Dementia Support: Hampshire Debate
Full Debate: Read Full DebateDamian Hinds
Main Page: Damian Hinds (Conservative - East Hampshire)Department Debates - View all Damian Hinds's debates with the Department of Health and Social Care
(1 day, 9 hours ago)
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Liz Jarvis
I absolutely agree with my hon. Friend. When my mum was first diagnosed with dementia, one of the most important things for her was going to Singing for the Brain sessions, where people are encouraged to remember old songs. That was brilliant for her, but obviously it is not enough. When the condition starts to progress, it becomes harder and harder, yet the care that is needed is often not available, as I am setting out.
In a similar vein to the hon. Member for Winchester (Dr Chambers), it is important that families know where to access these voluntary sector services. The East Hampshire dementia services directory is a great initiative, as are voluntary groups such as Dementia Friendly Petersfield and Dementia-friendly Alton. The Alton group now has its own dedicated building and a full programme of activities; I have invited the Secretary of State to visit, as it is an interesting initiative to see. Will the hon. Lady join me in commending all the wonderful voluntary sector groups?
Liz Jarvis
Absolutely. Community-based activities that keep people active, stimulated and social must be protected and expanded. Those services delay deterioration, reduce hospital admissions and improve quality of life for people living with dementia, and for their fantastic family carers.
At present, there is no Admiral nurse service in Eastleigh, leaving my constituents reliant on acute services, such as Wessex neurological centre or Winchester hospital. Admiral nurses provide specialised, dementia-specific care, offering expert guidance and continuity to families navigating a terrible disease in an increasingly complex system. Without that local, in-person support embedded in community care, families are more likely to face prolonged uncertainty at the very moment when specialist help would make the greatest difference. I urge the Government to adopt a new national dementia care pathway, backed by clear minimum service standards, that includes guaranteed support across the entire journey—from pre-diagnosis through to end-of-life care—standardised wait times and a meaningful post-diagnostic support plan for every person with dementia.
Improving dementia outcomes must also include wider access to new treatments. The National Institute for Health and Care Excellence has ruled that the drugs lecanemab and donanemab will not be provided on the NHS due to their cost. As a result, people with early stage Alzheimer’s disease in England and Wales will not have NHS access to medicines that have been shown to slow the progression of the disease. Will the Minister support an update to the NICE guidelines to reflect the growing pipeline of disease-modifying treatments, so that people who cannot afford to pay privately do not have to face long waits for innovative treatments?
I also highlight the need for greater consideration of the specific needs of people living with early onset dementia. According to Dementia UK, an estimated 70,800 people in the UK have early onset dementia, where symptoms develop before the age of 65, but diagnosis can take significantly longer for younger people and many are left with very limited post-diagnostic support. At their most vulnerable, they are forced to navigate health and social care systems that are designed for older people and take no account of mid-life responsibilities, such as dependent children, while facing the financial and psychological consequences of leaving employment early, as well as facing a terminal illness. That is why every integrated care system must be required to develop a clear, co-ordinated early onset dementia pathway.
We must also address the needs of people living with rarer forms of dementia, those for whom English is a second language, and those, such as veterans, whose dementia is shaped by trauma. I have previously raised the fantastic work carried out by Veterans Dementia Support UK in my constituency, which provides vital help to former service personnel and their families, and recognises the complex relationship between dementia, post-traumatic stress disorder and past trauma. That specialist understanding must be reflected across the system.
Care home quality and workforce training are also critical. An estimated 70% of care home residents aged over 65 are living with dementia, yet only around a third of staff receive any dementia training. A statutory duty for dementia training across all Care Quality Commission-registered care providers is long overdue.
Dementia care is not just about systems, funding and targets, but about people, and what we would want for our own parents, partners and friends. I have seen the difference that inclusive, enriching care makes, whether through meaningful activities, music, poetry, or simply someone taking the time to understand the person behind the diagnosis. On constituency visits to Sunnybank House care home in Fair Oak, Brendoncare Knightwood care home and the HC-One Chandlers Ford care home, I have witnessed the professionalism and commitment of staff first hand. It is always a privilege to join Dementia Support Hampshire and Isle of Wight for its Christmas carols at St Andrews church in Eastleigh. It is a reminder that joy, connection and matter right to the end.
With our rapidly ageing population, it is crucial that more support is given to families coping with dementia, so that they do not have to jump through endless hoops to get support, and that those living with dementia are treated with the specialist care, compassion and dignity that they deserve.
I have previously spoken in this House about the impact of dementia and Alzheimer’s on my family and how, when a loved one is diagnosed with that terrible disease, you lose them twice. My constituent Nicola, whose father has dementia, has asked me to urge Members to
“think about how they would feel if it were happening to their loved one and how they would feel if their loved one had no-one to advocate for them to get the right help and support.”
I urge the Minister to listen to the experiences of families in Hampshire, to act on these recommendations, to work closely with Alzheimer’s Society, Dementia UK and Alzheimer’s Research UK, and to ensure that dementia care in this country is finally given the priority it demands.