(2 weeks ago)
Commons ChamberThere is hardly a family in the UK who have not been touched by cancer in some way—this morning’s debate has shown how much we reflect the population—and the feeling of fear, anxiety and heartbreak that comes with it. But for those diagnosed with a rare cancer, the challenges are even greater: delayed diagnosis, fewer treatment options and the shocking lack of research, which means that these patients and their families are often left in the dark. I am glad that we are united in saying that that has to change. I am so proud to support the Bill introduced by my hon. Friend the Member for Edinburgh South West (Dr Arthur)—I think I possibly worked with his father-in-law at Bell Baxter many years ago—because we now have the chance to turn the tide and focus on people with rare cancers.
We have talked a lot about the statistics. Rare cancers still do not get the same investment in research or access to clinical trials as common cancers. As a result, survival rates for some of the least survivable cancers, like pancreatic cancer, brain cancer and stomach cancer, are stuck at just 16%, which is not good enough.
Seven weeks ago, I lost my dad. More time has now passed since his death than the time we had between his diagnosis and his passing. The grief is still exceptionally raw.
I pay tribute to my hon. Friend’s dad. He would be extremely proud of her, and of the speech that she is making.
I thank my hon. Friend for that intervention.
The Brain Tumour Charity and Brain Tumour Research have highlighted time and again that just 1% of national cancer research funding goes towards brain tumours, despite their being the biggest cancer killer of children and adults under 40. That is totally unacceptable. People who are dealing with these devastating diagnoses need more than words; they need real investment in clinical trials and better pathways to diagnosis. The Bill is about fairness—it is about tackling the lack of funding, the difficulty in getting patients into research, and the absence of clear Government leadership in this area.
People miss out on life-changing trials because they simply do not know that they exist. My hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) talked about having a universal system in this country. We also have one of the most siloed systems. People in one part of the system often do not know what is going on in other parts, and we need that to stop. We have talked a lot about the approaches in places like the United States, where targeted policies have led to surges in new treatments for rare cancers. But we also need to recognise what else is going on in the United States: a raft of Executive orders from the White House is putting higher education and current clinical trials into a tailspin.
I want to pay tribute to the people who have helped me a lot over the last few weeks, in particular my hon. Friend the Member for Mitcham and Morden. She talks about being angry. I just remember that anger is a natural stage of grief, but it is also a massive driver for change and for getting things done. I am not at the angry stage just yet, but I will be at some point, and when I get there I will certainly be joining my hon. Friend; it is something we all get.
Somebody said to me many years ago that the greatest gift that any of us can give is the gift of time. No matter our political differences on other things, we have a chance today to give others the gift of time and to make sure no other families have to experience what we have had to go through. Please pass this Bill. Thank you.
(1 month ago)
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Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
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It is a pleasure to serve under your chairship, Dr Huq. I congratulate my hon. Friend the Member for Hastings and Rye (Helena Dollimore) on securing this vital debate. In the time available, I will concentrate on the importance of delivery. The hon. Member for Strangford (Jim Shannon) spoke eloquently about the experience in Northern Ireland; it is only appropriate that I, as a Scottish MP, talk about my constituency and my constituents’ experience.
In 2021, the Scottish Government published its women’s health plan, the intent of which was absolutely sound. In November ’24, they provided the final report for this plan, measuring what it had delivered. I looked at that when preparing this speech, and in particular at one of the topics that comes up regularly in my inbox—endometriosis. People, particularly younger women, are living with pain. It is difficult to get on to the referral pathway, and long waiting times for people who do get there.
The Scottish Government’s strategy detailed a clinical endometriosis pathway for women that was launched in January ’23. It was rightly lauded at the time, but the Scottish Government have a habit of announcing and launching brand new shiny things that are then not delivered operationally. There is a review date of January ’24 on the pathway, but I cannot find any evidence of that review having ever happened. It gives a set of criteria for women to be referred to specialist services, but when someone has those symptoms and declares them to their GPs, they are still do not getting that referral.
When people actually get on to a waiting list, it is endless. Unlike the experience in England, where waiting lists are starting to come down, in Scotland they are not. My constituency of Cumbernauld and Kirkintilloch straddles the periphery of NHS Lanarkshire and NHS Greater Glasgow and Clyde. On average, 65% of people referred to specialist gynaecological services in Scotland wait more than 12 weeks for the first appointment—most wait an awful lot longer than that, as the number of clinics is certainly less than when I worked in the service 30 years ago.
