Secondary Breast Cancer Debate
Full Debate: Read Full DebateJim Shannon
Main Page: Jim Shannon (Democratic Unionist Party - Strangford)Department Debates - View all Jim Shannon's debates with the Department of Health and Social Care
(1 month, 2 weeks ago)
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It is a pleasure to serve under your chairship, Mr Betts. I thank the hon. Members for Wokingham (Clive Jones) and for City of Durham (Mary Kelly Foy) for calling attention to this disease, and I thank the hon. Member for West Lancashire (Ashley Dalton) for her spirit and courage; it always touches me and makes me quite proud of her. I wanted to put that on the record.
The hon. Member for Fermanagh and South Tyrone (Pat Cullen), some local ladies, Tristan Loraine and I had a meeting with Health Minister Mike Nesbitt in Northern Ireland some four or five weeks ago to discuss the issue of lobular cancer. It was an important meeting because those ladies around the table were ladies like the hon. Lady for West Lancashire; they were ladies who had cancer, were living with it and were trying to deal with it. Their personal stories really touched me because almost every one of those ladies had children. One lady had four young children, and I was moved by her contribution and very touched by the life that she was leading with four young children.
Each month in the UK, around 1,000 people die from secondary breast cancer, which equates to one life every 45 minutes. That stat paints a harrowing picture of the devastating impact that secondary breast cancer has on many individuals and their families. Although the cancer is not curable, as it has metastasised, it is treatable and can often be managed. On average, patients can survive two or three years or more after diagnosis. Symptoms can be relieved, and patients’ quality of life can be maintained, with many leading a “normal life”.
In 2024, secondary breast cancer was deemed “moderately severe”, meaning that funding would not be granted in Wales, England and Northern Ireland. My request is that we have access to the licensed Enhertu drug, which is used to slow the cancer’s progression and maintain quality of life for patients. It is incredibly difficult to justify a system in which patients in Scotland and more than 20 other European countries can access this treatment, while eligible patients in England, Wales and Northern Ireland cannot. It just does not make sense. Mental health support should also be invested in across the United Kingdom to ensure that patients and their families receive emotional support to help them cope.
Despite secondary breast cancer being the leading cause of death for women under 60 in the United Kingdom of Great Britain and Northern Ireland, over 40% of British adults have not heard of the disease. There is a lack of awareness. It was quite amazing to know that some of the ladies I met that day with the Minister in Northern Ireland thought that they were cured but found out that they were not, because the full diagnosis had not been done. The hon. Member for Horsham (John Milne) is very knowledgeable about the Lobular Moon Shot Project; he spoke about how more needs to be done, and I want to speak about that as well. It is estimated that some 36% of people cannot name any signs or symptoms of the cancer.
Those figures show that there is much work to be done to ensure that individuals are informed, and that they rapidly access treatment as a result of early diagnosis. We can, however, inform the public only of what we know. Advancements must be made to invest in further research to deepen healthcare professionals’ understanding of the disease and change its prognosis from being a death sentence. Charities such as Breast Cancer Now have already awarded some £300,000 to researchers at Queen’s University Belfast to support an investigation into the inequalities among people living with this disease.
I am very pleased to see the Minister in her place. She encourages us with her interest and compassion for this subject, and I know that she will give us some idea of what has been done at Queen’s University Belfast and the trials that are taking place. We are not that far from finding the cure, and from raising awareness to the level it should be at to save lives and give people hope for the future, long beyond the times that have been allocated. Has the Minister’s Department had an opportunity to talk to Queen’s University Belfast to see what it is doing? Has she had a chance to talk to Mike Nesbitt, the Minister of Health in the Northern Ireland Assembly, to support the investigation into the inequalities among people living with this disease?
The study will consider factors including education, income, disability and mental health—we always say this, because it is the truth: it is not just the ladies who suffer; the families, the children and their in-laws suffer too, because they are all very aware of what is happening—to determine how inequalities influence patients’ access to care, their treatment outcomes and their overall quality of life. Would the Government consider supporting this research at Queen’s University Belfast so that everyone living with the disease across the United Kingdom is given a fair chance to access effective care?
Speaking as my party’s health spokesperson and as a representative from Northern Ireland, I draw attention to the long wait times for cancer referrals in comparison with the rest of the United Kingdom. From July to September 2025, urgent breast cancer referrals in particular saw long delays, with just 6.8% seen within the 14-day target. Over the same time, the Health and Social Care Trust received more than 6,000 referrals for suspected breast cancer, 86% of which were marked as urgent—86%, and no response. With approximately 1,000 living with the disease in Northern Ireland, I must draw attention to the increased risk of women in Northern Ireland experiencing delays in diagnosis and access to treatment.
Cancer treatment should not be a postcode lottery. Advances in treatment mean that more people can now live longer and maintain a good quality of life with secondary breast cancer. While the disease remains incurable, everyone across the United Kingdom of Great Britain and Northern Ireland should have equal access to the treatment and support that they need. I join Members—those who have spoken and those who will speak shortly—in looking to the Minister and simply asking for more: more screening, more funding and more saving of lives.