Oral Answers to Questions

Debate between Justin Tomlinson and Chris Evans

Monday 29th June 2020 Commons Chamber

[The Minister for Disabled People, Health and Work (Justin Tomlinson)]

The evaluation remains a priority for the Department. We have made good progress and expect to be able to provide an update on the outcome of the evaluation shortly.

[Chris Evans]

Motor neurone disease is an utterly wicked, terrible disease. Those who have it are locked in and see their bodies waste away, while their families watch their loved ones slowly slide away. However, only 50% of those people diagnosed with motor neurone disease can claim under the personal independence payment special rules—about which the Minister knows—because of the six-month life expectancy rule; the others have to go through the standard procedures, which can lead to delays. The Department launched a terminal illness review more than a year ago. The Minister has it in his gift to change the rules and ensure that all people with motor neurone disease are allowed to claim under the PIP special rules. On behalf of all those families who are suffering—it is only a small number—I ask him: will he make that change today?

[Justin Tomlinson]

I thank the hon. Member for setting out powerfully the torment and challenges that MND sufferers face; he has been a champion of their cause in Parliament. I am grateful for the part that the Motor Neurone Disease Association, Hospice UK, Macmillan, Marie Curie, Sue Ryder, the national nurse consultant group and others have played in the evaluation. The Secretary of State and I are passionate about making changes: it will not be the status quo. Covid-19 caused a delay to the final part of the consultation with the medical professionals, but we will bring forward a change shortly.