World AIDS Day

Jim Shannon Excerpts

Thursday 1st December 2022 Commons Chamber

[Lloyd Russell-Moyle (Brighton, Kemptown) (Lab/Co-op)]

I beg to move,

That this House has considered World AIDS Day.

I declare an interest as the vice-chair of the all-party parliamentary group on HIV and AIDS and honorary patron of the British HIV Association, and of course as someone who is personally affected by these issues.

I thank the Backbench Business Committee for granting this debate to mark World AIDS Day. Every year, on 1 December, the world commemorates World AIDS Day. People from around the world unite to show support for people living with and affected by HIV, and remember those who lost their lives to AIDS. At 5.30 pm, I, among the community in Brighton, will read out the names of all the people who have died of AIDS in Brighton in the 40 years since the first death, as we do every year. Vigils such as that will be happening up and down the country: in London, in Birmingham, in Manchester, in Oxford, and in other places.

This year’s theme is “equalise”. It is a recognition of the health inequalities that still affect far too many children, men that sleep with men, transgender people, drug users, sex workers and people in prison. Those are the populations most affected by HIV and AIDS in their respective countries; different countries might have different, more focused populations, but those are the groups. Fundamentally, however, the groups that are most at risk are people who are marginalised from healthcare, and that is what we need to equalise—that is what we need to sort out.

This year marks the 40th anniversary of the death of the former Hansard reporter Terry Higgins, who died of an AIDS-related illness on 4 July 1982, and the creation of the now well-known Terrence Higgins Trust. On behalf of the APPG, I thank the Terrence Higgins Trust, not only for the work it has done over the past 40 years but for the work it keeps doing, pushing for us to have no new transmissions of HIV by 2030. That seems a remarkable target, but it is within our reach; it will help the estimated 106,000 people living with HIV in England that we know of. The work of the Terrence Higgins Trust, along with the National AIDS Trust and others, continues to lead the way, and I am delighted that the two organisations are working closer together. I hope that collaboration continues.

Ahead of World AIDS Day in 2018, four years ago now, I spoke in this Chamber about my own diagnosis. I said then that World AIDS Day was

“deeply personal to me, because next year I will be marking an anniversary of my own”.—[Official Report, 29 November 2018; Vol. 650, c. 492.]

Now, of course, it is 14 years since I became HIV-positive. It has been a long journey, from fear to acceptance and to today, where I now play a role of advocacy, knowing that my treatment keeps me healthy and protects any partner that I might have, preventing me from passing on the disease. Since then, further developments have taken place in the fight against HIV/AIDS—many of them positive, but there have been some setbacks, which I wish to talk about in a bit.

We have, of course, a HIV action plan in England, setting clear goals and milestones for achieving our target. Similar plans are set to be launched in Scotland and Wales—we hope they will come quickly. Last year’s HIV action plan for England sets out how we will achieve an 80% reduction in HIV infections by 2025, building to the end of transmissions by 2030. First, that plan will prevent new infections by expanding and improving HIV prevention activities, investing £3.5 million in a national HIV prevention programme up to 2024, and ensure that PrEP—pre-exposure prophylaxis—is expanded to all key groups. Secondly, it will scale up HIV testing in high-risk populations where uptake is low, and ensure that new infections are identified rapidly, including through the expansion of opt-out testing in A&E departments in areas of very high prevalence of HIV. That testing will be backed by £20 million over the next three years.

Thirdly, the plan will ensure that, once diagnosed, people rapidly receive treatment. When I was first diagnosed, you waited until your CD4 count was below 200, which is when you can start to get infections and AIDS can start to be diagnosed. At that time, we did not know whether the drugs would cause continuing side effects; now, as soon as someone is diagnosed, they go on the drugs, because we know that they have very few side effects. Of course, each person has to get the combination that is right for them, because everyone reacts differently, but we have a good array of drugs with which to do that. That means that very quickly—within a matter of months—new people who are diagnosed can be undetectable, and can effectively go about their life without fear or favour. That is a remarkable change in those 14 years.

[Jim Shannon (Strangford) (DUP)]

I congratulate the hon. Gentleman, and commend him for his stance and leadership in this House—and, indeed, outside of this House—when it comes to HIV/AIDS and how to live with it, as he does. In Northern Ireland, which he did not refer to, the Public Health Agency has responsibility for this area. Its hope and ambition is to reach the target of eliminating HIV transmission by 2030, and it seems confident that it can do so, because of the PrEP that he has referred to. It is good sometimes to mark and record the things that are going well.

