Caroline Johnson
Main Page: Caroline Johnson (Conservative - Sleaford and North Hykeham)Department Debates - View all Caroline Johnson's debates with the Leader of the House
(5 years, 2 months ago)
Commons ChamberRead Full debate Read Hansard Text Read Debate Ministerial Extracts
Mr Speaker
It is a question of a medical doctor or a doctor of philosophy. I think on this occasion I will take the medical doctor. [Interruption.] The hon. Member for East Worthing and Shoreham (Tim Loughton) is a very distinguished fellow, but he is not a doctor. We will come to him in due course. I call Dr Caroline Johnson.
Dr Caroline Johnson (Sleaford and North Hykeham) (Con)
I know how hard my right hon. Friend works for his constituents, but perhaps there is one he has worked especially hard for, and that is his constituent Max, who has Batten disease and needed Brineura, an important drug for this rare and very unpleasant condition, which ultimately would lead to his death if he did not have the drug. My right hon. Friend asked an urgent question on this before the summer recess, and just after the Prorogation ceremony we heard from NHS England that this drug will now be available. Does he feel that a debate on the rare diseases protocol would be beneficial in ensuring that other people do not have to wait as long as Max?