School Pupils with Allergies

Jim Shannon Excerpts

Thursday 30th November 2023 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

I beg to move,

That this House has considered pupils with allergies in schools.

I sincerely thank hon. Members for making time for this afternoon’s debate. I am ever mindful that the reason why people are here is that they want to be here. The House has risen—even the Adjournment debate is over—and those of us here today are here with a purpose, which is to put forward our request.

We are very pleased to see family members of allergy sufferers in the Public Gallery, and we are here to fight for them. I thank them for the books they have made available to us. I read Helen’s story about her wee boy in today’s paper. I know that she sent the story of her child to all MPs and explained why this debate is so important.

May I say what a pleasure it is to see the Minister in his place? I do not believe I have had the opportunity to address him in his current capacity, even though I am a regular in Westminster Hall. I am really pleased, as always, to see my good friends the shadow Ministers from Labour and the SNP in their places, and other colleagues who have made an effort to be here.

What are we doing today? We are raising the important issue of allergies in our local schools. I am the Member for Strangford in Northern Ireland, where education and health are devolved, but I will make a case for Helen, her family and her wee boy Benedict. The debate is important not just for those of us present, but for people across the whole of the United Kingdom of Great Britain and Northern Ireland.

Food allergy affects around 7% to 8% of children worldwide, or about two children in an average-sized classroom of 25, which gives a perspective on what the impact can be. It highlights the sheer volume of young people and parents on whom allergies impact. It is so important that we address this issue in the right way. I understand that the Minister has a copy of my contribution and the four requests at the end of it—the four requests that Helen and others in the Public Gallery have also made.

I am the DUP’s health spokesperson, and I am grateful to be able to make the case on behalf of all representatives and those who could not attend but wish to be here. Our schools are safe places for our children—somewhere to grow and learn—which is the way we want it and the way it should be. If we want that to be the case in our schools, we need to make sure that it is safe for that to happen. Children spend at least 20% of their waking hours in school, and further data shows that 18% of food allergy reactions, and approximately 25% of first-time anaphylactic reactions, occur at school. Collectively, we are asking for action on behalf of parents who have lost loved ones and those who are concerned for the future, because the figures highlight the need for better strategies to tackle allergies in schools. Anaphylaxis due to food allergy occurs more in schools than in any other setting. The very nature of schools is that they are places where kids socialise, chat and eat food. Schools are our focus for this debate, and it is important that we get things right.

Around 30% of allergic reactions in schools occur in children previously not known to have a food allergy. With that being the case, we really need this debate to highlight the issue. There is no doubt that we all have some experience of allergies and intolerances—there is probably not a family that does not—and maybe some Members in this Chamber have an intolerance. One of my sons had some allergies when he was smaller. The lady I was speaking to before the start of this debate was talking about airborne allergies and how this triggers asthma. My second son had asthma; he was born with it. We were told that although he had psoriasis when he was first born, when the psoriasis left him the asthma would come—there was a combination. I am not medically qualified to say that; it is what the nurses and doctors told me. We were always very cautious about the things he ate, and ensured that anti-allergen tablets were taken.

One of my staff members has a son who has a severe allergy to egg whites. That is another example. He has spent numerous nights in hospital over the last 20 years of his life, and his mother has had to be especially vigilant when he has been offered certain vaccines because the vaccines themselves can complicate the issue. We are able, over the years, to build an understanding of how to cope with these allergies, but for younger children, who are being exposed to new foods and new surroundings, it is not always that easy, especially in schools.

Every debate I do, I learn something; I have clearly learned today that there are probably airborne allergens in this room at this moment and, if we have an allergy, we could react to one of those. However, what is responsible for my being here today and for making this debate happen is the story of Benedict Blythe and engaging with his mother, Helen. I understand that she sent an email to every MP. I got it, and the issue caught my attention, as it did for other hon. Members here today and those who unfortunately cannot be here but wish that they could be. Helen is utterly fantastic and a devoted voice for this cause. It was her energy, commitment and dedication that ensured that we all found out about this issue.

Benedict, Helen’s son, was allergic to milk, eggs, nuts, sesame, soya, chickpeas and kiwi. He also had asthma. In 2021, he collapsed at school and died in hospital. I am ever mindful that Helen has fought this campaign through the Benedict Blythe Foundation. She wants every school to have an allergies policy and tailored healthcare plans for all pupils with allergies, so if I could ask for just one thing at the end of this debate, on behalf of Helen and others, that would be the request. The Minister already knows what my requests are, and I am very confident that he will be interested and dedicated and committed to making those changes.

