Seriously Ill Children: Financial Support for Parents

Debate between Chris Hinchliff and Chris Bloore

Tuesday 25th March 2025 Westminster Hall

[Chris Hinchliff]

The hon. Lady eloquently highlights the importance of this campaign. I wholeheartedly agree with her.

The benefits system available to parents in these situations leaves a gaping hole for the families of seriously ill children, who find themselves with nowhere to turn, grappling with financial ruin, growing debt or the devastating thought of not being able to be at their child’s bedside when they are needed most. The British Journal of Social Work reports that families in medical crises without immediate financial support often face long-term debt, mental health struggles and career disruption, even after treatment ends.

[Chris Bloore (Redditch) (Lab)]

I thank my hon. Friend for securing this critical debate. He mentions the significant financial impact on families who are trying to make sure their children get the care they need. Statistics from Young Lives vs Cancer, and from my meetings with constituents in Redditch and the villages, show that some parents actually miss getting their children to appointments because of the financial challenges they face. This is not just about what happens to their long-term financial security; children are missing important appointments because their parents cannot afford to get them there.

[Chris Hinchliff]

I agree that the gaping hole in our benefits system is devastating for families. My hon. Friend once again highlights how incredibly important it is that the Government resolve this as a matter of urgency.

Over 80% of surveyed families experienced a significant decline in household finances due to their child’s illness. The core principle underpinning our welfare state is that nobody should have to consider their bank balance when faced with challenges not of their own making. Benefits exist to ensure that when life deals a cruel hand, its cost does not crush those who are already burdened. Instead, we share the responsibility across society, leaving nobody behind.

There is no group more deserving of support than families caring for seriously ill children. If, as a society, we fail to address this gap and spread the burden, we betray the very principle on which our welfare state was founded. Hugh’s law offers a straightforward solution to plug this gap, by providing immediate, non-means-tested financial support to parents of children diagnosed with life-threatening illnesses. It would provide a grant of £750 a month for up to three months, activated from the day of diagnosis. Eligibility would be limited to children diagnosed with life-threatening or chronic conditions requiring hospital care. Applications would be completed by the healthcare provider, cutting out needless stress for families and meaning no more 40-page forms.

There are examples of similar policies across the world, including in Sweden, France and Canada, where the employment insurance family caregiver benefit provides financial support to parents caring for a critically ill or injured child under 18 years old. Benefits are paid for up to 35 weeks, helping families to manage the financial strain while focusing on their child’s care. It is estimated that Hugh’s law would have an annual cost of just £6 million to £7 million and would support around 4,000 families annually.

To put that into context, the figure represents just 0.0025% of the Department for Work and Pensions’ 2023-24 budget. Given the unimaginable challenges these families face, caring for a seriously ill child while grappling with emotional strain, financial hardship and uncertainty, it is clear that the cost of such support is minuscule in comparison with the burden they carry. Life does not stop when a child gets sick. In fact, families often face higher day-to-day costs that impact them immediately—not in 90 days’ time, when support might become available.

Hugh’s law would offer much needed financial relief, allowing parents to focus on what matters most, being by their child’s side, without the crushing weight of financial anxiety. We have heard about the immense challenges faced by families caring for seriously ill children, which go beyond emotional strain to include financial hardship and bureaucratic obstacles. The tireless advocacy of Ceri and Frances, through their It’s Never You charity, has highlighted a gap in our welfare system that we simply cannot ignore.

Hugh’s law offers a practical and compassionate solution: immediate support to parents with a child diagnosed with a life-threatening illness. Some 70 MPs signed my letter to the Prime Minister, and I have since written to the Department for Work and Pensions and met the Minister, who advised that the policy could be pursued with the Department for Business and Trade. I have now requested a meeting with the relevant Minister there.

My request to the Government and the Minister today is simple: embrace this campaign and take practical steps to make Hugh’s law a reality. I will meet with any Minister necessary to advance this policy, but the Government must do the right thing and work proactively to turn Ceri and Frances’s inspiring campaign into law.