Social Care and the Role of Carers

Baroness Uddin Excerpts

Thursday 24th June 2021 Lords Chamber

[Baroness Uddin (Non-Afl) [V]]

My Lords, I wish to take a moment to reflect in honour of all those who lost their lives under this Government’s watch and their loved ones who mourn their absence. I want also to record my thanks to all front-line staff for their perseverance during what was a dangerous time.

I too welcome the work of the Care & Support Alliance and place on record my respect for the outstanding advocacy of Carers UK, Rethink and the Disabled Children’s Partnership. I salute the valiant leadership of my noble friend Lady Pitkeathley. I humbly thank the noble Baroness, Lady Jolly, for enabling this conversation.

Speaking as a parent, I can say that caring for someone you love is a lifelong, all-encompassing devotion. According to Carers UK, during the pandemic more than 13 million people provided unpaid care—72% without any break or support. There was a 78% increase in demand for their care, with no response. An estimated 1.2 million carers live beyond poverty. The Government cannot say that they do not know these facts. Even with the time constraint, the detrimental underfunding of social care cannot be overemphasised. It has resulted in an enormous toll on individuals not having their most basic and urgent care needs met, as well as on those who do everything they can for their loved ones.

The system is failing more than 1.5 million of those who need urgent care as a result of government policies and constraint on local authorities. Services are crippled, including voluntary organisations that have been and are a lifeline for the most disadvantaged in our communities.

I wish briefly to speak about the dire situation of hundreds of thousands of families caring for their loved ones with disabilities and autism, which was recently highlighted by the Disabled Children’s Partnership report No End In Sight. I commend it to your Lordships. I have heard first-hand testimonies from several of the parents panel families, who have felt broken, ignored and abandoned over recent years—more so over the past months because they have not received their most basic care services and cannot access what they regard as crucial physical and language therapies and mental health support, with significant adverse consequences for their families’ well-being.

In my social work career, I have had the privilege of managing care homes. I appreciate their invaluable resilience, which was so evident during the early months of the pandemic. I also am fully aware of, have witnessed and have managed at first hand the fallout of the ugliness of abuse of the elderly and the disabled, much of which remains unreported—markedly so in unregulated care homes. Will the Minister assure the House, in the light of the recent case against the National Autistic Society, on what additional safeguards and monitoring are in place to prevent such abuse occurring yet again?

The time for integrated care, free at the point of delivery, is now. As the noble Lord, Lord Forsyth, and other noble Lords have eloquently said, we need political will and leadership, as well as a willingness to work alongside local authorities and leading organisations to cherish the fundamental principles of choice, control and—

[Baroness Penn (Con)]

My Lords, I am afraid I am going to have to remind the noble Baroness of the time limit for the debate.

[Baroness Uddin [V]]

Thank you. We want the dignity of independence for those who are living with disability and their carers.