Sudden Cardiac Death: Young People
Debate between James Frith and Caroline Nokes(4 days, 3 hours ago)
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Mr Frith
I thank my hon. Friend for her intervention; I hope I will cover and do justice to those important points.
NHS pathways also give providers call-level CPR data to support local reviews and improve quality, as well as reviewing data and emerging evidence to see where we must do better. They send quarterly reports to the national clinical assurance group, which is made up of senior clinicians drawn from royal colleges, professional bodies and urgent and emergency care services. These professionals can and often do submit constructive feedback on the way that pathways are run.
At present, NHS clinical staff are trained in CPR, but from April 2027, this will be extended to all NHS staff, including those in A&E. The roll-out of this training will take time, but it will hugely increase the number of people in the country with valuable lifesaving knowledge.
Finally, when it comes to recognising cardiac arrest, I can confirm that the Care Quality Commission does assess call handlers’ skill as part of its inspections. We know that no human system is perfect, and I am all too aware that a list or accounts like this can risk sounding defensive, so let me repeat my openness to sitting with the hon. Member for Mid Buckinghamshire, Adam’s parents and other colleagues to see how and where we can do better and go further.
Turning to the hon. Member’s points about genetics, I am hugely optimistic about the potential of genomics and life sciences over the next 10 years. The NHS clinical genetics services deliver a comprehensive clinical genetics and genetic counselling service for individuals with a family history of genetic conditions, including cardiac conditions. They provide a detailed review of family history that can direct the diagnosis, risk assessment and lifelong clinical management of patients of all ages and their families who have, or are at risk of having, a genomic condition.
The current specification for the clinical genetics services was published more than a decade go under the previous Government and is no longer fit for purpose, not least because this is one of the most innovative fields in healthcare. Today, specialist clinical services simply do not have the capacity or infrastructure to contact family members proactively, except where a particularly high risk has already been identified. For me and my work, it is a clear example of why innovation must help connect our public services.
NHS England’s genomics programme, working with the genomics clinical reference group, has done a review of the 17 regional NHS clinical genetics services. This has shone a light on the challenges to be addressed for this service to match the Government’s expectations.
I am unable to confirm a specific date for the hon. Member for Mid Buckinghamshire, but suffice to say, there is much more to be done before expectations are met by service. On his point about the UK National Screening Committee, it is true that the draft recommendations, which have been consulted on, did not find that the current scientific evidence—
Copyright and Artificial Intelligence
Debate between James Frith and Caroline Nokes(1 year, 8 months ago)
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Madam Deputy Speaker (Caroline Nokes)
I will just make the point that I can see that this is very technical and complicated. It might require long answers, but I am not sure it required that level of input from not-Adele.
Mr James Frith (Bury North) (Lab)
Can the Minister clarify the difference between his term “rights reservation” and previous reports of the Government’s preference for an opt-out system? Those systems have already been called out and considered unjust by our creators. There are AI leaders who recognise the need for fair licensing. What assurances can the Government provide to support both human and AI innovation? Does the Minister, with his creative industries hat on, agree that respecting copyright would see the introduction of an opt-in system as essential?