The relevant petition garnered some 13,000 signatures, so it is not a small petition by any means. It galvanised the opinion of many across this great United Kingdom, and that is also part of the story. If people have not heard the story, or read the story in the paper today, I encourage them to do so, please.

I know that Helen has raised the case of her son, Benedict, with many Members across this House, and not just that—there are thousands of people across the United Kingdom, including me and my constituents in Strangford in Northern Ireland, who support her wholeheartedly in doing this. I will just give some background to Benedict’s story, if I may.

This debate is taking place on the eve of the second anniversary of Benedict Blythe’s death. Benedict was only five years old at the time. He was a lovely young boy with so much to live for. The Benedict Blythe Learning Foundation was established in 2021 in memory of five-year-old Benedict following his collapse at school and subsequent death from anaphylaxis. He was an enthusiastic learner—as children are at that age. Children are almost like a sponge because they want to learn it all and they want to learn it right now. And that was what Benedict did. He loved to “play numbers” and learn about the natural world. Inspired by his passion for knowledge, exploration and play, the Benedict Blythe Foundation seeks to support other children to have the same positive relationship with learning and education, regardless of their ability, and to remove barriers to education. If young Benedict had survived, he could well have gone on to become an MP in this House, such was his interest in making things change and making things happen.

Benedict was allergic to dairy, eggs, peanuts, sesame and chickpeas. Helen and her husband, Pete, are still waiting for the inquest to shed light on how and why their son died, but they say the horrifying speed with which he became ill—I understand that there is an inquest to be heard—demonstrates the need for pupils with allergies to be better protected at school. That is one of the requests of this debate.

Helen and her husband, all of us here and all those in the Gallery today are calling for new legislation to make that happen, including mandatory allergy and anaphylaxis training, statutory allergy policies, individual healthcare plans for all children with allergies and spare adrenalin pens in every school. We have many requests, but that is our core request. That would allow children with allergies to have a fantastic experience of school and enjoy all the fun of learning and social interaction with their friends, despite their allergies. It is about having a normal life and yet, at the same time, having an agreement to deal with the problems of allergies.

There is a need for schools to be better prepared to manage the increasing number of children with allergies entering a classroom. In September 2017, the UK Department for Education published guidance on the use of adrenalin auto-injectors in schools. It states that from 1 October 2017 schools may purchase AAI devices without a prescription for emergency use in children who are at risk of anaphylaxis. Schools may administer their spare AAIs to children in emergencies but only to a pupil at risk of anaphylaxis, where both medical authorisation and written parental consent for use of the spare AAI has been approved.

To parallel the UK’s guidance, Northern Ireland’s version issued by the local Department of Education back home, updated in October 2018, essentially reflects the DFE document. In Northern Ireland, while schools are expected to develop policies to support pupils with medical needs, including allergies, and review them regularly, there is no statutory requirement for them to do so. It is a guideline that schools will follow. Today, we are trying to underline the need for legislation that can make that compulsory. While everyone says, “Yes, we will do that,” we need to make sure there is enforcement to do that. That is not about being critical of anybody and it is not about pointing the finger; we are just saying, “Let’s get it right.”

I can speak for the schools in my constituency that go above and beyond to cater for pupils with medical needs. The extent of the allergies that children have can vary, but ensuring that teachers are aware of the correct protocol, no matter how severe the allergy, is the core of the solution. Support for children with allergies can vary significantly across the country. Examples of best practice exist and include some in my constituency of Strangford and across Northern Ireland where schools find ways to be inclusive and keep children safe.

Whenever a mum or dad leaves a child in school, they are fairly confident that their child is safe. We need to make sure that the child is safe. That often depends on teachers going above and beyond that guidance. For every instance of good practice, there are many cases of severe allergic reactions and, unfortunately, sometimes death. The lack of universal standardisation of school allergy policies is a concern given that around a quarter of allergic reactions to food in children occur at school, some of which result in fatalities from anaphylaxis.

