(1 month, 1 week ago)
Commons ChamberMy doubts come from why, for example, we are not allowing the data linkage study to be fully completed before proceeding with the new trial. That study would find out what has happened to all the children who have already taken puberty blockers. I wanted to ask the Liberal Democrat spokesperson, the hon. Member for Mid Sussex (Alison Bennett), that question, but I was not able to make that intervention; I do not know whether that had anything to do with the £1.5 million donation from Ferring Pharmaceuticals that the Lib Dems took before the 2019 election. I do not know whether that had anything to do with it, but there has to be some level of declaration if a political party has taken donations from a pharmaceutical company that is promoting this drug. That is relevant to how one represents oneself in the Chamber.
There is no justification for proceeding with the Pathways trial before the data linkage study is complete. Puberty is how a child transitions from childhood to adulthood, and anything that affects that process is going to have long-term effects. Those effects are going to be felt, not in one or two years, but in 10 years. The brains we have as adults, at the age of 24, are very different from the brains we have as 11-year-olds—our frontal cortexes are not fully developed. This is not just about the effect on these children’s psychology; what effects do these drugs have on humans over the long term? We do not know that, so why not look at the data linkage study? It does not have to be perfect, but it will allow us to protect the children going into this trial, so that the trial is as well-run as possible.
Iqbal Mohamed
I thank my hon. Friend for giving way, and for making such a passionate speech. I think we all agree, across the House, that we are here not to politicise or to demonise, but to try to make the right decisions for the safety of children. I think that all Members here share that intention. It was said earlier that these drugs are already used to treat different conditions, such as prostate cancer, endometriosis and precocious puberty. For the first two conditions they are taken by adults for a very short time, and for the third they are taken for a limited period until the child reaches the age of puberty. Such misinformation—or comparison—is not really valid, and should be avoided.
That is an excellent point. When I heard about those other uses for the drug, I thought that I would be interested to see more clinical trials for conditions such as endometriosis and cancer to establish its long-term effects. However, that is for adults. When it comes to protecting children, I want to ensure that this trial involves as much safeguarding as possible.
We do not fully understand the long-term risk. We come to the House again and again to discuss what constitutes a child and what constitutes protecting a child. We need to be clear about the fact that we must protect people under the age of 16, or 18—I do not care which age it is, but it should be an age on which we all agree—and that they must be subject to extra protection and safeguarding until they reach adulthood. That is why we are asking for so many safeguards—we need to ensure that the unintended consequence of trying to help a few young people does not lead to greater harm to many—and it is why we are here today.
I do not feel that asking the Government to include the data linkage study is too much to ask. This trial is a trade-off: long-term health is being exchanged for short-term happiness. This trial, in my opinion, is not safe, and this trial will not protect children from harm.