Dementia Research in the UK

Jim Shannon Excerpts

Thursday 10th February 2022 Commons Chamber

[Jim Shannon (Strangford) (DUP)]

It is always a pleasure to speak in any debate secured by the hon. Member for Oldham East and Saddleworth (Debbie Abrahams). Indeed, I do not think she has secured any debate on dementia in either the Chamber or in Westminster Hall that I have not been at. That is first because I want to support her, but secondly because the subject matter is something that is real to me as a constituency MP, and to others who have told their stories in the Chamber. I find those stories incredibly moving because they illustrate, as personal stories always do, how complex this issue is. It is a pleasure to support the hon. Lady in this issue, which affects every corner of this great United Kingdom of Great Britain and Northern Ireland.

Strangford is a very beautiful location with wonderful facilities and lovely people. Given that, we have a high number of older retirees, who moved there to enjoy the safety of our constituency. The natural follow-on from that is that we have a large number of people who are susceptible to dementia. Over the years, when one is probably at around my age, one notices people who one remembers from childhood but who are now getting older and have developed dementia. I have quite a few friends in that position—I am not better than anybody else, but I can fairly quickly see where the issues are and one notices the slip away.

For instance, my mother had a lady living next door. One day she came in to see her and afterwards I said, “Mum, I think that lady is just starting to have a wee bit of dementia or Alzheimer’s.” She said, “Are you sure?” and I said, “I’m not smarter than anybody else, but I think there’s the start of something there”, and unfortunately there was. We know that drugs and medication can delay the process by five or six years, stopping the slide. As a busy constituency MP, I deliver on these issues all the time, whether it be attendance allowance forms, benefits issues or just helping people, as I do by the day, by the hour and by the minute. Recent figures and statistics show, and this is scary, that just under a fifth of all dementia diagnoses in Northern Ireland are of residents in the local trust in my Strangford constituency. As a busy MP with very busy staff who deal with these issues every day, every week and every month, I see these things.

Of course, we understand that dementia is not limited to individuals. We must remember that dementia affects entire families. The right hon. and gallant Member for Beckenham (Bob Stewart) mentioned his mum, and the hon. Member for Ochil and South Perthshire (John Nicolson) told a very personal story about his mum, too. We can all relate, as it affects entire families—children, grandchildren, sisters and brothers.

Dementia takes people away from us while they are still alive. Those words sum up the debate very well, as that is the impact of dementia and Alzheimer’s. People see the shell of their precious sister, who has forgotten her husband and who screams when he comes into the room, “Who is this man?” She does not recognise him, but they have been married for 35 or 40 years. She cannot express her toileting needs or say that she is simply lost, which is what these people are. That is the reality.

This is replicated widely throughout the UK. Life is simply harder, as taking the standard medication is a trial. It is little wonder that, currently, one in four NHS hospital beds is occupied by someone living with dementia.

[Bob Stewart]

It is nice to see you in the Chair, Mr Deputy Speaker.

A friend of mine tells me that his wife suffers from dementia. She sometimes turns round to him and says, “Why are you sitting in my husband’s chair? Get out.” Isn’t that tragic?

[Jim Shannon]

That is exactly the kind of story we are all trying to illustrate with our words, or broken words, this afternoon. It is exactly what my constituents say to me.

The economic cost to the UK of caring for people with dementia is estimated to grow from £24 billion in 2014 to £47 billion by 2050. If that is the case, we really need research and development. Everyone who has spoken in this debate has said that we need it now.

I do not want to catch the Minister out, as that is not my nature, but the commitment in the 2019 Conservative manifesto has not yet been delivered. I am not getting at him, as he knows, but we need to have that commitment delivered. Dementia is increasing, and so must our response. We need funding for cures and coping mechanisms, which goes back to the commitment on research and development.

Asking people to play a game of sudoku on their phone each day is not a preventive strategy. We must put our money where our mouth is and find a way to answer the question of dementia. Way before covid arrived, I was invited to attend a dementia and Alzheimer’s help group at the Church of Ireland church in Newtownards. I learned a lot that day from speaking to family members, who told me that playing music sometimes seems to bring those with dementia or Alzheimer’s back to where they were. The hon. Member for Ochil and South Perthshire spoke about dancing, and I saw a lady dance—that is what she remembered. Music seems to bring people back, so it can be therapeutic.



There is one event I attended that I do not think I will ever forget. I know the people who run an Alzheimer’s and dementia home. They are very good to all their residents, who have different levels of dementia and Alzheimer’s and are at different stages. The trust were doing an event and they invited me as the MP and some of the local councillors down. They said, “We are going to try to illustrate to you what it’s like to have dementia or Alzheimer’s.”

Here is what they did: first, we put earphones on, which kept the noise around us but made a constant noise in our ears that was quite deafening and scary. They locked us in a room, in darkness, and they put a mask over our eyes so we could see nothing but darkness, which the right hon. Member for Beckenham (Bob Stewart) referred to. They put a sole in our shoe that had points in, so that every time we took a step it was like stepping on stones. We did that for 10 minutes, and it was probably the closest I ever came to being mad. That is how horrendously scary that experience was, and it left a lasting mark on me. That illustrates, from a personal point of view, what it means to have dementia or Alzheimer’s.

In the 2019 Conservative manifesto, the Government committed to addressing dementia, pledging to double funding for dementia research to £160 million a year. However, I say gently to the Minister that two years in we have seen no plan to deliver that funding increase. I understand that there are reasons because of covid-19, but there are also reasons to deliver what was committed, which we all support, and we would all support the Government to make that happen.

The latest figures show a decrease in Government spending on dementia research. For the year 2020, funding for dementia research was £75.7 million, down £7 million from £82.5 in 2019 and £22.4 million down from its peak of £98.1 million in 2016. That tells me that we really need to do something. I know this Minister is a Minister of action, and I know that, when it comes to telling us what will happen, he will be able to tell us that that funding commitment will be addressed, so I look forward to his response.

I support the calls of Alzheimer’s Research UK. The rapid development of the covid-19 vaccines, a success story that we all welcome, tells us that, if we focus on something, we can do it. If we can do it, let us do it—and if we need the money that was committed to make that happen, let us do that as well. That is what we want to make happen. Alzheimer’s Research UK says:

“The rapid development of COVID-19 vaccines has demonstrated the role the UK Government can play in bringing together different stakeholders to focus on a common challenge, and the impact this collective energy, funding and determination can have. In parallel to increased research funding, we need the approach taken to COVID vaccines to be applied to dementia—coordinated, ambitious action from government to bring together industry, health services and researchers”—

all those who want to help, including our Minister and the Government. It continues:

“This bold approach must be reflected in the forthcoming Department of Health and Social Care’s Dementia Strategy and will ultimately ensure UK patients have priority access to innovative new dementia treatments.”

Dementia is unfortunately a growing problem, and we must focus on it, not simply because it will be beneficial to our financials in the long term—it will—but because families are being torn apart by the pain of losing loved ones while they care for their shell. That is what is happening. It is like losing a piece of them week by week, and it hurts. It hurts all those families. It hurt the right hon. Member for Beckenham, it hurt the hon. Member for Ochil and South Perthshire and it hurt the hon. Member for Oldham East and Saddleworth, who lost her mum.

When I think of all those things, I believe we can do more to stop dementia, and funding for research is the way we must go. Again, I look to the Minister—to my Minister and to my Government—to make that manifesto commitment a reality, and sooner rather than later.