(3 years, 4 months ago)
Lords ChamberMy Lords, it is nearly 40 years since a group of us women set up our country’s first women’s health advocacy group, with the aim of improving both equality of access for women’s health and prenatal mortality rates for women and babies, in addition to unlocking women’s voices and choices of maternity care. According to the same project, to this day women’s experiences remain poor and unequal.
While we continue to frame minority women, particularly Muslim women, within the parameters of numerous health and social problems, including domestic violence and cultural disadvantages, Muslim women’s presence in the public square remains negligible and they are mostly absent from NHS management and decision-making boards. Some minority women, when they are in such positions, feel so constrained in their advocacy on racism, prejudice and Islamophobia that in order to avoid political rejection they feel unable to effect any meaningful changes for women, who continue to have no voice and to experience generations of poor health and inequalities, as my noble friend Lord Boateng so ably pointed out.
The experience of Islamophobia is deep-rooted, affecting every sinew of politics, policies and, therefore, services. In maternity and care services, Islamophobia has continued to impact the quality of care, attitudes and behaviours for the last five decades. It is so regrettable that women continue to experience these painful inequalities. I do hope the new strategies that the noble Baroness, Lady Jenkin, so powerfully highlighted will speak to all women in all communities.
(3 years, 5 months ago)
Lords ChamberMy Lords, I wish to take a moment to reflect in honour of all those who lost their lives under this Government’s watch and their loved ones who mourn their absence. I want also to record my thanks to all front-line staff for their perseverance during what was a dangerous time.
I too welcome the work of the Care & Support Alliance and place on record my respect for the outstanding advocacy of Carers UK, Rethink and the Disabled Children’s Partnership. I salute the valiant leadership of my noble friend Lady Pitkeathley. I humbly thank the noble Baroness, Lady Jolly, for enabling this conversation.
Speaking as a parent, I can say that caring for someone you love is a lifelong, all-encompassing devotion. According to Carers UK, during the pandemic more than 13 million people provided unpaid care—72% without any break or support. There was a 78% increase in demand for their care, with no response. An estimated 1.2 million carers live beyond poverty. The Government cannot say that they do not know these facts. Even with the time constraint, the detrimental underfunding of social care cannot be overemphasised. It has resulted in an enormous toll on individuals not having their most basic and urgent care needs met, as well as on those who do everything they can for their loved ones.
The system is failing more than 1.5 million of those who need urgent care as a result of government policies and constraint on local authorities. Services are crippled, including voluntary organisations that have been and are a lifeline for the most disadvantaged in our communities.
I wish briefly to speak about the dire situation of hundreds of thousands of families caring for their loved ones with disabilities and autism, which was recently highlighted by the Disabled Children’s Partnership report No End In Sight. I commend it to your Lordships. I have heard first-hand testimonies from several of the parents panel families, who have felt broken, ignored and abandoned over recent years—more so over the past months because they have not received their most basic care services and cannot access what they regard as crucial physical and language therapies and mental health support, with significant adverse consequences for their families’ well-being.
In my social work career, I have had the privilege of managing care homes. I appreciate their invaluable resilience, which was so evident during the early months of the pandemic. I also am fully aware of, have witnessed and have managed at first hand the fallout of the ugliness of abuse of the elderly and the disabled, much of which remains unreported—markedly so in unregulated care homes. Will the Minister assure the House, in the light of the recent case against the National Autistic Society, on what additional safeguards and monitoring are in place to prevent such abuse occurring yet again?
The time for integrated care, free at the point of delivery, is now. As the noble Lord, Lord Forsyth, and other noble Lords have eloquently said, we need political will and leadership, as well as a willingness to work alongside local authorities and leading organisations to cherish the fundamental principles of choice, control and—
My Lords, I am afraid I am going to have to remind the noble Baroness of the time limit for the debate.
Thank you. We want the dignity of independence for those who are living with disability and their carers.
