UK Biobank Data

Jim Shannon Excerpts

Thursday 23rd April 2026 Commons Chamber

[Ian Murray]

Significant undertakings were given by the chair and board of UK Biobank this week. They have answered all the questions and worked very closely with the Government, the British embassy in Beijing and the Chinese Government to ensure that this instance is resolved as quickly as possible. They have immediately identified the loopholes that enabled the download of the data from the institution, and they are carrying out mitigation work to ensure that that cannot happen again and to tighten up the system. That should happen within weeks, but in the meantime the UK Government insisted that all access to and downloads from it be paused, and the entire system was paused to allow that work to happen. I pay tribute to UK Biobank for the swiftness with which it has done that. To echo the words of the shadow Minister, it has dealt with the issue transparently, and we welcome that—that is what is required in these kinds of circumstances.

[Jim Shannon (Strangford) (DUP)]

I thank the Minister very much for his statement. As my party’s health spokesperson, I know that research on health is so important initially. UK Biobank is a critical part of that in finding the methods and drugs for cures. The disclosure of data is always a worrying issue, so will the Minister confirm that the breakdown and the data breach do not reach as far as Northern Ireland? For example, Queen’s University Belfast and Ulster University are deeply involved in all sections of health research. Has their research been compromised in any way? We always ask for close co-operation with our universities as an integral part of the United Kingdom, and it is essential that opportunity and protection be afforded throughout the whole United Kingdom of Great Britain and Northern Ireland.

[Ian Murray]

I pay tribute to the Belfast universities and the way in which they have advanced research. As has already been mentioned, tens of thousands of individual accredited researchers use UK Biobank regularly, as do thousands of institutions across the globe. We need to ensure that the system is safe, so that volunteers participating in the system can be assured that their data is safe and secured, and that is why it has been paused.

The hon. Gentleman challenges me on whether Belfast universities have been affected by this issue. They will be affected by it in the short term, because there is currently no access to the system, but we hope that that will be resolved. I understand from UK Biobank and from officials that they have been in talks with the pharmaceutical industry and researchers in the field to see whether that would cause a problem, and as long as this situation is temporary, it should not. They will technically be affected in the short term until access is fully recovered.