Independent Living Fund

Debbie Abrahams Excerpts

Wednesday 8th July 2015 Westminster Hall

[Nic Dakin]

That is very much part of the issue at the moment, and I congratulate my hon. Friend’s council on being one of those that are making the right stand.

Disabled People Against Cuts, which organised the demonstration last week, has argued:

“At the very minimum the ILF funding should be ring-fenced for the continuing care and support of existing ILF recipients when funding is transferred to Local Authorities and devolved administrations”.

That is not being done and, in an age of austerity and deepening cuts to local authorities, the funds will get lost in the wider budget. That is the key and crucial fear.

DPAC sent freedom of information requests to 151 different local authorities, asking how many are ring- fencing the funding. The response showed that only 21.43% were doing what the council in my hon. Friend’s constituency is doing, whereas 50% said they were not doing that. At the time they were asked, 28.57% still had to decide what they were going to do.

What will further budget cuts bring? As of now, Ashley is allowed to keep his carers, but in a year’s time, will that change? Will his family have to deal with a succession of strangers who do not have time to get to know them and understand their needs?

Leonard Cheshire Disability published a report in 2013 stating that in England, 60% of councils use 15-minute visits, which are not long enough to provide adequate care, with disabled people having to choose whether to have a drink or go to the toilet. Hopefully, things have improved since then, but it is understandable that such reports fuel ILF recipients’ concerns. Those fears are backed up by Disability Rights UK, which made the following observations last week on the eve of the fund’s abolition:

“The monies being transferred from the ILF to local authorities will not, in most areas, be ring fenced meaning that the money can be spent according to local decision rather than necessarily on those in receipt of ILF funding.

There is currently no indication of whether funding for ILF recipients will continue to be transferred from national to local government beyond 2015/16.

The level of social care funding in real terms has, and is likely to continue to be, cut overall outweighing many times the additional funds being transferred from the ILF.

The consequences are that some disabled people in receipt of ILF funding will no longer receive any support at all; and others will find their support package reduced.

We want to see equity of support that achieves independent living across all impairments and age groups—closure of the ILF in current conditions will not achieve this.”

That summarises the strong concerns out there in the community. Scope, Leonard Cheshire Disability, the Spinal Injuries Association and various trade unions are among many other organisations that share those concerns.

[Debbie Abrahams (Oldham East and Saddleworth) (Lab)]

My hon. Friend is making a very powerful speech. Oldham, my constituency, is another local authority area that is promising to support families and make sure that the ILF budget is ring-fenced, but I am aware that that is not happening elsewhere. This is not only about the person who is disabled, but about the families, particularly when parents are the carers. They are extremely worried about the uncertainty, and hopefully the Minister will be able to respond to that point.

[Nic Dakin]

My hon. Friend puts her finger on the heart of the issue, which is the high level of uncertainty. Let me quote some heart-wrenching comments from ILF users and their families. They illustrate the concerns out there very well:

“I am really terrified of losing my home and being forced into residential care…I have never been so worried and scared of my future without the ILF...We are locked in a prolonged period of insecurity of worrying what is going to happen. We are all only too aware of how hard strapped local authorities are and the temptation to use ILF monies for purposes other than care support for current ILF recipients…The current situation is greatly affecting our health with increased stress levels and sleepless nights a regular feature of our current lives. Not knowing what will happen, how this may affect the team of personal assistants we employ to support our daughter and whether we will receive any respite care once the fund closes in June only adds to our anxiety.”

Finally, a user said:

“I fear I will have my care time cut, and become a prisoner in my own home, unable to go to the toilet, go to bed, eat and drink when I choose—I fear my choice will be taken away. I fear being socially excluded and losing touch with my family and friends. I fear not being able to go to all the hospital appointments I have to attend. I fear I will lose my independence.”

That is the heart of the problem—loss of independence. The ILF has given severely disabled people real independence in their lives. At this point of change, and despite all the assurances that there have been in the system and the genuine messages of support from all the authorities, that concern is still very much there, and what is happening at the moment has not allayed the concern.

As those fears and worries illustrate, there is a real danger that attempts to save some money in one area, the ILF, will end up costing the state more in another area—the NHS. During the election campaign, when asked directly by one of the ILF recipients, the Chancellor of the Exchequer insisted that the Government would transfer all the ILF money and that there would be no cuts in their budgets. When pressed further, he made a commitment that money would be there in future years. So the Chancellor, who has been making the news today, is on the record on this issue. It is the duty of the House and the Minister to ensure that he keeps his word, so my questions to the Minister are as follows.

First, in the light of that, will the Minister discuss with the Chancellor how he intends to deliver on those promises, and will he report back to Parliament on the Chancellor’s response? Secondly, will the Minister be in contact with the 78% of local authorities that have said either that they will not ring-fence the money or that they are not sure whether they will ring-fence it, and are therefore not delivering on the Chancellor’s promise, and will he take steps to ensure that they do deliver on it? Thirdly, will he ask local authorities to report to him on what contact they have had with ILF users in their area and what feedback they have received from them in relation to satisfaction with the transfer? Finally, will the Minister make a commitment today to report back to the House in a year’s time on the impact of the transfer of the ILF to local authorities on the lives and wellbeing of recipients?