(3 years, 5 months ago)
Lords ChamberI pay tribute to those in the hospitality and related sectors—both those who manage and those who work in it. It has been one of the toughest aspects of this awful pandemic to see these valued and important industries really hammered by the closures that have been necessary to stop the transmission of this awful disease. I hear my noble friend’s message absolutely loud and clear. We are on the final slopes of this journey. We want to ensure that, when we open, we stay open and there is no yo-yoing. That is why we are committed to looking at the data in the run-up to 21 June. His point is extremely well made, and we will definitely take it on board.
I thank the Minister for repeating the Statement and, in doing so, pay my respects to all carers, particularly those unpaid carers, without whom many more may have perished. I have two points. First, how are the Government encouraging GPs and hospitals to monitor and collect information on patients who may be concerned about or reporting long Covid symptoms without knowing it, and those who may be complaining of or experiencing post-vaccination effects? Secondly, now that the JCVI recommendation is being considered for vaccination of 12 to 15 year-olds, the Minister will be fully aware of the major concern aired by parents—who are all over the radio, with their views and questions—feeling confused about informed choices. Can the Minister assure all parents that, if vaccination is approved, they will be given the fullest information available on the potential side-effects, and that no parent who may choose to opt out of the vaccination for this age group will be pressured or demonised?
I am enormously grateful to the noble Baroness for raising in the same breath the importance of secure data arrangements and the question of what we are doing on long Covid, because we could not do what we are doing on long Covid if we did not have access to GP records. The truth is that we are doing an enormous amount. Long Covid, as the noble Baroness knows, is touching more than 1 million patients here in the UK. We have got NICE to take steps to put in place a really clear clinical definition. The NHS has mobilised Covid-specific clinics, which we acknowledge are under pressure but which are an extremely valuable resource for understanding this dreadful condition. NIHR has mobilised research resources, and I pay particular tribute to Great Ormond Street and its CLoCk research project, which is looking at long Covid among children—something which of course concerns us all. Lastly, the royal colleges have done an enormous amount to present both new data and training tools to their members and to feedback information from the front line. Long Covid will be one of the lasting and most concerning aspects of this dreadful pandemic, but we are putting everything we can into dealing with the consequences.
(3 years, 6 months ago)
Lords ChamberMy Lords, I do not think I need to speculate on this matter; of course social care will form part of the inquiry. It has been an incredibly important part of our response, and we have come a long way in the last 14 or 15 months. I pay tribute to all the people who work in social care, and their leadership, who have done an enormous amount to protect those who live in social care or are supported by it. We as a country have learned a huge amount about how to protect those who are vulnerable and those who are elderly. I also pay enormous tribute to the public, who have made huge sacrifices to protect and save the lives of those who live in social care.
My Lords, I welcome the noble Baroness, Lady Merron, to her position and look forward to hearing from her. I too pay tribute to the Minister and the Government, including my friend in the other place, Nadhim Zahawi, who has led this very effectively. It is so pleasing to see the uptake of vaccines in all parts of our countries and communities. While we are not privy to any internal findings of the report, does the Minister accept that any current or future review must address the detrimental economic impact on women, people with disabilities and those communities of minority heritage that suffered significant loss of life in the early days? Will such a report also therefore consider whether the lessons of the first wave were learned, and unnecessary deaths and infections subsequently prevented?
My Lords, it is not for me to define exactly what the scope of the inquiry will be but the noble Baroness’s points are extremely well made. I emphasise the importance of women. We are in the midst of consultation on the women’s health strategy. It is proving to be an incredibly impactful process and events are being held almost daily. I encourage all noble Lords to submit evidence to the health strategy on any issues that they feel strongly about. This could be a really impactful turning point in the way in which the health of women in this country is massively improved.
(3 years, 6 months ago)
Lords ChamberMy Lords, I recognise some of the noble Lord’s insights. It is undoubtedly true that the low-paid and the poor have been hardest hit by Covid, both by the infection rates themselves and by the lockdown. That is a frustrating truth that is completely recognised and acknowledged by the Government. It is also true that the low-paid and the poor have health inequalities that have themselves made people more vulnerable to sickness, both from Covid and from the non-Covid diseases that have been exacerbated by limited access to some parts of the NHS. We are absolutely committed to reducing NHS waiting lists—that is an incredibly important part of the “build back better” mantra—but we need to do more to bring a degree of levelling up to all parts of society in order to address the symptoms that the noble Lord rightly describes.