I am conscious of time so I will briefly make some comparisons. There are international jurisdictions that have schemes in place that could provide us as a collective with inspiration. I mention some, such as Canada and Sabrina’s law, the first of its kind ever, which requires Canadian public schools to create and execute anaphylaxis plans to reduce allergen exposure and communicate with parents, students and staff about allergies. It is about getting the communication thing right. That has to be done so that everyone understands, and people know what to look out for and what to stop the children from taking. It also requires allergy and AAI training for educators and for individual plans to be created for high-risk students. US states such as Colorado, Michigan and Ohio have laws to ensure students have access to AAIs and that schools keep adequate stocks. Again, that is precautionary but it is important that it is done. Schools must also have individual health plans in place to keep students safe.

The Benedict Blythe Foundation has already achieved some important milestones. Just last week, on 23 November 2023, the foundation launched a schools allergy code, co-created by parents, educators, clinicians, the Benedict Blythe Foundation, the Independent Schools’ Bursars Association and The Allergy Team. The foundation is to the fore in leading on that, and we congratulate it. The code is a guide to best practice in achieving a whole-school approach to allergy safety and inclusion. If you wanted a guide or legislative framework, hang it on this, because it will make the difference. It has been made available as a free resource to all schools to ensure good allergy management in their settings, and it is based around four key principles.

First, take a whole-school approach. Every member of the school community should understand allergy and their responsibility for reducing risk, from pupils and parents to staff members. Allergy management is not just the responsibility of the catering and medical teams; it is everybody’s responsibility. I know the Minister understands that and will respond to that point when he speaks. Secondly, information about the school’s approach to allergy must be communicated and given to people clearly and frequently. Thirdly, there must be clear governance and risk management—create an awareness of allergy risk across all activities and processes. Fourthly, be ready to respond. Have systems, processes and medication in place for emergencies.

Earlier this year, the foundation launched a petition, which as I said has garnered some 13,000 signatures. It called for the current voluntary guidance to be replaced by a funded, mandatory requirement for all schools. The petition has four asks—the Minister has access to them, and I am hoping that others have as well. They are that we need to have an allergy policy in place; to co-create an individual healthcare plan for all pupils with allergy and anaphylaxis; to hold spare adrenaline auto-injector pens in schools; and to train school staff and teachers in allergy awareness and allergy first aid.

The wonderful thing about the request I am making today is that it will not cost the earth. The Minister knows the figure, because I have mentioned it already. To be fair, he already knew it; he did not need me to tell him. As a gentle reminder, the steps would cost less than £5 million per year to implement in England. That is a modest sum to save a life. It would ensure that current best practice is implemented nationally, making a significant difference to keeping children safe while providing peace of mind for parents, who send their children off to school and have every intention and hope of seeing them at the end of the day. What we have here is value for money in these trying financial times.

As Members may be aware, I have worked very closely with the Oliver King Foundation to campaign for public access to defibrillators, especially in schools. I always put it on the record if somebody does something right, so I am grateful that the Government took forward my recommendations. I am no better than anybody else—far from it—but the Bill that I presented on this issue was taken up by the hon. Member for Castle Point (Rebecca Harris). Along with Ministers with responsibility for health and education at that time, she encouraged me to take this on board. The Minister here today and the Minister who preceded him made sure that defibrillators were available in schools and took steps to fund that.

Once again I make a plea to the Government, and it is about a cause similar to the one they endorsed before, which undoubtedly saved lives. We can stop severe illness and death from allergies among young people in schools if we have the correct provisions in place. I do not care who does it, as long as somebody does it. I am not worried about whether it is a ten-minute rule Bill that I introduce or somebody else introduces. Just do the job—that is the most important thing—and take the credit.

As I always state, there is an understanding that education is devolved and that it is not the sole responsibility of the Education Secretary to introduce law in Northern Ireland, but I believe we can—indeed, we must—initiate a joint approach to ensuring that the whole of this great United Kingdom of Great Britain and Northern Ireland has a strategy in place to protect young people with allergies.

Dr Adam Fox, professor of paediatric allergy at Guy’s and St Thomas’s Hospital—not too far from here—has stated:

“There is a clear need for a change in culture around how food allergies are managed in schools. The UK”—

unfortunately—

“lags behind other countries and children are suffering and even dying as a result. By really educating the whole school community about food allergy we can turn things around.”

