Parkinson’s Awareness Month

Gregory Stafford Excerpts

Thursday 1st May 2025 Commons Chamber

[Gregory Stafford (Farnham and Bordon) (Con)]

It is a pleasure to speak on behalf of His Majesty’s Opposition in this most important debate. I commend the hon. Member for Dunfermline and Dollar (Graeme Downie) for securing it and for his heartfelt and impassioned speech. I was particularly moved by the recitation of Bobbie’s poem and the highlighting of the amazing “Movers and Shakers” podcast.

I thank all hon. Members for their heartfelt contributions on behalf of their constituents and those across the country living with Parkinson’s. We heard inspiring stories such as that of Jagdeep, as raised by the hon. Member for Ilford South (Jas Athwal), and John and Anne of Something Old, Something New, as raised by the hon. Member for Stirling and Strathallan (Chris Kane).

I note that, as a result of other events in the country, our debate has had a relatively Scottish flavour, but Parkinson’s Awareness Month is UK-wide and a time to focus national attention on the condition that affects over 150,000 people here in the UK. That number that continues to rise. The disease impacts not just individuals but families, carers and communities. It challenges both body and spirit, demanding a comprehensive response from all sectors of society.

We often learn about Parkinson’s from friends, family and colleagues, as was highlighted so powerfully by the hon. Member for Glasgow West (Patricia Ferguson). For me, it is a deeply personal issue. A close family member was initially diagnosed and treated for Parkinson’s disease. More recently, that diagnosis was revised to progressive supranuclear palsy, or PSP, which is a rarer and unfortunately more aggressive condition. That journey from uncertainty to diagnosis and then living with a progressive neurological condition has profoundly impacted my family. I have witnessed at first hand the critical importance of early diagnosis, specialist care, emotional support and, above all, hope.

Since becoming a Member of Parliament, I have spoken to many constituents across Farnham, Bordon, Haslemere, Liphook and the surrounding villages affected by Parkinson’s. I have been inspired by their bravery and strength in responding to the cruel difficulties that life has thrown at them.

Parkinson’s has no cure, as hon. Members have said, and that is one of the many challenges that people and their loved ones face on diagnosis, but thanks to advances in research and medicine, there are ever improving treatments to help manage and relieve symptoms. As a result, many people with Parkinson’s can have a normal or near-normal life expectancy. Physiotherapy, occupational therapy and medication can help relieve symptoms and enable people to stay living independently at home for longer.

In my constituency, people with Parkinson’s have benefited from free membership of local leisure centres in Whitehill and Bordon and in Haslemere, helping them to keep active and manage their symptoms, but there is so much more to do, whether on research, diagnosis, treatment or—hopefully—a cure.

Last month, ahead of World Parkinson’s Day, like the hon. Members for Hertford and Stortford (Josh Dean) and for Strangford (Jim Shannon), I met Parkinson’s UK and individuals affected by the condition. I heard powerful accounts from volunteers about the daily challenges they face from mobility issues and speech difficulties and the emotional toll on themselves and their families. I commend Parkinson’s UK for its tireless work in providing advice, support and advocacy at every stage of the Parkinson’s journey. Help is available via its website and helpline. I encourage anyone who needs support to reach out. However, as the hon. Member for Bathgate and Linlithgow (Kirsteen Sullivan) mentioned, there are still many who do not know what support is out there; that must change.

I praise the local charities and volunteers across my constituency and across the country, as raised by my right hon. Friend the Member for Gainsborough (Sir Edward Leigh), and the work they do. Like the hon. Member for Aberdeenshire North and Moray East (Seamus Logan), I have experienced working in healthcare, and during my tenure with the NHS Getting it Right First Time programme I was involved in the publication of the neurology national speciality report. The analysis in that report highlighted significant variation in neurology services across England, particularly in managing conditions such as Parkinson’s disease. Key conclusions included the urgent need for timely access to specialist neurology services, the development of standardised care pathways for chronic neurological conditions, the expansion of the neurological workforce, including advanced practitioners, and much better data, as my hon. Friend the Member for Meriden and Solihull East (Saqib Bhatti) mentioned. Those recommendations are essential to reducing disparities and improving outcomes. Will the Minister commit to addressing those three priorities in more detail beyond general references to cutting waiting lists and updating the workforce plan?

Medical research in the UK is funded by both public and private sectors as well as charities and non-governmental organisations. In 2022, nearly £250 million was spent on neurological research including Parkinson’s and other neurodegenerative conditions across 1,873 individual projects. Parkinson’s UK and Cure Parkinson’s alone contributed £2.6 million.

Under the previous Conservative Government, we invested more than £79 million in research into Parkinson’s disease between 2019 and 2024. In 2022-23, the National Institute for Health and Care Research enabled 114 studies related to Parkinson’s through its infrastructure. We also rolled out a new treatment for advanced Parkinson’s disease through the NHS, starting in February 2024, offering an additional option for patients whose symptoms were no longer responding to oral medications. I would be grateful if the Minister would confirm the Government’s plans to continue with that momentum. What research funding will be maintained or increased? What new treatment options are being supported or explored? We also made progress in workforce planning, recruiting record numbers of doctors and nurses, and publishing the first ever NHS long-term workforce plan. That plan recognised the need for more specialist nurses and clinicians in areas such as neurology. The new Government have committed to updating that plan. Will they therefore retain that level of detail and maintain the focus on specialist roles needed for Parkinson’s care?

I want to raise constituents’ concerns regarding recent shortages of medications, such as amantadine and apomorphine. That has real, distressing consequences for people trying to manage their condition. The Government have rightly acknowledged those supply constraints, but what action is being taken to restore and secure access to those medications? We have also heard concerns about the potential impact of President Trump’s proposed pharmaceutical tariffs. What assessment has been made of the risks that could pose to access and affordability of Parkinson’s treatments?

Turning to the Labour Government’s record to date, I believe that Parkinson’s has yet to be identified as a strategic priority. Will the Minister confirm what level of funding is being allocated to Parkinson’s research this year and how that compares with recent years? There are also wider concerns about the implications of tax and benefit changes in the Budget, as the hon. Member for Strangford raised, including the national insurance rise. Many people with Parkinson’s rely on social care services, which are not exempt from the national insurance rises. Has any assessment been made of those extra costs for local authorities, charities and self-funders? Charities such as Parkinson’s UK do extraordinary work, but they too are affected by those rising costs. How are Ministers engaging with the charity sector to understand how higher taxes and squeezed funding may threaten support services or reduce research investment?

We know that neurology waiting times are already among the longest in the NHS. Will the Minister outline a targeted plan to specifically address that? Will the Government also publish a long-term strategy for neurological conditions, including Parkinson’s, with clear plans for service integration between the NHS and social care? A multidisciplinary, multi-agency approach is vital for people with Parkinson’s to live full, independent lives.

Finally, what guarantees can the Minister offer that recent restructuring in NHS England and the Department of Health and Social Care will not worsen access to Parkinson’s services, delay initiatives or harm continuity of care? With 50% cuts to integrated care boards, will the Minister reassure people with Parkinson’s and their families that they will not be disadvantaged?

The House is united in wanting to improve treatment, support and outcomes for people with Parkinson’s. We hope that the Government will listen carefully to today’s contributions and respond with clear commitments that include action on workforce, waiting times, integration, support for carers and access to research and innovation. Parkinson’s is a relentless condition that robs individuals of independence and dignity, but with research, investment, compassionate care and community support, we can fight back. The Conservative party stands ready to work constructively with the Government and with Members from all parties to ensure that progress is not only continued but accelerated. Let us match awareness with action, for only with action comes hope.