Children’s Hospices: Funding Debate
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Joshua Reynolds
Main Page: Joshua Reynolds (Liberal Democrat - Maidenhead)Department Debates - View all Joshua Reynolds's debates with the Department of Health and Social Care
(1 day, 16 hours ago)
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Mr Joshua Reynolds (Maidenhead) (LD)
It is a pleasure to serve under your chairmanship, Mr Twigg.
I thank the hon. Member for Liverpool West Derby (Ian Byrne) for securing this important debate. Children’s hospices provide an essential service, offering specialised care for children with life-limiting and life-threatening conditions. However, they are not just a place of medical care; they are sanctuaries of love, comfort and dignity, ensuring that every child can experience joy and the best possible quality of life.
Nevertheless, like many institutions in the UK, children’s hospices have been struggling over the past few years. In 2023-24, they spent 15% more than they did in 2021-22 while receiving 31% less funding from ICBs and 11% less from local authorities. Compounding that situation is the fact that since 2019-20 there has been a 41% increase in the number of children receiving end of life care in hospices.
Alexander Devine Children’s Hospice Service in Maidenhead is a shining example of children’s hospices. In November 2001, Alexander Devine was diagnosed with a brain tumour at the age of four. At that point, his whole family became consumed by hospital appointments, doctors, nurses, operations, treatments and scans. Sadly, four and a half years later, Alexander died, aged eight. The Devine family knew clearly at that point that Berkshire needed its own children’s hospice and the Alexander Devine hospice has become a lifeline for countless families across Berkshire, bringing together the community and the community’s compassion.
The impact that Alexander Devine Children’s Hospice Service has on the community is profound. In the last year, it has provided over 18,000 hours of care and support for families, which is not just a statistic for those families; it means countless moments of relief and joy, and the creation of precious memories for families, all of whom have challenging lives. However, that is set against the backdrop that 83% of the hospice’s funding comes from donations, fundraising and gifts in wills. The reliance on charitable contributions underscores the precarious nature of funding in this sector.
We understand that children’s hospices are not luxuries but necessities, filling a critical gap in our healthcare system. However, if they are to do that, we need to fund them properly. I will not repeat the calls on the Minister that every other speaker has made today, but it is clear that we need to see forward movement. I am really hopeful that our wishes this morning will be reflected in the Budget later.
I close by reflecting on the words of Fiona and John Devine:
“The word ‘hospice’ is not a word that many relate to with happy thoughts; I much prefer the Latin ‘a resting place on life’s journey’. I know from my experience that you cannot go into a children’s hospice and not be filled instantly with love, laughter, happiness and tears.”