My Lords, I welcome the remarkable progress of the uptake of the vaccine in all communities, and I thank the Minister for coming to us with this Statement. However, I am sure he will understand that serious questions remain about the Government’s decision not to red-list being a direct cause of this dangerous Indian variant—I am sure that at some point the Government will have to answer fully to Parliament—and that it is not true, even as a clinical assessment, despite the media repeatedly and consistently suggesting this, that the uptake of vaccinations is the responsibility of certain communities. The Minister will appreciate the likely and even inevitable consequences of rising Islamophobia and hate crimes, as has been reported by Tell MAMA. What are the Government going to do to monitor and support local communities to ensure that they do not face such consequences? Also, echoing the noble Baroness, Lady Tyler, what plans and resources are in place to monitor and support compliance as we enter the next phase of the road map?
My Lords, I have to be honest with the noble Baroness: I am not sure it is helpful to try to connect healthcare policy decisions with a commentary on hate crime. The people who have not stepped up to the vaccine come from a very wide variety of communities; it is not one single community that has been singled out. We are talking about everyone from migrant workers in the apple yards of Herefordshire, to hard-working off-book sweat-shop labourers in east Leicestershire. In between there are people from many different communities who have not taken advantage of the vaccine opportunity. We are working really closely at NHS level to reassure community leaders and individuals concerned that the vaccine is safe and will provide protection. That is the right conversation to have.
(3 years, 8 months ago)
Lords ChamberMy Lords, I am pleased to see my noble friend Lord Brooke back in his place and I agree with his sentiment on face masks. The Government must make it absolutely clear what the requirements are. I think they should be mandatory outside.
I begin by expressing my heartfelt condolences to all those who have lost a loved one. Having lost so many people I have known and some I have loved, I share their grief and loss. I salute all the front-line workers who thought little of themselves and kept the country operating. I congratulate the Government on the excellent manner of the vaccine rollout. I acknowledge the challenges that remain, and I wish to note my gratitude to the Minister, who has been relentless—though, on many occasions, in defence of the indefensible.
Among the horrific numbers of the over 125,000 people who perished were the 20,000 of our precious older people, and that 59% of deaths over a six-month period were of disabled people. As a mother of a 42 year-old with autism and having a niece with profound disabilities, my heart jumped each time I heard from a family. I need say no more. I agree with the noble Lord, Lord Moynihan, who so eloquently pointed out the measures the Government must consider and support as we emerge from the lockdown.
I also note Professor Fenton’s report, which highlights what we have known for decades about social disparities in health and about structural discrimination which, according to NHS staff themselves, has been and is endemic within our major institutions, including our beloved NHS. This is evidenced by the first losses of nurses and doctors being of minority ethnic heritage. These numbers spiralled, with disproportionate loss among black and minority staff, and externally within the communities. Despite these regrettable facts, we see our Government resistant to placing an equality impact assessment, as a central tool for assessment, at the heart of government policy and programmes.
I do not agree that the emergency legislation and powers should remain a day longer. It goes against the grain of our values and civil liberties, so long shouted about. It has given institutions powers to place a shadow over many unacceptable and punitive measures in the name of protecting our NHS. I remain deeply alarmed about the structural deficit which is emboldened by emergency powers, an inconsistency which will profoundly affect government approaches to post-Covid recovery. Disadvantaged communities, poorly paid women and people with disabilities remain utterly desolated at the edges of our society and require the Government’s immediate and urgent attention and remedies.
