Stillbirth

Chris Heaton-Harris Excerpts

Wednesday 18th May 2011 Westminster Hall

[Chris Heaton-Harris (Daventry) (Con)]

It is a pleasure to serve under your chairmanship, Mr Crausby. I have never been in this situation before, so I hope that you will treat me gently in the course of the next half an hour.

I am grateful to have the opportunity to raise this important issue in Westminster Hall. Stillbirth is a sensitive, painful subject that has a lasting effect on thousands of people each year, and I am not convinced that enough is being done to support the families of stillborn children. I am concerned that the UK seems to be failing to reduce the number of stillbirths that we have each year.

A few years ago, a couple who are good friends of mine were joyfully awaiting the birth of their second child. The mother had what can only be described as a normal pregnancy. When the baby was full term, she had some intense pain in her stomach and decided that it would be wise to head to the hospital. Rather than being admitted, she was sent home. When she returned a day or so later, she was told that the baby she had been carrying had died.

Who knows what might have been different, had the circumstances a day or so previously been different? That is not the point of this debate, but what happened then made up my mind that, should I ever be elected to this place, I would do my best to ensure that, in future, no parents would have to suffer the same fate as my friends. Unfortunately, due to staffing problems, the couple were sent home on that day, with the deceased baby still inside the mother. They were asked to return after the weekend for the delivery of their son.

Clearly, that is not an acceptable or humane way to treat someone who has received the worst of all news. It was, and still is, impossible for any of us here to know or have the slightest clue about what my friends were feeling at that time, and what so many parents like them go through each day. It is not a small number of families who go through this. Recent research shows that 11 babies are stillborn every day in the United Kingdom, averaging out as one in every 200 babies born, or 4,100 babies a year.

Some parents I have spoken to have had only the nicest things to say about how they were treated following the stillbirth of their child. Others have stories that are not so good, which is why I have been trying to secure this debate for months. I want to impress on the Minister, whom I know is very sympathetic, the need to help spread best practice across the health service when it comes to stillbirth. Sands, the stillbirth and neonatal death charity, has developed comprehensive guidelines for professionals. However, I am not confident that that best practice is used across the whole of the NHS.

I acknowledge completely that we have come a long way in how we deal with stillbirth. There is a lady in the Public Gallery here today, Angela, who has, alas, experienced some of the worst of what used to happen not so many years ago. She created a group, I Have Rights Too, to help other parents after her baby, Natasha, was born and passed away almost immediately. Born a Catholic, Natasha was denied the last rites, and her parents were not allowed to hold her. At least one of her organs was removed without her parents’ knowledge, and she was buried in a mass grave. That is what some would call a legacy case, and I would appreciate it if one of the Minister’s officials helped Angela finally to get the answers she needs as a mother, in order to come to terms with what happened a few years ago.

Some of the things that happened to Natasha no longer happen. The Human Tissue Act 2004, the Human Tissue Authority Codes of Practice (2006), which apply in England, Wales and Northern Ireland, and the Human Tissue (Scotland) Act 2006, which applies in Scotland, mean that parental consent is required before any organs are removed from a stillborn baby. In most cases now, funeral arrangements for a stillborn baby are a matter of decision for the parents, or by the relevant health or local authority if the parents are unable to meet the cost. However, public graves for the interment of stillborn and young babies remain to this day in some areas.

Another matter that causes great anxiety to parents who have a stillborn child is certification. Parents I have been in contact with have been very distressed that they cannot legally register the birth of a baby born before 24 weeks who did not breathe or show any signs of life. While I understand that some parents would be distressed at the possibility of having to do that, I wonder whether we could have a more flexible system whereby parents have the choice of a formal birth certificate, a local certificate issued by the hospital or—if they chose it—nothing. In modern society, I believe we have the ability and sensibility to deal with the matter of certification, which is very important to most of the parents I have spoken to, because it is a simple process of formally naming their deceased baby.

Parents should be actively encouraged to see, hold and care for their stillborn child. From all the various examples I have heard, while heartbreaking at the time, it seems to help parents come to terms with their loss much quicker than they would otherwise have done. One of my correspondents on this subject has suggested that where parents do not wish to do that—with the emotions running through them at the time, some parents feel confused and do not know how to deal with these matters—staff should take photos of the baby while it is being washed and dressed, so that, should the parents change their mind at a later date, pictures of their child are available.

Without a doubt, the hardest thing for anyone to do when a family member passes away is to say goodbye. Saying goodbye in these circumstances should be done in the parents’ own time and in their own way, and they really should have expert support to help them decide what is best for them. Leaving the hospital, without the baby the parents expected to be taking home, is a terrible thing for anyone to go through. From what I gather, most maternity units now deal with this in a professional and responsible fashion, and should be commended for the way they handle this circumstance. Invariably, in the weeks after a stillbirth, the parents have to go back to the hospital where their baby was delivered for check-ups and medical tests. Many parents have suggested to me that more consideration should be given to subsequent hospital visits, and that space for those appointments should be made available away from the maternity unit. Quite often, parents have to go back to the place where they have just had such a distressing occurrence.

I would like to thank Melanie Scott, whose son, Finley, was stillborn, and who received a lot of quality support. She has written a book about her experience, and feels that the support she received allowed her and her family to heal at the time, and to continue to heal. She now helps other families who have had the same experience.

Finally, I would like to come back to the issue of the number of stillbirths that occur each year. As I mentioned earlier, more than 4,100 babies a year are stillborn; that is 11 a day. That number is simply too high. I have been told that approximately 30% of stillbirths remain unexplained, and that various factors play into the deaths of the remaining 70% of those babies. I know that the Minister is concerned that the UK is slipping down the league table. According to a recent study in The Lancet, the UK has one of the worst records for stillbirths, ranking 33rd out of 35 high-income nations. While it is important to acknowledge that all women are vulnerable, we need to work out why the women in our nation may be at a higher risk of stillbirth, and what we can do to change that fact. There are some troubling regional differences in the percentage rates of stillbirth across the UK. How can we explain the 33% difference between the south-west, with the lowest rates, and the east midlands, of which my constituency is a part, which has the highest rates?

I have had discussions with people who point out that in recent years, Britain has become one of the unhealthiest nations in Europe. We are the most obese nation in Europe, and we are the heaviest drinkers. As life expectancy has increased, more British women are waiting until later in life to become first-time mothers. Those could all be contributing factors to the horrid statistic of 11 stillbirths a day.

What research has been done into the reasons behind our high stillbirth rate? Why is there so much regional variation? More than anything, I want the Minister to assure me and the House that the Government have an ongoing commitment to reducing the number of stillborn children throughout the United Kingdom, and that he will do his best to ensure that best practice, which does exist, gets spread through the whole NHS, so that eventually, fewer parents need suffer this terrible fate.