Allergy Research and Treatments: Government Support

Jim Shannon Excerpts

Wednesday 9th March 2022 Westminster Hall

[Christian Matheson]

That is an awful situation. I pay tribute to my hon. Friend’s family. That three times in three years is a shocking statistic, which we will come back to because there is a burgeoning rise in allergic disease in the UK. It is an issue of great importance to people across the country, as the recent parliamentary petition demonstrated. Indeed, I thank the Petitions Committee for incorporating that petition into the debate.

It is estimated that here in the UK one in three people are living with allergies and 3 million with food allergies. It is not only about food allergies. I was contacted today by a lady called Sue. She, her daughter and her grandson have a latex allergy. Her daughter has had to write, on behalf of her son—Sue’s grandson—to all the manufacturers of school sportswear equipment to find out whether their equipment contains latex, because of that allergy. Her daughter has lost 3½ stone in two years because of her allergies and has finally, after about two and a half to three years, got a treatment. However, it should not take that long.

[Jim Shannon (Strangford) (DUP)]

I congratulate the hon. Gentleman on securing the debate. My second son was born with allergies, and has just the one now—I am thankful that he managed to grow out of some of them. Does the hon. Member agree that as one in four people suffer from some type of basic allergy, and have to live their lives with medication to deal with the symptoms, we must see extra investment into research on the varied multitude of allergies that people are suffering from throughout the UK?

[Christian Matheson]

I thank the hon. Gentleman for that intervention. I absolutely agree. Research shows that in the 20 years to 2012, there was a 615% increase in hospital admissions in the UK for anaphylaxis, a potentially life-threatening allergic reaction mainly caused by food allergies.

Members may be familiar with a tragic list of recent fatalities, mostly of young people, from anaphylaxis: Sadie Bristow, aged nine; Shanté Turay-Thomas, 18; Karanbir Cheema, 13; Ava-Grace Stevens, nine; James Atkinson, 23; Owen Carey, 18; Ellen Raffell, 16; and, of course, Natasha Ednan-Laperouse, 15. Those are just some of the entirely avoidable deaths we have witnessed in recent years.

Thankfully, because of the powerful campaign run by Nadim and Tanya Ednan-Laperouse, Natasha’s parents, we now have a new allergen and ingredient-labelling law in the UK, known as Natasha’s law. It will save lives and prevent others from suffering the terrible grief that those families will always bear. I pay tribute to the Government in this case for their swift response in ending the loophole in the law that Natasha’s death—caused by sesame seeds hidden in a baguette—exposed. I am sure that the Government’s actions on that are welcomed throughout the House.

Much more needs to be done. I will highlight two areas where I challenge Ministers, in this time of great need, to rise up and offer real hope to hundreds of thousands of families who live daily with the fear of a loved one suffering a severe—or worse, fatal—anaphylactic reaction: research and treatment. Turning to the latter, for too long allergy services have been the Cinderella services in our healthcare system. There is a national postcode lottery, and too many patients take too long to get specialist appointments, as we heard from Sue who emailed me. There are too few specialist allergy clinics, too few specialist allergy doctors and consultants and too little training for GPs. The pathway between GP and hospital allergy services is deeply disjointed. No specific treatment for allergies is readily available in the UK, and an individualised avoidance strategy with an adrenaline auto-injector is the only practical advice offered. That negatively affects quality of life.

The care that people with allergies receive is at best patchy, and at worst has led to avoidable deaths. Without greater priority given to allergies, those problems will continue and sadly more lives might be lost unnecessarily. Those are just a few of the reasons why colleagues on the all-party parliamentary group for allergy recently published their excellent report calling for the appointment of a national lead on allergy. I thank my hon. Friend the Member for Dagenham and Rainham (Jon Cruddas) for his dedicated work and leadership on the matter—he may seek to intervene later in the debate.

That is also the view of the Ednan-Laperouses’ charity, the Natasha Allergy Research Foundation, which has ran an excellent campaign calling for an allergy tsar. That was also the topic of the petition considered in this debate —someone to work across Government to tackle those issues. It is fair to say that the allergy community—patients, families, charities and the clinicians—are united as one in believing that there is an urgent need for a national lead to be appointed. I know that the Minister of State recently met members of the APPG and the national strategy group. I ask the Minister what plans the Government have on the appointment of a national lead on allergies. I hope that the Minister can provide the leadership and drive that the allergy community has called for.

Turning now to the matter of research, I urge the Minister to respond to the request from the Natasha Allergy Research Foundation for a meeting, sent in early January. There is a strong belief in the scientific community that, given the right amount of research funding, in the next couple of decades treatments can be found that could potentially eradicate allergies. I am aware that the Natasha Allergy Research Foundation intends to be a lead player in the research field and in its mission to make allergy history. I take the opportunity to thank everyone at the foundation for all the crucial work they have already done in the field. I understand that they will shortly announce their first research project, a £2.2 million study across five university hospital sites in England. That investment is roughly the same as the Government have donated as a whole to allergy research funding over the last five years.

If I may quote the Minister, on 29 October, she stated:

“Over the past five years, the Department of Health and Social Care has awarded the National Institute for Health Research over £2 million for research into food allergies.”—[Official Report, 29 October 2021; Vol. 702, c. 597.]

I am fearful that this is not sufficient. Without enough funding, there is not enough research. Without research, there is no treatment. Without treatment there is no change for the millions of people and families affected. I ask the Minister why, given the acknowledged growing epidemic of allergies in this country, research funding is not being given a significantly higher priority? Why is research into food allergic disease so underfunded compared with other diseases? Will the Minister consider other areas of allergy such as, for example, the case of latex that I mentioned earlier?

I am aware that the Food Standards Agency is undertaking a research programme into food allergy and intolerance, but it is not researching cause and prevention or developing treatments. I am also aware that the Department for Education is currently running a food standards pilot. However, flying in the face of the evidence from staff in our schools of a food allergy epidemic, it has not even bothered to include food allergy in its remit. That is another example of how individuals with food allergies are being forgotten and excluded. That is another reason why, as the petition states, we need an allergy tsar to work across all the Departments and Government agencies.

The Natasha Allergy Research Foundation is heavily leveraging the major food companies to help fund and play their part. They cannot do that work alone. I, and many others, believe that the Government now need to show direction and deliver investment into food allergy research, including cause, prevention and treatments. We need to be moving, and at pace. We should not be waiting for other young lives to be tragically lost before we step up to the mark.