That is my request to the Minister in this debate. It is a request that all of us, including those in the Gallery, will make collectively, and we look forward to a positive response from the Minister.

[Graham Stringer (in the Chair)]

I remind Members who wish to catch my eye that they should bob.

--- Later in debate ---

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship, Mr Stringer. I, too, thank the hon. Member for Strangford (Jim Shannon), who has given us an insight into allergies in schools and how they should be treated. His remarks were personal and well thought-out. Other Members who contributed to the debate teased out the issues a bit further. My contribution will be from a Scottish perspective—I do not think anyone here would expect me to do anything else.

I thank those from the Benedict Blythe Foundation who have come here this afternoon. These debates are important because, as the hon. Member for Strangford said, we all learn new things. It must have taken great courage to come here. Speaking as a granny, I know that it is not easy for you, so I appreciate you coming.

Education, as Members know, is devolved in Scotland, and it is therefore up to the Scottish Government how they do things. Across the UK, as we might already have heard, 41 million people and between 5% and 8% of children live with a food allergy. The UK has some of the highest prevalences of allergic conditions in the world, with 20% of the population affected by one or more allergic disorder. Allergies are very common in children, and although some go away, many do not—we have heard about the awful consequences of that today.

New legislation for food businesses in Scotland and the rest of the UK came into force on 1 October 2021. Known as Natasha’s law, it requires businesses to label all food that is pre-packed for direct sale with a full list of ingredients, with the 14 major allergens emphasised. Such information can help parents and students to know what they are buying and whether it is safe for them to eat and to take into school. Food Standards Scotland chief executive Geoff Ogle said:

“This is a huge step in helping improve the quality of life for around two million people living with food allergies in the UK—with 200,000 of those living…in Scotland. If these changes drive down the number of hospital admissions caused by food allergies, which has increased threefold over the past 20 years, and prevent further tragic deaths such as Natasha’s, that can only be a positive thing.”

I mention that because we are looking for more than just guidance from all Governments in relation to allergies in school.

The Scottish Government have published guidance for NHS boards, education authorities and schools on supporting children and young people with healthcare needs, including allergies, in school. Education authorities are required to work collaboratively with NHS boards and to ensure that there is adequate and effective provision in place in the schools in their areas to support the healthcare needs of young people.

As noted in the guidance, the rights, wellbeing, needs and circumstances of the individual child or young person should at all times be at the centre of the decision-making process. Under article 24 of the UN convention on the rights of the child, all children have a right to the highest attainable standard of health and to healthcare services that help them attain that.

Any child or young person at school in Scotland may require healthcare support or the administration of medication. Healthcare support or medication for the management of long or short-term conditions is therefore really important and must be available. Schools must arrange specialist anaphylaxis training for staff where a pupil in the school has been diagnosed as being at risk of anaphylaxis. The specialist training should include practical instruction in how to use the different adrenalin auto-injector devices available.

As part of the medical conditions policy, the school should have agreed arrangements in place for all members of staff to summon the assistance of a designated member of staff to help administer an AAI, as well as for collecting the spare AAI in the emergency kit. Wherever possible, children and young people should be empowered and supported to manage their own healthcare needs and work in collaboration with the school health team, school staff, and their parents and carers to reach an understanding about how their health affects them and how their healthcare needs will be met. That option is not always possible but, when practicable, it should be exercised.

Children with allergies are often excluded from social or fundraising activities in school. That has an impact on them, and it should not happen in any school in the United Kingdom of Great Britain and Northern Ireland.

[Jim Shannon]

indicated assent.

[Marion Fellows]

I think I got it right that time—as the hon. Member for Strangford indicated. We play that game occasionally here.

Social or fundraising activities, including charity bakes, can be really dangerous for children with severe food allergies. When teachers are buying food—as they often do—for things such as Christmas parties, they should be aware of these things, so that they can eliminate the risk of children coming into contact with food they are allergic to.

If this debate encourages the Minister to bring in not just guidelines but regulations, everyone in this Chamber will be extremely happy, and I know that the Benedict Blythe Foundation will be too. I therefore encourage the Minister to look at the four asks and to see what he can do to help everyone involved.

--- Later in debate ---

[David Johnston]

Staff should have training in it—that is absolutely right. That is part of what we are requiring. We continually review the policies in this area, and if we feel that there are deficiencies, or indeed inconsistencies, which I suspect is the biggest problem, we will do whatever we can to ensure that they no longer occur.

