Neuropsychiatric Conditions: PANS and PANDAS

Debate between Freddie van Mierlo and Nusrat Ghani

Thursday 25th June 2026 Commons Chamber

[Freddie van Mierlo]

I wholeheartedly agree with the right hon. Gentleman. There are very few downsides of prescribing an antibiotic, especially in this instance, given the seriousness of the condition. As he says, there is really no good reason to withhold this medication.

A second challenge facing families is the impact on a child’s ability to participate in education, as they miss months of school because they are too unwell to attend. That not only affects their learning but limits opportunities to socialise, make friends and have a community beyond home. Every child has a right to an education. PANS/PANDAS does not limit ambition or ability, but our education system is placing limits on children with the condition. Section 19 of the Education Act 1996 is in place to stop that happening, and it requires local authorities to arrange suitable education for children who cannot attend school due to illness. However, the provision is not always effective for children living with PANS/PANDAS, and parents still need to be advocates for their own rights, rather than being proactively told them and guided through the process.

There is a wider point. Families are often left fighting for support from multiple systems at the same time, including healthcare, education and local authorities, while trying to take care of a very unwell child. It is the last thing they need. There are steps that the Government can take to limit the challenges. First, PANS/PANDAS must be researched in greater depth. It is currently unknown how many people are affected by PANS/PANDAS in the UK, and there is no official guidance on the diagnosis and treatment of those conditions in the NHS. Secondly, we need training of health professionals to recognise and treat the condition. PANS and PANDAS are conditions with a high risk of long-term disability, exclusion from society and failed education. Families express that if only their children’s condition had been recognised sooner by health professionals, it could have had a significant impact on their child’s wellbeing and outcomes.

Thirdly, we must improve the support offered to children in education. The publication of local authority guidance is anticipated this summer, and it is important that it ensures that schools and services meet their statutory duties for children with PANS/ PANDAS. Thousands of families are fighting for support from multiple systems while taking care of unwell children. It is time for the Government to do their part, and eliminate the barriers to diagnosis and treatment for those living with PANS/PANDAS.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

Albie is a superstar, as is his mum!

I call the Liberal Democrat spokesperson.

Sir David Amess Adjournment Debate

Debate between Freddie van Mierlo and Nusrat Ghani

Thursday 12th September 2024 Commons Chamber

[Freddie van Mierlo (Henley and Thame) (LD)]

That was very well pronounced, Madam Deputy Speaker. I echo the comments about Sir David Amess. I am also grateful to the right hon. Member for Rayleigh and Wickford (Mr Francois) for alerting me to the Westminster dog competition. My two Shiba Inus looking on at this debate will be very excited about that. I congratulate the hon. Member for Doncaster Central (Sally Jameson) on her maiden speech. Her passion for her constituency is clear. I am looking forward to visiting HMP Huntercombe in my constituency and paying tribute to the prison staff there.

I thank my predecessor, John Howell, who represented the constituency for 16 years before stepping down. I am sure that the whole House will join me in wishing him well as he recovers from a stroke. Among his achievements was his commitment to the Council of Europe; he led the UK delegation for many years. It is sad to see Conservative leadership hopefuls now calling for the UK to step back from the Council of Europe by leaving the European Court of Human Rights. That would put us alongside Belarus, Russia and the Vatican as the only non-member European nations.

It is an honour to be the new MP for Henley and Thame, which is a new constituency made up largely of the former Henley seat that was last Liberal in 1910. In the intervening period, the constituency has played host to well-known Members of the House, including, most famously, Michael Heseltine and the former Prime Minister, Boris Johnson. Although they are well-known names, I am very much looking forward to making my own distinct contribution to this House. I can only hope to emulate my relative, Hans van Mierlo, the founder of the Dutch liberal party D66, who exited government more respected and popular than when he entered—a rarity in modern politics. I will not comment on which of my predecessors achieved that feat and which did not.

Thame is one of the two main towns of the constituency, alongside Henley-on-Thames. As well as hosting two stunning, chocolate-box market towns, the constituency is characterised by the Chilterns national landscape and its iconic escarpment, and is bisected by a section of the historic Ridgeway national trail. Henley and Thame is also host to a significant portion of the Oxford green belt, and is criss-crossed by an abundance of well-cared-for villages and hamlets, such as the wonderful Waterstock and Waterperry in the north of the constituency, and the aptly named Christmas Common, which has supplied and decorated Christmas trees for No. 10 for many years. Watlington is the constituency’s lesser-known third town, but is nevertheless known locally for its vibrant high street and welcoming community. It is also the town that I have had the sincerest pleasure of representing as a county and district councillor since 2021 and 2023 respectively.

The Rivers Thames and Thame and their chalk stream tributaries define not only much of the physical landscape of the constituency, but the communities that live there. Henley is, of course, home to the annual royal regatta, which fills residents with pride. This year, there is much to be proud of as we welcome our Olympic and Paralympic heroes back to Oxfordshire. In recent years, however, the river has been filled with something altogether more sinister. Rowers treat the water as a toxic substance, meticulously cleaning hands and covering mouths while they row, but that is still not enough to stop the steady flow of reports of serious illness following encounters with the waste-filled water. The shameful sewage crisis cuts deep in Henley and Thame, with Henley-on-Thames town council recently declaring no confidence in Thames Water in a precedent-setting vote. I join the council in declaring no confidence in Thames Water in this Chamber, and call for proper root and branch reform.

I am honoured to represent RAF Benson and its residents, and I pay tribute to the men and women of the armed forces who serve this country so ably. The constituency has a considerable and proud military history that dates back to the battle of Chalgrove field in 1643. Exactly 300 years later, construction started on Chalgrove airfield, from which reconnaissance missions were flown in preparation for the invasion of occupied Europe. Later, US army Pathfinders set off from Chalgrove, dropping into Holland as our allied forces sought to liberate my father’s home town of Arnhem in Operation Market Garden. That same airfield now hosts the world’s leading manufacturer and tester of ejector seats and fighter aircraft. Sadly, the airfield was sold off to Homes England under the Conservatives and forced into an unpopular local plan as a site allocated for a new town. I will continue to support residents in their fight to keep Chalgrove a village and to protect its heritage in defence.

I close with a few words of thanks to my wonderful wife, who has put up with so much from me as I set about reversing 114 years of Conservative rule in Henley and Thame. I feel extremely privileged to stand in this Chamber, but whatever the future holds, I will have no greater privilege than being married to my wife. Having committed that sentiment to the public record, I trust I have now corrected my failure to mention her in my 6 am acceptance speech.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

I am not sure that is the get-out clause the hon. Gentleman is hoping for. I call Phil Brickell to make his maiden speech.