Invisible Disabilities and Accessibility Challenges

Carol Monaghan Excerpts

Wednesday 5th June 2019 Commons Chamber

[Angela Crawley (Lanark and Hamilton East) (SNP)]

It is a pleasure to speak in this debate. I am grateful to each and every one of the Members on both sides of the House who have spoken so far, but I am particularly grateful to the hon. Member for East Lothian (Martin Whitfield) for initiating this Back-Bench business debate. While—sadly—there is not much in the way of business going on in the House, I think it absolutely right that a debate of such importance take place on the Floor of the House rather than in Westminster Hall, as is so often the case.

I also thank the hon. Member for East Lothian for his passionate words about Grace and her mum Judith, and their campaign in respect of Grace’s son. In too many cases, younger and younger people are experiencing disability. The fact that across Scotland a sign can be seen saying “Not all disabilities are visible” is encouraging to many people who now feel that their disabilities are recognised.

I am grateful for the opportunity to speak up for many of my constituents who face hardship, extra costs and discrimination owing to invisible disabilities or illnesses. It is extremely important for us to recognise in this place that invisible disabilities can have a powerful impact on people’s lives and livelihoods. I think that that has been recognised throughout today’s debate, but we need to ensure that such conditions are fully recognised and respected in everyday society and the workplace. As we heard from the hon. Member for Chatham and Aylesford (Tracey Crouch), celebrating disability in sport is just one example of the ways in which we can ensure that society as a whole recognises the abilities that many people have, while also having a disability. The way in which society views disabilities such as dementia, Parkinson’s and autism often contributes greatly to people’s experiences of disability, and can also be stressful for the parents of young children.

There are many misconceptions about what a disabled person is “supposed” to look like, but many disabilities do not present themselves in an obvious physical way. That includes physical health conditions and neurological and mental health issues. My hon. Friend the Member for East Kilbride, Strathaven and Lesmahagow (Dr Cameron) told us that her own husband had suffered a head injury. That is another disability that is not seen every day, and I commend my hon. Friend for sharing her experience with the House.

Recently, in this place, I have been making the case that invisible conditions such as fibromyalgia and arthritis do not receive the recognition, the attention or the levels of support that they deserve. The Minister is probably tired of hearing the same voices arguing the case, but I think that Government Departments could do more to recognise not just fibromyalgia and arthritis but all the illnesses, diseases and symptoms that are not currently recognised within the departmental framework.

[Carol Monaghan (Glasgow North West) (SNP)]

I congratulate the hon. Member for East Lothian (Martin Whitfield) on initiating the debate.

ME is another of the invisible conditions that are not receiving enough recognition. I understand that the Minister and I are to meet in an couple of weeks to discuss this very issue, but does my hon. Friend agree that such invisible conditions are often not recognised in work capability assessments? Some sort of indicator would be helpful in those circumstances.

[Angela Crawley]

I wholeheartedly agree with my hon. Friend. As the Minister knows, I have highlighted that issue time and again during Westminster Hall debates in relation to ME, fibromyalgia, arthritis and other lesser-known illnesses. The hon. Member for Ellesmere Port and Neston (Justin Madders) gave his own personal account, speaking passionately, on behalf of his wife, about fibromyalgia.

What has not been covered so far today, although I assumed that we might hear about it at some point, is the fact that conditions such as anxiety and depression are also deeply misunderstood, although they are often as disabling as a physical illness. Those invisible illnesses exemplify the way in which conditions without obvious symptoms can escape the untrained eye while wreaking havoc on people’s lives, but that, too, has not been recognised by the Department for Work and Pensions.

Anxiety and depression are not easy conditions to talk about, and many men suffer quietly with symptoms because they are too afraid to speak up. I think it incumbent on everyone in the House to speak up themselves, and to ensure that people know that it is okay to ask for help. That is because, sadly, the stigma that still exists around too many illnesses can make it very distressing to have to explain and justify the additional needs to loved ones or family members, never mind employers. I know from personal experience of losing a loved one to mental ill health that it is essential that these people have the recognition and support that they deserve, because I would hate to see more people lose their lives unnecessarily.

I have also recently tried to highlight how the cuts to disability benefits by this Government are making it more difficult for disabled people to live independently and with dignity. I see the Minister roll his eyes and I appreciate that he is just one of many Ministers who have taken on this departmental responsibility and I have every sympathy as he has a large ship to steer in the right direction, but the fact of the matter is that the DWP has failed to recognise many of the disabilities today, and if we are going to sit in this House and debate the subject it is only right that we address concerns about things that reside in Government Departments.

Many diagnosed with disability and a persistent long-term health condition can be empowered and enabled to seek the support they require to live a fulfilling and long life, but the reality is that there are higher costs to living with a disability. Many are unable to work, and the difficulties they face in navigating the welfare system can be seen in all our casework. Whether the Minister is willing to acknowledge that is another matter, but it is a simple fact that if we went to any case officer in any constituency we would hear the same problems. Disabled people face overall higher costs than non-disabled people, and the cuts to their income can be devastating because they often do not have savings; they do not have a fall-back. Many do not have a support system, so what does the Minister propose they do if the last people they can turn to are this state and this Government and they are not getting the support they need? The bottom line is that shaking our head and saying it is not the case is simply not good enough. We perhaps only hear the worst of cases, but if we are just hearing some of the worst cases I dread to think how many other people do not come to us, do not know how to be advocates for themselves, and do not know how to get the support they need. I dread to think how they experience the DWP service.

Where there is a gap that is supposed to be plugged by benefits such as the personal independence payment, people instead face the blatant discrimination of a disability assessment. Is it really right that someone should face a panel of people and a medical practitioner to prove an already diagnosed medical condition? Is it really necessary when they have a diagnosed medical condition to then further prove that medical condition to other health practitioners who are often not as qualified as those who made the original diagnosis?

The system is not working for people who need help, and that is because of the ideology of this austerity-driven Government. They are ultimately cutting on the backs of the poor. In 2016 the Government introduced regulations which specifically excluded people with psychological conditions from receiving higher points in PIP assessments. I appreciate that that was not under the Minister’s stewardship, but consecutive Ministers who have had responsibility for this area have failed to address these systemic issues.

It took a defeat in the courts for the DWP to overturn this practice. Is it right that public money should be spent trying to defend the indefensible? That demonstrates the direction of the Government, their perspective on disabled people, and their contempt for their additional needs. The DWP looks at the needs of disabled people at arms’ length, with assessments contracted to a private company.

While I appreciate that some of the assessors are highly skilled medical professionals who have the empathy required to work in a clinical setting, this is not always the case. Numerous constituents have complained to me of assessors who did not understand their illness and who could not imagine how difficult life is on a bad day with fibromyalgia or depression. They were simply not listened to, and the report they received simply did not reflect their experience of the assessment. Assessors are simply not trained in spotting these illnesses, and that is reflected in the points awarded in their assessment reports. The result is that people in genuine need either have to put up and shut up or they challenge the outcome through a gruelling mandatory reconsideration and appeals process. The very fact that the outcomes are often overturned at that stage implies that there is a systemic problem with the system. This is a flawed system that needs to be reviewed urgently, and I urge the Minister to take that action.