Vaccine Damage Payments Act

Jim Shannon Excerpts

Tuesday 24th March 2015 Westminster Hall

[Jim Shannon (Strangford) (DUP)]

I thank the hon. Member for Dumfries and Galloway (Mr Brown) for setting the scene. He spoke passionately and told us why we need to do better. He said, “Is there a better way to do this?” and I wrote down, “I think there is.” This debate will perhaps give us a chance to have an idea of how we can do better. He and the hon. Member for Worsley and Eccles South (Barbara Keeley) illustrated where the system falls down and how we can improve it. I would like to do something along those lines as well.

It is of utmost importance for us to reflect upon this issue once more, as the quality of innocent individuals’ lives are at stake. We vaccinate to prevent illness, to protect the most vulnerable in our societies and to protect those we care about, whether they are our family, children or constituents. It is very unfortunate when good intentions do not result in their intended outcome, which is to protect and not harm. Unfortunately, harm is what can occur. The contributions so far have shown that harm has taken place. We need to learn how best to deal with that and how Government could respond in a more generous manner.

Although such tragedies are thankfully rare, it is a reality for the few who are affected and we must take responsibility for dealing with the outcomes of vaccination damage. We must take account of individuals who have become severely disabled when they may otherwise have led a healthy life without the burdens of their condition, because of a vaccination that was believed to be medically safe. We must think of their well-being. We must also take account of those who, through their work, found it necessary to have vaccinations, resulting in effects that they had not foreseen.

It is a difficult thought to come to terms with. Affected individuals could not have imagined that these vaccinations would lead to their living with debilitating conditions. We must do our best to aid those families and individuals to deal with the burden as best they can in the circumstances and with the everyday realities that they have to face. We must investigate why, out of 1,483 claims made between 1 January 2000 and 31 December 2010 to the vaccine damage payments unit, only 26 have resulted in an award. Why is that? Something must be wrong with the system. Either it is too complex, or the delays are too long, or the questions that are asked are difficult to answer. The system needs to be looked at.

We need to reform the Vaccine Damage Payments Act. It is too outdated to deal with the financial and practical realities of living with the adverse effects of a vaccination, and too outdated to recognise that there is a spectrum of difficulties that those affected face, not only those above the 60% threshold. That is also an issue. The hon. Member for Dumfries and Galloway talked about the 60% threshold, which almost debars people. I always feel that we as parliamentarians are here to help those who need help. We must do it in a good way and make it simple and easy for them to find help. Today’s debate gives us a chance to try to chart a way forward that is easier for individuals to deal with.

The Vaccine Damage Payments Act provides an opportunity to apply for a one-off £120,000 lump sum to meet the burdens of coping with a disability. Whether this is to assist the person who has become disabled as a result of a vaccination, or the family who cares for the person, there are costs to be met. These are costs that individuals and their families would not have foreseen, caused by the adverse reaction to a vaccination that requires them to be met. To be eligible for such a scheme, the individual must be over two years old and must apply within six years of vaccination, or up until their 21st birthday, whichever is the later. This means that if the adverse reaction results in death, but the victim is less than two years old, nothing can be awarded to the parents. That discrepancy must be addressed. Furthermore, it leaves carers to pay independently for the care that is needed until the claimant is eligible at the age of two. The rules simply do not deal with the emotional realities of such situations.

We cannot always mark a family’s problems solely on physical issues. There is the emotional trauma that the family and their relations go through as well. What is even more striking is that not all those affected by vaccination damage are recognised in the current legislation as requiring financial assistance. The requirement that a person has to be 60% disabled to be eligible for a single amount of £120,000 is a very hard and fast rule, and cuts out others who are vulnerable and need compensation to deal with the difficulties that disability brings. To be 60% disabled, or above, has a profound impact on a person’s life, reinforcing that we must change how we deal with payments to those affected. It seems too absolute to have a 60% cut-off when we come to a situation in which a victim may fall below this figure, yet be affected in their life. They can be greatly affected, but, because of the eligibility criteria, not entitled to any assistance.

A range of degrees of disablement can affect an individual’s life and irreparably alter it. For that reason, reform needs to look at assisting all those who have been affected in different ways through vaccination damage, and as a result deviate from the standard fixed sum given on a sliding scale. I hope that the Minister’s response will give an idea of how those suffering as a result of the vaccine can be given better financial assistance.

As has been pointed out on a number of occasions, including in the work of the all-party group, the provisions to deal with adult cases are poor. It would be appropriate for the 1979 Act to be applied more comprehensively to adult cases. The requirement that vaccination must occur before a victim’s 18th birthday, apart from in the exceptions outlined in the Act, means that the scheme’s adult application is far from lucid. There are workers whose jobs mean they must be vaccinated to deal with the dangers of their workplace. Hepatitis B is one such vaccination, but it is not included in the Act. Is it proposed that it should be included? It is important to consider that question.

The workers most affected are doctors, nurses and social workers, but members of other similar professions that revolve around a duty of care are in a similar situation. Those people, in aspiring to fulfil the requirements of their job, have availed themselves of vaccines and that has resulted in their being left without livelihood or career, and with a quality of life that is not as it was before.

The question of access to life-saving or life-changing drugs has also been on my mind, and other hon. Members have touched on it. There was an example in the debate pack of a family who had to leave England for the States to qualify for drugs, which they got free there. I presume that that was because they would also be part of a testing scheme. The drugs greatly improved the child’s life. They moved to California to qualify for drugs that they could not get here, because they cost too much. The Minister and I have previously talked about drugs for cancer sufferers, and so on. I suppose more is possible with a large budget, but I think that something must be done about improving the availability of drugs.

The legislation often makes adult payouts subject to the industrial injuries schemes, with the result that the compensation often cannot come close to what is required to meet the financial challenges of the affected person. We must remember that it is not financial considerations that are at stake, but rather recompense for loss of a career and personal independence, and a reduction in quality of life. I am inclined to argue that those victims should be equally able to obtain the £120,000 payout through the Government’s vaccine damage payment scheme. There is a clear need for hepatitis B to be covered by the legislation.

Although I have spoken of the £120,000 figure and argued for it to be extended to a wider range of cases, that is not to say that the sum is adequate; it is almost speculative in relation to the life expectancy of individuals eligible to meet the requirements of the scheme. That is wrong. We should be doing all we can to extend and make easier the lives of those affected, by giving higher levels of financial support. The fact is that the costs of caring for someone with a disability are high, and in the case of a child the sum offered will not span a lifetime’s care, so families can be left to struggle when money becomes stretched and the pressure is on. Adult cases also involve personal livelihood if the disability becomes debilitating. Inadequate and unrealistic payouts or failure to be compensated at all can make financial considerations an added concern in an already stressful and emotive situation.

Is there a better way? I suggest there is, and I urge the Minister to review the matter.