Oral Answers to Questions

Kerry McCarthy Excerpts

Tuesday 29th October 2019 Commons Chamber

[Christian Matheson (City of Chester) (Lab)]

3. What steps he is taking to help ensure access to Orkambi on the NHS.

[Kerry McCarthy (Bristol East) (Lab)]

4. What progress has been made in enabling the provision of Orkambi on the NHS.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

18. What progress he has made on increasing access to drugs to treat cystic fibrosis.

--- Later in debate ---

[Matt Hancock]

Of course I would have liked the deal to happen sooner, but I am glad that the company has now committed itself to engaging properly in the normal processes which mean that we obtain drugs nearly as fast as any country in the world. This result—this deal—shows that the system is working to get cutting-edge drugs into the NHS at good value for the NHS pound.

I join the hon. Gentleman in paying tribute to the hon. Member for Dudley North (Ian Austin). I also pay tribute to the hon. Member for Bristol East (Kerry McCarthy), and to other Members in all parts of the House who have campaigned on this issue. It is great to have made some progress.

[Kerry McCarthy]

I am obviously delighted by this news, and the Secretary of State will know how delighted my family were, because when the news broke I showed him the family WhatsApp with lots of exclamation marks and happy smiley-face emojis. As I have told him, my constituent Jake Ogborne, an 18-year-old boy, was in a similar situation earlier this year when he thought that he had been approved for the drug Spinraza—there is a an online video of him having a cake and a celebration—but then he found that according to the small print he was not eligible. I want his family to be as happy as my family are now, and I hope very much that the Secretary of State will be able to look into his case.

[Matt Hancock]

Absolutely. I pay tribute to the hon. Lady, who raised that case with me last night and gave me advance warning that she would raise it in the House today. I shall be happy to ensure that the relevant member of the team meets her with her constituent, if appropriate, so that we can get to the bottom of this.