Brain Tumour Survival Rates Debate
Full Debate: Read Full DebateJohn McDonnell
Main Page: John McDonnell (Labour - Hayes and Harlington)Department Debates - View all John McDonnell's debates with the Department of Health and Social Care
(1 week, 4 days ago)
Commons ChamberI thank my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) yet again for leading these debates. Just so that people know, her sister was a friend of mine. She was a Labour party organiser who rose in the ranks and over the years supported me in my various general election campaigns. She was very supportive but, at the same time, quite terrifying for anyone politically stepping out of line. She was an absolutely wonderful woman. The reason I intervene in these debates is because I am inspired by hon. Friend, who I call a dear friend.
In my constituency, I have a Mr and Mrs Atwal, who lost their daughter tragically and who every year undertake —with the Milan Asian ladies group and Councillor Kuldeep Lakhmana, who organise it—a sort of mini-mela to raise funds. I pay tribute to them and I want to thank them sincerely for not putting my Hindi singing or my bhangra dancing on social media.
There are two small points I want to make. The first follows on from the speech by the hon. Member for Wokingham (Clive Jones). The issue about access to scanning is absolutely critical. One of the issues that we have found is that there is not just a postcode lottery but a lack of awareness among some GPs about the national guidance. I know that GPs are incredibly busy, but we need to do something to raise awareness about that.
I chair a group of unpaid carers—we had a meeting this afternoon—and the second issue for me is the need for an acknowledgment in Government that if someone becomes a carer, perhaps over a long period of time, and usually with children survivors, they are almost certain to come across living in poverty. We need to look at how we support carers overall, including on the additional burden they face. My hon. Friend the Member for Mitcham and Morden explained in the previous debate the transport needs she had and the way she was having to pay for accommodation for her sister when she was being treated. That is the same for so many other people—they cannot bear the costs. The briefing from the Brain Tumour Charity said that the total financial burden for those seeking to care was something like £78 million a year. The ongoing costs are incredibly significant.
For many of the carers in the group I chair—they care for a whole range of conditions—of course the Government have assisted them greatly in raising the income they can arrange through employment themselves, but there are issues with flexible employment. My hon. Friend the Member for Edinburgh South West (Dr Arthur) raised that. There is not yet adequate acknowledgment of the need for flexible employment to enable people to earn a level of income that will help them survive. The issue, for those who literally cannot take on employment because of the hours they have to care, is that the level of carer’s allowance is abysmal.
There is a recent report by the Institute for Public Policy Research, and further reports are coming out from the University of Sheffield, which is doing a lot of work on this. Somehow, we have to come to terms with the fact that we will have to raise the level of carer’s allowance. It needs to be related at least to the minimum wage. Then, on that basis, we may be able to help some of these carers cope with the work they are undertaking for their loved ones, but also ensure that they are not living in poverty, because so many of them are at the moment.
We all supported the cancer strategy, and there is overwhelming support in the House to get on with the job, but looking at some of these fine details could transform people’s lives and how they are dealing with the situation at the moment. Part of it is about advocacy. What came out of my meeting today—this will sound a bit harsh—was that in the carers’ dealings with the various agencies, including the Department for Work and Pensions, they reported almost unanimously a lack of empathy in the way they are dealt with. If we can transform the cancer strategy to ensure that we embed that understanding and empathy, to understand what people are going through, and that they should not have to risk living in poverty and the whole family being impacted because of the financial consequences of the care they will have to undertake, we could transform the whole atmosphere around carers and the role they provide.
We have produced figures for the £180 billion that carers save the country overall through the unpaid care they do, but we never then acknowledge that in the actions we take. In this coming period, it is the 50th anniversary of the introduction of the first carer’s allowance—it was called invalid care allowance back then. This is the opportunity to address that issue because for many of those people who are caring for people with these conditions, particularly children, it desperately needs addressing.