is trying to improve services would be a big mistake.

Finally, I want to discuss the impact on other services in Leicester and the region of closing the children’s heart surgery unit. It is extremely important. As I said earlier, NHS England has itself said that it would not put forward proposals to close the unit unless it had done a risk assessment of the costs and benefits, including the knock-on effect on other services. It has not yet done that. I am concerned about two services in particular. Glenfield has a world-leading extracorporeal membrane oxygenation service. Essentially, if someone has a weak heart and needs surgery on it, ECMO enables oxygen to be pumped back into the blood during the operation. Glenfield’s is only the second ECMO service in the world to treat more than 2,000 patients. It conducts 50% of the entire ECMO activity in the UK. It also has the country’s only national patient transport service enabling people who need ECMO to be transferred swiftly from anywhere in the country to Glenfield. The huge benefits of that service were seen during recent flu crises.

[Lilian Greenwood]

I thank my hon. Friend for being so generous in giving way again. My constituent, Alice Parker, was born at Queen’s Medical Centre 17 years ago. Her condition was so grave that her mum, Vicki, was told to expect the worst, but thanks to the expertise of staff at Glenfield who provide ECMO, Alice is now studying for her A-levels at Bilborough College and hoping to go to university to study biochemistry. Vicki describes the centre as “a true national treasure”, but actually, as my hon. Friend has said, it is an international treasure and it is vital that we do not lose the service.

[Liz Kendall]

That is right, and in fact Glenfield’s ECMO training is currently being provided not only to people from three other UK centres, but to people from seven other countries. NHS England seems to think that that work can be picked up and transferred somewhere, quickly and immediately, without loss of quality. In fact, as I know from speaking to many clinicians and nurses, that is not as easy as NHS England says.