[Jim Shannon]

I wonder if I am following you correctly—you will confirm whether that is true or not. We have asked for this provision to be not just voluntary, but mandatory. In other words, we are seeking for it to be put down in legislation—given the cost factor is so small—to make it happen and change lives. I suppose the core question that we are asking, Minister, with great respect, is whether you can confirm that that is something you are prepared to look at. It is really important.

[David Johnston]

We have a difference of opinion about the requirement on schools. The Department’s view is that what is set out in the statutory guidance should require schools to do most of what is being described, and the question then is whether that is happening in every place or not. If what we expect to be happening under the Children and Families Act and so on is not happening, then we definitely want to ensure that it does happen.

[Jim Shannon]

I thank the Minister for that response; I think that gives us some clarity. From what we have all said in our contributions so far, there are cases where that is not happening—wee Benedict is an example of a case where, with respect, it did not seem to happen. And if it did not happen, then we wish to see it happen.

[David Johnston]

Yes. The question with these things is always whether the laws are already there. Do you need new laws, or are the laws already there but not being enforced? I have heard from Members today that we are clearly not seeing in every case the practice that we want to see. I will discuss with officials what more we can do on that, including in promoting the code.

--- Later in debate ---

[Jim Shannon]

First, I am so very pleased that we have had what I would refer to as a united front across the political parties. I think we all recognise the importance of this debate. The hon. Member for Rutland and Melton (Alicia Kearns) set the scene well from a personal point of view. We all owe the family and all the supporters here a great debt. Today—probably in our own hesitant but very sincere ways—we put the case forward for a family who have grieved, and for those we all wish to make a change for.

The hon. Member for Rutland and Melton said that the voluntary must become mandatory—how true that is—and be made part of the school conversation. Allergy assessment by GPs should be alongside and in conjunction with the school. There should be adrenalin pens training at every school as well. I apologise to the hon. Member for Dagenham and Rainham (Jon Cruddas), because I was not aware of the extent of his knowledge until today; he has brought his vast experience to this debate, and we thank him so much for that. There was that positive response from the school, but the allergy numbers are up and the stats are quite shocking, as he illustrated so well. That allergies happen so often at schools underlines the depth of this debate and why it is so important.

The hon. Member for Washington and Sunderland West (Mrs Hodgson) always brings personal input to a debate. By her very nature, she sums up the compassion we all have—that is what I have always thought about her and I think others see that too. She spoke of the incredibly urgent need for equal access to EpiPens, of other allergies and of safety in schools. These can be life-changing matters for children, as can nutritional food and people’s diets. All such things need to be more than normal; we need to make them mandatory. We thank her for that contribution.

We are regularly in debates with the hon. Member for Motherwell and Wishaw (Marion Fellows), and I was pleased to have her Scottish input. Is something safe to eat? Is it safe to bring to school? Allergies are up threefold, and children should be at the centre for allergies and food safety, clearly.

The shadow Minister, the hon. Member for Newcastle upon Tyne North (Catherine McKinnell), brought her knowledge and interest to this subject matter, and we thank her for that. School staff need to be skilled in keeping children safe and with their requests. She also reminded us that the reason why we are here today is that we are inspired by the painful loss of others. How true that is.

I thank the Minister very much for his response. Being the positive person I am, I suggest that I am correct in assuming that the Minister will take what we have said in this debate to the relevant Minister and that, where his remit falls within our debate matter, he will look much more towards the mandatory than the voluntary. I think that is our request; that is what we are seeking and asking for. If that happens, I believe that today this debate will have been won. The hon. Member for Rutland and Melton suggested that Ofsted might have a role to play, and I think that is true. The Minister needs to act on that. He mentioned what happens voluntarily in schools, but we want to take that to a different stage.

Today, this House has done the family and all those in the Public Gallery proud. We have put forward viewpoints on their behalf. I think that the Minister has grasped that we are seeking the change from voluntary to mandatory—from voluntarily to legislatively making the changes. We owe a great debt to the family for all that they have done in educating us on what is necessary, and to all those in the Public Gallery. Let us make a change for wee Benedict.

Question put and agreed to.

Resolved,

That this House has considered pupils with allergies in schools.