Ben Coleman
Main Page: Ben Coleman (Labour - Chelsea and Fulham)Department Debates - View all Ben Coleman's debates with the Department of Health and Social Care
(3 days, 23 hours ago)
Commons ChamberI absolutely agree.
In 2023, Devon saw the closure of its dementia advice service after 10 years because of a cut in funding under the previous Government—a decision that left a significant gap in community support across the county. The service offered vital information, practical advice, and tips and strategies on coping with dementia, as well as signposting to legal and financial support, and the closure was a blow to many families already struggling to cope. It is a scandal that Devon’s integrated care board has neglected older adults by cutting a service that was designed to prevent early care home and hospital admission, and to ease pressure on primary care.
However, there is hope on the horizon. Devon has recently developed a new countywide Devon dementia strategy, which aims to bring about real and meaningful change for those living with dementia and their loved ones. Written in collaboration with over 40 organisations, it sets out what is needed in dementia care today and for the foreseeable future, and I commend them for their work. This strategy is vital, and so is the funding to support the measures it highlights. Dementia prevalence in the area covered by Devon’s ICB is expected to rise by 54% between 2023 and 2040, and by then, over 33,700 people in Devon will be living with dementia. Now is the moment to act, to ensure that this strategy is not just a document that sits on a shelf but becomes a driving force for better services, earlier diagnosis and more consistent support.
I would like to briefly share the story of one of my constituents, Michael, to illustrate why this is so urgent. Michael’s wife began showing signs of dementia six years ago and was diagnosed with moderate to severe Alzheimer’s nearly five years ago. As her symptoms worsened, her condition became more difficult to manage, and she was eventually sectioned as being a danger to herself. At that point, the NHS took over her care, and she is now in a home where she is receiving very good care. Michael has nothing but praise for his GP, the older people’s mental health team and his local hospital for their support. However, his experience has highlighted critical gaps in the system. He recalls the complete lack of day care facilities to provide respite before his wife went to hospital and the overstretched system that was unable to assess people quickly or provide necessary help, either at home or in day care.
I am most grateful to the hon. Member for leading this debate so effectively and raising these important issues. She will be aware that three in four dementia carers have no alternative plans in place if they are unable to provide care. Many of them are terrified about what will happen to their loved ones if they are no longer there to provide care, and nine in 10 have already reached crisis point, with burnout and depression. Does she agree that dementia carers need to be fully supported to put alternative care arrangements in place? May I urge the Minister to implement a carers strategy that sets out carers’ rights and what support carers should receive when it comes to alternative provision?
So many thousands of people are doing this care for free, at home, living under this burden and worrying about what will happen if they are no longer there. They deserve recognition and help to put those plans in place, in case something happens to them—that is crucial.
For many families, accessing respite care is a huge challenge. Caring for someone with dementia is often a 24/7 job and is utterly exhausting, yet unpaid carers like Michael are saving the country billions of pounds and are often doing so without the support they need. Michael echoes the calls I have heard in my own family for the Government to do more to support carers by ensuring they have access to regular respite care. We must also urgently examine the funding and availability of care homes that can support high-needs dementia patients.