Paediatric Cancers of the Central Nervous System

Gareth Snell Excerpts

Monday 22nd October 2018 Commons Chamber

[Steve Brine]

I will look into that. The late Baroness and I talked about exactly that subject. I do not think it is so much about ethics; I think that this must be clinically led. There is a great deal of debate in the clinical cancer community about the toxicity of concurrent treatments. However, I take the hon. Gentleman’s point about the costs, and the importance of supporting parents who must make decisions which are hard enough when people are making them for themselves.

My hon. Friend the Member for Sleaford and North Hykeham (Dr Johnson) mentioned an all-party parliamentary group of which I was a member before I was a Minister. I take all-party parliamentary groups so seriously because I used to lead loads of them. I spent hours writing reports, and, dare I say, I wish that they were sometimes taken as seriously as I take such reports.

It is in all-party parliamentary groups that a lot of good work goes on in the House. Opposition Members, who are not in government at this time, have a huge role to play in moving the dial. The smart Ministers are the ones who say that they do not know everything. The lines that the civil service gives them are often great, but they are not the be-all and end-all. I see APPGs as a brilliant and rich vein of knowledge for me, and I learn a lot from them. So yes, I will look out for my hon. Friend’s work in Together for Short Lives.

My constituency contains one of the best children’s hospice trusts, Naomi House and Jacksplace. My heart goes out to the child hospice movement and my respect for it is ample, and what Together for Short Lives does to represent that movement is incredible.

[Gareth Snell (Stoke-on-Trent Central) (Lab/Co-op)]

There is also a fabulous children’s hospice in Stoke-on-Trent, the Donna Louise Trust, which goes above and beyond its remit to support not just children with life-limiting conditions, but their families. Most children’s hospices depend almost 100% on charitable giving and fundraising to undertake such work. Should not we, as a society, be considering that, and should not the state have a role in helping to provide the service when it is needed?

[Steve Brine]

There is a role for the state, but the hospice trust in my constituency told me many times that the last thing it wanted was to be 100% reliant on the state. It does not want to be an arm of the state; it enjoys its charitable status. I remember taking delegations from Naomi House, and from the sector, to meet David Cameron when he was Prime Minister, and I think that we could do a lot better in relation to the specialised commissioning of these services. It is still too confusing and too confused, and still too patchy from clinical commissioning group to clinical commissioning group. We are determined to do better in that regard.

Before I went off on a tangent, I was talking about awareness of childhood cancers, which a number of Members mentioned. We must improve awareness of cancer, full stop. I am very proud of Be Clear on Cancer’s “blood in pee” campaign, which is part of my brief. However, as someone who has young children, I know that the challenge is striking the balance between educating children about the warning signs of cancer and frightening them about a risk that is relatively low at their age. My motto would be that the best must not be the enemy of the good.

A number of Members will know about the work of the Teenage Cancer Trust and CoppaFeel! The hon. Member for Bristol West certainly does, because of the work that she has done in relation to breast cancer. Coppafeel!—I still think that that is the best name for a charity that I have heard since I have been doing this job—is run by Kris Hallenga, a brilliantly brave young lady who has terminal breast cancer. It ran a superb cancer awareness campaign in schools, about which I have talked to secondary schools in my constituency. It is sensitive and evidence-based, and pitched very appropriately.

I recently took both those charities to discuss their campaigns with the Minister for School Standards, my right hon. Friend the Member for Bognor Regis and Littlehampton (Nick Gibb). As the House will know from a statement made by the Secretary of State before the summer recess, the Department for Education will be consulting on its health education guidance until 7 November. I encourage charities, all-party parliamentary groups and parents to put forward their views on how we might go further to educate children about cancer. That is critical if we are serious about prevention, which we are.

Let me end by putting on record my tribute to the NHS doctors, nurses, support staff and charities, and our colleagues in the wider cancer community—Team Cancer, as I call it—who work so tirelessly every day to ensure that our constituents, and thousands of children like Cian, benefit from the support and the expertise that give them a chance of recovery and a full life. They are true heroes. They are the ones who will oversee the potential for huge progress in the next 10 years on the cancer diagnosis, treatment and support that we hope to see.