[Lloyd Russell-Moyle]

It is remarkable. If we achieve that 2030 target in this country, and if we then achieve a roll-out of it globally—that is a lot of ifs—HIV will be the first disease that we have rolled back via treatment and prevention, rather than vaccines. It would be a world leader, and hopefully a pioneer in how we can treat and test other diseases, particularly with mass testing, which I will come on to in a second.

If all that happens, we will meet the 2030 target, but—as we always say—the Government need to do more. To start with, they need to expand opt-out testing. That has been trialled in areas with very high prevalence—that is, Brighton, London, Manchester and Blackpool. Not all of London was originally included in the opt-out testing, but it took the decision to expand that to all hospitals in London, sharing out the money. Remarkably, that has shown that, in non-high prevalence areas, the percentage of people coming back with an HIV-positive test is still significant. The argument, therefore, is to roll that out to all areas.

Over the past 12 months, we have seen real successes in opt-out testing in England. That happens when somebody is already having their blood taken in A&E and the vial is sent off for an additional test. We are testing for HIV and hepatitis B, unless someone opts out. No one is forced to do this, but I understand that very few people opt out.

The pilot’s results have been astonishing. In just three months, 102 people were newly identified, and 70 people were identified as having dropped out of treatment. If someone drops out of treatment, they are a risk not only to themselves, but to the wider community. Those people have been brought back into treatment and that has saved lives. The results are clear: opt-out testing is working.

On a side note, it is also possible to test for syphilis with the same vial. However, it was not possible to expand this to syphilis, because syphilis testing is paid for by local authorities, not by NHS England, and the local authorities were unable to identify where people were from, because hospitals are not coterminous with local authorities and it was too complicated. That seems ridiculous. We need the Government to sit down with local authorities or to provide for that through central funding. If we are taking the vial, we can run it through the same machine. If the only reason stopping us is bureaucratic, I do not see why we cannot do this. We should test people routinely for as many things as we can, if we know that it will help people’s lives. We know that there is a spike in syphilis in certain key populations.

If this vital programme is eventually expanded to all towns and cities with high prevalence, it will be a game- changer. Where London has expanded the programme, it has already been worthwhile financially in areas that do not have very high prevalence. The programme should also be expanded to sexual health clinics to ensure that everyone going to one is tested for HIV. This may be a surprise to many, but that is not always done routinely and it is not an opt-out system. Actually, an HIV test is becoming less, not more common, because more sexual health clinics are moving to online services. Online services have some great advantages, but one downside is that they require people to collect a vial of their blood, which often does not happen, or does not happen effectively, so HIV test rates are lower. We need to ensure that, when people attend a clinic, it is routine and there is an opt-out system. Some clinics do this already, but it is not universal.

I spoke about the HIV prevention drug, PrEP, in 2018. We have a come a long way since the PrEP impact trial. To remind colleagues, PrEP, which is a pill that people take daily, contains two of the three drugs that someone with HIV would have. In fact, I have now been reduced to two because the latest evidence shows that, when someone gets to “undetectable”, the drug load for people who have HIV can be reduced to, effectively, just the PrEP load. The drugs will not be exactly the same as I take for PrEP, but some people can maintain on those as well. So this is also about new interventions that can reduce the costs and the amount of drugs that we are providing.

PrEP prevents HIV and the pill is covered by NHS England, but thousands are still missing out. They are struggling to get PrEP appointments because of under-resourced sexual health services. That is laid bare in the latest report from the National AIDS Trust, the Terrence Higgins Trust, PrEPster, Sophia Forum and One Voice Network. Due to the fragmentation of services in England, the drug PrEP is paid for by NHS England. That is a real milestone for the NHS, and I congratulate the Government on getting that out eventually, after our interventions.

Anyone who is currently sexually active should be tested by sexual health services every three months, and anyone on PrEP should be tested every three months. In theory, therefore, there is no additional resource for sexual health services for someone on PrEP, because the only people on PrEP should be those who are sexually active, or drug-injecting users who should also be tested, and so on—we should not give it to people who do not need it. But our sexual health services in this country rely on balancing the budget through the fact that people do not attend as regularly as they should. Therefore, that limits the places for PrEP appointments and limits the people who can get access to the drug that the NHS is paying for, even though they are entitled to it and should be offered that level of service.

