Cancer Drugs

Gary Streeter Excerpts

Tuesday 19th January 2016 Westminster Hall

[Nick Thomas-Symonds (Torfaen) (Lab)]

It is a pleasure to serve under your chairmanship, Mr Streeter. I congratulate the hon. Lady on securing this important debate. Another example of a drug that has been delisted, causing similar frustration, is Abraxane, which is used in the treatment of advanced pancreatic cancer and was removed from the Cancer Drugs Fund in November. First, does she share my concern that although the delisting applies only to England, it causes worries across the rest of the UK as to whether the drug will become unavailable there, too? Secondly, although of course a consistent set of rules must be applied, one of the issues with pancreatic cancer is that 80% of patients are diagnosed when the cancer has already spread. Although Abraxane may only give a few weeks more life, those weeks may double life expectancy.

[Mr Gary Streeter (in the Chair)]

Order. Interventions must be brief.

[Pauline Latham]

I accept what the hon. Member for Torfaen (Nick Thomas-Symonds) says. I have also campaigned for Abraxane to continue because, very sadly, a former Member of this House died from pancreatic cancer in the last Parliament. He had very few weeks to live once he was diagnosed, so it is a particularly unpleasant disease.

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[Pauline Latham]

My hon. Friend is absolutely right. NICE has not done what it should have done. I hope that the Minister will be able to rectify that failure in the system.

Resolving data collection issues, negotiating value for the taxpayer and making the NICE assessment process flexible for innovative new drugs and drugs designed to treat only a small number of patients are vital for the fund to work successfully when it re-launches in April. Will the Minister please look again at the delisted drugs and give hope to people such as Graham that they can spend longer with their loved ones? Failing to do so will not help those whom the fund is designed to help most: cancer patients and their families.

[Mr Gary Streeter (in the Chair)]

Colleagues, we have 40 minutes until the winding-up speeches begin at 3.30, so we are looking at six-minute speeches, by voluntary submission. I will call Jim Shannon first, as he has to go and chair an important all-party parliamentary group; I hope that colleagues will accept that. He has promised to speak for no more than five minutes.

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[Danny Kinahan (South Antrim) (UUP)]

I too thank the hon. Member for Mid Derbyshire (Pauline Latham) for obtaining the debate. I feel that I am the most inexperienced of the Members present on this subject, having never been on a health committee, but having been lobbied hard; but I lost my sister some 25 years ago, and I know that everyone has either lost a family member to cancer or knows someone who won, and was cured.

There is a key thing to get across today. Every MP needs to realise the limitations on funding and what we are learning, so that we can all lobby, and help to find a better way forward. I was particularly impressed when President Obama said he wanted all cancers to be cured. I am not sure that that will always be possible, but it is the right aim with which to go forward.

As I have been trying to learn about, and get myself briefed on, the topic, I have realised that we need a more dynamic and flexible approach to what we are doing. It is right to have a fund that allows everyone to get to it, but we must find a way in which everyone does get to it—to the drugs. Taking drugs off the list seems to be the wrong way forward. Can we look for some form of flexibility, so that with drugs that have been removed there is perhaps a different way of getting at them, one step back?

I had two main reasons for wanting to speak today. One, which has been touched on by my colleagues, is the difficulty that comes from Northern Ireland being treated as a devolved country with its own cancer. As we have heard, only £1.5 million is being put forward and the cost of cancer is a phenomenal chunk out of a small budget. People often have to travel elsewhere in the UK to get the drugs and the cures they need.

One such case is this. I was sitting on a train once—before I ended up here—listening to two Northern Irish people speaking loudly about how useless all politicians were, not just here but also in Northern Ireland, because no one had helped them with their cancer. I interrupted them, and it turned out that a politician from the Social Democratic and Labour party was the only person who had, in fact, helped them. One of them had had to sell his house and use all his savings to get the cure he needed, which was available only here in London. My main point is that we have to find a more joined-up way of doing this, so that the drugs are available for everyone, everywhere. Can we consider an approach that includes all four countries?

We have heard from others that we have an extremely good Queen’s University link-up with Almac and with other countries, and we also have, in my patch, Randox. We have fantastic pharmaceutical companies leading the way in Northern Ireland. However, it was from a meeting with one of those companies that a story we have touched on today emerged. The company tried to sell the diagnostic system to our local NHS, but it could not. It sold it to a company in America, which repackaged it, and the Northern Ireland health service then bought it from that company for an extra few million. We have heard about the difference in costs between Spain and Britain. There must be a system for looking at the procurement process, to ensure that we are more dynamic in how we buy things, so that the drugs are there and available to everyone.

Those are the two main points I wanted to make. Let us work it all together and get a better use of drugs. I am glad that we have had the debate today, and I am thankful for having had the chance to speak.

[Mr Gary Streeter (in the Chair)]

Thank you, colleagues, for your co-operation. We now turn to our winding-up speeches, and it is a pleasure to call first, for the Scottish National party, Marion Fellows.

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[Marion Fellows]

Where cost is a factor in prescribing drugs it is important that we consider ways of lowering it. The pharmaceutical price regulation scheme could be used. When a drug’s spending threshold is reached, a rebate is paid. In England, it goes back to the Treasury but in Scotland it goes on to further new drugs.

The delisting of cancer drugs because of cost causes untold heartbreak to patients and families—the very people we all represent—and the time has come to find a way of making new drugs accessible to, and affordable for, the NHS by considering arrangements such as multi-year budgeting, which would allow for a lower initial price. Pharmaceutical companies would hopefully be open to that in exchange for getting their drug into use at an earlier stage.

It is important to understand that drug companies fund drug development research for years before they even know if the drug is worth licensing. Many potential drugs fall by the wayside and, as the public purse would never be able to fund such a level of risk, it is necessary that pharmaceutical firms see a return on their investment, to secure ongoing research. That goes back to why some drugs are delisted because of their cost. However, there must also be recognition of the support provided by universities in Northern Ireland and Scotland, and in England, which get Government funding to help towards researching new drugs.

Off-patent drugs can also be used in cancer treatments, usually through repurposing. It is important that we consider that, as it could also lead to a cost—[Interruption.] I am sorry, I will just wind-up my speech. Some of the barriers to treatment can, however, be broken down through negotiation between all interested parties. The aim would be a system that worked equitably for all stakeholders, from patients, doctors and the NHS to Governments and the pharmaceutical industry.

[Mr Gary Streeter (in the Chair)]

As a Front Bencher, the hon. Lady has 10 minutes if she wants them, so she should need not rush her important peroration.

[Marion Fellows]

It is fine. Thank you, Mr Streeter. I managed to get through my speech, with a rush at the end.

[Mr Gary Streeter (in the Chair)]

Thank you very much. I call Andrew Gwynne.