Infected Blood Compensation Scheme

John Hayes Excerpts

Wednesday 23rd October 2024 Commons Chamber

[Ian Lavery (Blyth and Ashington) (Lab)]

I have spoken in the House on numerous occasions about this desperately sad scandal, and I have frequently mentioned the number of people who are dying while we seem to have inquiry after inquiry, and ask question after question. The stage that we have reached today is long overdue. The motion goes some way towards allaying my concerns, and the concerns of those who are still suffering as a result of one of the biggest scandals in NHS history.

This is a tragic miscarriage of justice that has destroyed the lives of many individuals and families up and down the country. I have the utmost faith in my right hon. Friend the Paymaster General, and I know that he is aware that many people believe that the proposals before us are incomplete and do not go far enough—hence his announcement that, hopefully, the second tranche of compensation proposals will come to the House before 31 March 2025. That is certainly good news. Nevertheless, there are people who are still waiting, and who will be leading a life of uncertainty between now and then, so we must ensure that we step up to the challenge.

This is the first step taken by a Government who have acted within months of taking office, and this legislation is the beginning of justice for those who have suffered for so long. Along with, probably, every other Member present, I have spoken to many campaigners and many infected or affected victims and families, and my good friend and constituent Sean Cavens, who was infected with hepatitis C as a baby, has been a great help to me in this regard. However, we still have many concerns, although I repeat that the progress made in the first 100 days of this Labour Government has been fantastic.

There is still confusion about the impact that the scheme will have on individual claimants. There is also concern that there has been a lack of engagement generally in order to understand and act on potential weaknesses in the scheme; there needs to be far more engagement. I am sure that my hon. Friend, or right hon. Friend, the Paymaster General will take steps to constructively involve the charities and individuals with an interest in this before 31 March next year. That is not just my view; it is the view of individuals and organisations that I have spent hours and hours with, listening to their concerns. The Haemophilia Society and other campaigning bodies have been absolutely fantastic, and very patient in many ways. As the hon. Member for Aberdeenshire North and Moray East (Seamus Logan) mentioned, these organisations really need to be financed from central Government, if that is at all possible. They have used their resources and campaigning finances every which way they can to try to get justice, and now not only are they totally exhausted, but they have exhausted their finances as well.

The core route for compensation has been laid out today, but there are concerns that there is little information on the supplementary routes. My hon. Friend, or right hon. Friend—I keep demoting him; I promise I do not mean to do that—will be acutely aware that many suffering from haemophilia believe that they will need to apply through the supplementary route; I hope that he can give more detail about how that will work in practice.

There are further concerns about the amount of compensation and the compensation period for those impacted by the infection and subsequent death of a loved one. Also, how were the infected victims who will first get compensation chosen? There are more than 5,000 registered, so if 20 are compensated before the end of the year, that does seem to be a drop in the ocean. Can we have a clear timeline, setting out how many claims the Infected Blood Compensation Authority expects to process per month in 2025? As was mentioned, one victim of this scandal dies every four days.

[Sir John Hayes (South Holland and The Deepings) (Con)]

The hon. Gentleman highlights one of two fundamental elements of the issue—and I thank the Government for what they are doing, which builds on the work of the previous Government. The first element is information for the families and the individuals affected. Clearly, the provision of information will affect exactly what the hon. Gentleman describes: whether people come forward, and whether the rate of payment is maintained at its current pace. The second issue is alacrity. Very often with these things, getting money out quickly matters most, because there is a rate of attrition. Without being macabre about this, some of the people affected will die before they get the money, so alacrity is critical in dealing with this kind of challenge.

[Ian Lavery]

I thank the right hon. Gentleman for his intervention. I have covered a number of the issues that he raises, and will cover more as my contribution continues.

There are other huge issues of major concern; that is being relayed to us by the groups and individuals we have been in constant contact with. For example, they believe that the £10,000 and £15,000 awards for unethical research and testing are far too low. There is no recognition that people with chronic hepatitis C underwent interferon treatment, or of the additional impact that had on their life. There is also concern that hepatitis C payment bandings do not reflect the suffering caused. Bereaved parents and children will receive very low compensation payments if they are not a beneficiary of the estate of their bereaved family member. There is no compensation for the loss, psychological impact and suffering caused by exposure to variant Creutzfeldt Jakob Disease. The list is endless. I think my right hon. Friend the Paymaster General has received a letter from the Haemophilia Society outlining the vast majority of the issues that it wants to raise.

I want to mention the scandal of children being selected for dangerous medical research. Children were given the factor concentrates, despite knowledge of the dangers posed. This is very eerie. It is not British-like. It has been described to me as organised child abuse. The sums of money suggested—£15,000 or £10,000—for compensating victims seem paltry given the horrors that abuse caused. We should think about what happened only a few years ago at Treloar, a school set up basically for haemophiliacs. We have had institutions up and down this country experimenting on children. That does not sound like the UK, does it? They have been experimenting on children, unknown to those children and their families. I simply cannot get my head around this sinister issue. There needs to be a lot more focus on what happened back in the day when this country, and the great NHS, was experimenting on young kids. It is not just Treloar; it has received a lot of attention, but there were other such institutions up and down the country. We need to get to the bottom of this, and the country and the Government need to send a clear message that this experimentation is wholly unacceptable. I know that the Government will look into the issue and act on it with the utmost haste. It is absolutely critical that those who have suffered this injustice—this scandal—for so long get the redress that they sorely deserve.

As we discuss this scandal, we should not forget those who have suffered, such as my aforementioned constituent Sean Cavens, who continues to be an inspirational campaigner on the issue, standing up for those who are unable to do so and all those who, tragically, have lost their life. Every Member speaking in the debate will no doubt mention individuals in their constituency who have been campaigning; they have done a fantastic job, and good on them.

The Labour Government have taken giant steps to address the scandal. I would like to thank personally, and on behalf of the people I have spoken to, my right hon. Friend the Paymaster General and his team, and I urge them to consider the many outstanding issues before this matter comes back to the House on 31 March 2025.