Awareness of PrEP is far too low and it cannot be given out by GPs, pharmacies, community or maternity services. That means that the burden is solely on local government-funded sexual health services. We all know what is happening with local government and probably do not need to go there today—that is a whole other debate.

If we are going to meet our 2030 target, it is vital that everyone who is at risk of acquiring HIV and who wishes to access PrEP can do so as a key tool in completely and effectively preventing new HIV transmissions when it is taken as directed. Over the past two years, the all-party group on HIV and AIDS has published three important reports. We published “Increasing and normalising HIV testing across the UK”—which I just touched on—and “Nothing about us without us”, which addresses the needs of black, Asian and minority ethnic communities in the UK. Those communities are some of the hardest-hit by HIV in this country and are the least likely to have HIV testing done routinely. The roll-out and trial of the saliva HIV testing, which the Terrence Higgins Trust did two years ago and last year, was particularly effective in those communities. It was seen as less invasive, more private, easier to get hold of and possible to do through online and postal services. The Government should consider whether that process should be normalised nationally or provided cheaply and accessibly.

Our other report, “HIV and Quality of Life—What do we mean? How do we achieve it?”, was published today, and my colleagues have been launching that in Brussels with our partners in Europe. Those reports have been made possible only through the evidence provided by the strong HIV sector that we have in the UK. Its continued insights and hard work are appreciated.

The latest data, however, is not quite as positive. There were 2,692 people diagnosed across England in 2021. That is up 0.7%, from 2,673 in 2020. Some might say that is a small amount but, in 2022, there was a fall of 0.2% and, in 2019, there was a fall of 33%. We are clearly plateauing and there is a danger that we are starting to get more diagnoses. That might be positive because we are delving down to the hardest-to-reach areas, but we need more evidence on why that has plateaued and why it is creeping up before we can be sure that that is something to celebrate, rather than to be worried about.

To keep on track, it is vital that we use every lever available to end HIV transmission and to ensure that we do not plateau, as the numbers show. As I said, we can end transmission by 2030 and I strongly believe that the UK will be one of the first countries to do so. We are a world leader. At the beginning of the week, I spoke to our London NHS colleagues, who said that it is the first time in their career that people have been phoning up from around the world to say, “How are you doing the opt-out testing? How are you doing the PrEP roll-out? We want to learn from you.” That is remarkable and we should be deeply proud of that. The head of UNAIDS came to London and Brighton and we showed her the HIV testing vending machines that we have in Brighton. She said, “I thought that I would never learn anything for the developing world from a rich country. I was here as a courtesy visit, but I have seen what you are doing and how we can roll that out to parts of Kenya and Uganda, and community settings around the world, with HIV testing vending machines that run using solar panels”.

--- Later in debate ---

[Jim Shannon (Strangford) (DUP)]

It is a pleasure to speak in this debate, and to follow the right hon. Member for Romsey and Southampton North (Caroline Nokes). She and I seem on many occasions to be on the same side in debates in the Chamber and in Westminster Hall. I commend her on her work to promote the values, aspirations and concerns of women in this House, this country, and the world.

I also commend the hon. Member for Brighton, Kemptown (Lloyd Russell-Moyle) on setting the scene so well. I do not think that I have ever missed a debate on HIV/AIDS in the Chamber or Westminster Hall, and I came along to contribute, and to support him. I commend him, as I said in my intervention; he has been a shining light to many who suffer from AIDS across the whole United Kingdom of Great Britain and Northern Ireland, and he has contributed in an exceptional way today. Well done to him.

As the hon. Gentleman said, the global theme for this World AIDS day is “Equalise”. I thought to myself, “That is exactly what we should try to do.” We should not only make sure that everyone in this great United Kingdom has access to PrEP, which he referred to, but ensure the same access to medication and treatment across the world. He outlined that point very well, and I fully support it. Let us replicate what we do here across the world.

On World AIDS Day, UNAIDS asks that we take four actions. The first is to increase the availability, quality and sustainability of services for HIV treatment, testing and prevention, so that everyone is well served. The second is to reform laws, policies and practices in order to tackle the stigma and exclusion faced by people living with HIV and by key and marginalised populations, so that everyone is shown respect and is welcome. The hon. Gentleman addressed that very well. The third action is to ensure the sharing of technology, so that communities in the global south and the north have equal access to the best HIV science. Lastly, communities should be able to make use of and adapt the “Equalise” message to highlight particular inequalities that they face, and should be able to press for the action needed to address those inequalities.