One of my constituents informed me that after fighting for a year with her GP to get a referral to a specialist service, she waited over a year before deciding to go private. She travelled abroad for treatment because she could not stand the uncertainty and the pain. That is just one case from my inbox; there are many, many more. Pathways and strategies are good, but they need to be delivered. I know my hon. Friend the Minister, and I am assured that the Government are focusing on delivery, not just the strategy and a publication that can be held up. I welcome that.
(1 month, 3 weeks ago)
Commons ChamberThe hon. Gentleman makes a good point. NICE is there for a particular reason: to ensure that the drugs being developed are available on the NHS when they meet the required threshold. Of course, we want to ensure that as new treatments become available, they are available for British patients. The work that is being done with Moderna and other pharmaceutical companies will ensure that British patients have access to some of the latest treatments as they come through the pipeline.
One of my earliest memories is being in a hospital room as my grandfather was dying of cancer. Ten days ago, I was in the same hospital as my father died with the same cancer—50 years in between, almost to the week, but no significant change in prognosis. Can the Minister assure me that what are termed the less survivable cancers, which are not necessarily rare cancers, are included as part of this work?
My heart goes out to my hon. Friend. I lost both my parents to cancer, and it does not matter when it happens in your life; it is just heartbreaking. As the children of those parents, you never get over it. Of course, we will have a concerted effort on less survivable cancers. In part, they are less survivable because the research has not been done, or not to the extent that we can develop better treatments for them. That is where we really have to shift the dial in the next decade. We have to make sure that people who have a cancer diagnosis have the best opportunities to live a long and fulfilling life after cancer.
(4 months, 3 weeks ago)
Commons ChamberLord Darzi’s independent report pronounced that the NHS in England was in a critical condition. By commissioning the report and through the announcements in last week’s Budget, the Government have declared their intention to fix our NHS and set a firm foundation for the future.
I particularly commend the decision in the Budget to invest in mental health crisis centres, in order to move those experiencing a mental health crisis away from the accident and emergency unit. Although we will always need crisis support, mental health provision—like physical health provision—should focus on intervention at the earliest possible juncture, rather than relying on emergency care.
So often, those in need of mental health care face barriers to accessing help. They face difficulty in getting GP appointments and being referred to the appropriate waiting lists, and they then spend years on those waiting lists. Young people with neurodevelopmental conditions might spend years not being seen by local child and adolescent mental health services, until their case is referred to the private sector because they are about to turn 18 or they are transferred to the bottom of the adult waiting list. The Budget is clear that there is a need for investment.
My Scottish constituents have been failed by two Governments. The previous Conservative Government have rightly been the focus of much of today’s debate, but the current Scottish Government have been asleep on the job, quite frankly. All the signs that made Lord Darzi say that the NHS was in crisis in England apply just as much to Scotland. One in six Scots are on a waiting list for treatment, tests or appointments. Hospitals post on social media telling patients not to go to accident and emergency unless their condition is life-threatening—my local hospitals did so on 27 October. GPs are at breaking point, with a prescription system that still requires paper and fax machines, and there is no NHS app or e-prescribing for Scottish patients. I commend the largest budget settlement for the Scottish Government in the history of devolution. Now, the Scottish Government must use it to fix the system that they broke.
Devolution is massively important to me—I knocked on doors to campaign for the creation of the Scottish Parliament—and I will defend it with my life, but we want to ensure that it works for everyone, so that there is no chance of “big boy done it and ran away.”
(5 months, 1 week ago)
Commons ChamberThe hon. Member is absolutely right: there are seriously under-doctored areas of the country. Given the finite resources that we have, we must focus on areas with the greatest need. I would be more than happy to meet him to discuss how that might best be reflected in his constituency.
Access to GP appointments is consistently raised with me in Cumbernauld. A number of constituents have informed me that, having made complaints, they have been removed from the list of the general practice at which they have been patients for many years. Will the Minister raise the matter with the Scottish Government’s Cabinet Secretary for Health and Social Care, so that we can get some resolution for my constituents?
Patients have an absolute right to complain about NHS services, and they should not be removed from a practice’s list because of a complaint they have made. Health is of course devolved, but I have asked officials in the Department to engage with their Scottish Government counterparts on that matter to ensure that patients in my hon. Friend’s constituency are treated with the respect and compassion that they deserve.