I will be supporting the Motion of the noble Baroness, Lady Thornton, and possibly also the Motion of the noble Baroness, Lady Brinton. The Covid crisis demonstrated that money is never the principal barrier; it is government leadership, intention and policy direction, and perhaps even a bit more “compassionate conservatism”, which has been so glibly uttered for so long without any indication of its fair and equal application. If I had time, I would copy every word of wisdom stated by my noble friend Lady Jones, as I so often agree with so much of what she has to say. However, for now, I just say “ditto”. I ask the Government and all Ministers to reach out across the political divide and prove those compassionate words by accountable actions.
(3 years, 8 months ago)
Lords ChamberMy Lords, regardless of Department of Health and Social Care policy and NHS instructions to clinicians, we know that DNACPR orders were made without adequate consultation and safeguards. Can the Minister assure this House that the Government will meet with families who have raised concerns about DNACPRs as the cause of deaths? Will he emphatically agree with this House and the families themselves that senior case reviews should be undertaken, with a panel of experts, of all cases where families have raised questions? Will he state categorically again that DNACPR without consent is—
(3 years, 8 months ago)
Lords ChamberMy Lords, I send the noble Baroness, Lady Chapman, my warmest congratulations. She lends weight and strengthens the unacceptably low number of women in this House. I welcome her and look forward to working with her.
I echo the words of my noble friend Lord Hunt about the implementation of these regulations. The pandemic has touched all our lives in every way, with so many losing their loved ones and their livelihood. We as citizens have sacrificed many civil liberties in accepting these regulations and others in our country, where we have professed freedom. None of the progress that we have achieved so far in reducing the infection through the vaccination programme should be jeopardised in easing further lockdowns, and our population should be protected in decision-making about travel.
Travel is more than family time, togetherness and pleasure; it is also about human reasons, as suggested earlier by the noble Baroness, Lady Miller. It is also critical to our businesses in transiting to building a post-Covid world. Safe travel is part of making sure that stability is attainable but it must be measured and phased, given what the scientists have repeatedly indicated: it requires five to six weeks after lowering infections for us to know what is actually going on, and to plan ahead to reflect this when easing a lockdown.
There should be clarity in the messaging about next summer; the public deserve that. Last night I heard through the grapevine that the Brazilian variant may have been taken to Bangladesh by individuals who have travelled from our shores. Can the Minister assure the House that those who are quarantined are being monitored by our test and track system?
(3 years, 8 months ago)
Lords ChamberMy noble friend hits the nail on the head; who could think that a return to the previous regime of turning up at a GP’s surgery or a hospital every time you feel ill could possibly be a wise way of going about your healthcare system? Professor Sir Mike Richards has done an extremely good report on community health hubs, which we are looking at very closely; it has some very wise words that we are minded to follow up.
My Lords, I congratulate the Government on the rollout of the vaccine programme. I have two questions. First, what steps are being taken to ensure that local authorities are making progress to resume assessments of the needs of adults with learning disabilities and autism, many of whom were forced to depend on their inadequate amount of disability benefit? Secondly, what steps have been taken to speak to family members who lost loved ones with the instruction for staff not to resuscitate? I raise this point as I have raised it before. Will the Minister assure this House that the practice is no longer applicable to residents in care homes and people with learning disabilities, unless in agreement with patients and their families?
My Lords, the CQC has pronounced its report on do not resuscitate orders, which is absolutely crystal clear. I wholly endorse its findings and recommendations.
(3 years, 10 months ago)
Lords ChamberI pay tribute to colleagues in the FCDO, which has been a tremendous advocate for overseas territories. We have made considerable provisions to ensure that vaccine supplies are provided to the far-flung territories, where we have strong relationships and a duty of care. I would be glad to write to him with the details of that deployment.
My Lords, anyone questioning the horror of the disease and the pressures on the NHS need look no further than outside their local hospitals, as I did, notwithstanding that questions on efficacy, information and choices are the fundamental right of every patient. The Minister will know that the Bangladeshi community has a very high vaccination compliance rate, but in this case there has been quite a lot of confusion. Can he yet again confirm that sufficient bilingual material is being made available to the community, and will he agree to meet with me and some experts on this issue?
My Lords, that is a very good reminder. I will be glad to return to the department and check that the bilingual material is as she asks, and I will write to her with the details.