STOPAIDS got in contact with my office before the debate. It informed me that the UK, which has provided some £15 million a year to UNAIDS for the last five years, has cut its funding by more than 80% to just £2.5 million this year. I concur with the hon. Member for Brighton, Kemptown that that is a worry, and I think that concern will be expressed by others in the Chamber, too. Even though the Minister does not have direct responsibility for the issue, perhaps he will speak about that. The cut jeopardises work that supports some of the most marginalised. The Government and our Ministers should uplift that funding, even if just slightly, to ensure that charitable organisations are fully funded to do their work.

I want to outline what we are doing in Northern Ireland through the Public Health Agency, which I mentioned in an intervention on the hon. Member for Brighton, Kemptown. I want to mention its achievements, even though there may have been a slight increase in the number of those with HIV; the issue is how we combat that. I think that what it has done is excellent. Its 2022 annual surveillance report on sexually transmitted infections, which is based on data from ’21, showed that there were 76 newly diagnosed cases of HIV in Northern Ireland in 2021. That is a 12% increase from 68 diagnoses in 2020, but—this is the key—more HIV testing was being done. Almost 80,000 HIV tests were carried out in Northern Ireland in ’21, which is a 21% increase on the approximately 66,000 done in 2020. The PHA said:

“We are making great progress towards eliminating HIV transmission by 2030. Frequent HIV testing, the offer of PrEP to those most at risk of HIV, together with prompt treatment among those diagnosed, remains key to achieving this.”

So there is more testing, more contact, and fewer people getting AIDS. That is an example of what we are doing in Northern Ireland, and I commend the PHA for doing that so very well.

In 2019 in Northern Ireland, 40% of those newly diagnosed with HIV were gay and bisexual men. In comparison, 52% of cases involved heterosexual contact. There is a stereotype and an assumption that all people with HIV or AIDS are gay or bisexual, but the stats clearly dispute that. As the right hon. Member for Romsey and Southampton North said—this applies to Northern Ireland as well—there must be greater awareness that not only gay men get AIDS. It has impacted the lives of many women, too. Unfortunately, many of the people represented by those 52% of cases in Northern Ireland are ladies. The right hon. Lady outlined the point exceptionally well. It is good that we have it on record that the disease needs to be tackled head-on, always. The HIV strategy must reflect the fact that more heterosexual people get HIV than gay or bisexual people. A new strategy is clearly needed—one that takes on board the figures, and helps us to understand the issues even better.

In Newtonards in my constituency, the Elim church, which is very active, has had an incredible strategy for Swaziland in southern Africa. It has helped to build hospitals, health clinics, schools and other buildings, which has provided jobs. It has also actively helped to address the AIDS epidemic in Swaziland. Those things need to be done proactively and positively. I commend the Elim church and mission in Newtownards as an example of what can be done where there is the will and understanding, not through their own efforts alone but working collectively with others to reduce the number of people in Swaziland who have AIDS.

There are many orphans in Swaziland whose parents died due to AIDS, and some of them were born with AIDS through no fault of their own, and the Elim church and mission actively works with them. They come to my constituency every year as part of the church’s missionary work, and I have never failed to be moved by their singing and joy. They are receiving treatment and medication, too.

Northern Ireland has only one HIV charity, Positive Life, which I commend for how well it does for us in Northern Ireland. Positive Life attends the Democratic Unionist party conference every year, and I make it my business to thank the charity every year for its tremendous work to promote a positive future for people living with or affected by HIV in Northern Ireland. It provides free rapid testing for those who are concerned that they might have HIV, and it offers support along the way. We are all indebted to Positive Life in Northern Ireland, and to all the other charities that play an invaluable role in battling HIV and making the stereotypes and stigma a thing of the past.

The Public Health Agency has a clear strategy for those in Northern Ireland who have AIDS, whether through transfusions, activities or whatever it may be. I am pleased to say that the positivity not only in Northern Ireland but elsewhere encourages me and gives me great hope. The hon. Member for Brighton, Kemptown is an example of that positivity, for which I commend him. I also commend the Minister in anticipation of his answers, which I hope are along the lines we expect.