Data Ethics Commission Debate
Full Debate: Read Full DebateDepartment: Department for Digital, Culture, Media & Sport
Baroness Hayman
Main Page: Baroness Hayman (Crossbench - Life peer)Department Debates - View all Baroness Hayman's debates with the Department for Digital, Culture, Media & Sport
(7 years, 4 months ago)
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Lord Ashton of Hyde
That is of course important, and the data protection Bill will include measures to protect children and to allow data which is held by social media companies, for example, to be deleted. As for engaging children in considering these ethical issues, that is something that the data commission can consider but, as I said, we have not yet been specific about the structure, function and remit of the commission.
Baroness Hayman (CB)
My Lords, I declare an interest as chair of the ethics and governance council for UK Biobank. Does the Minister agree that the potential value in health of the use of big data—in the development of new medicines and other fields—is enormous? In view of that, will he ensure that the interests of medical research are included in the commission’s terms of reference, given that it is essential that the public have trust in the systems governing the use of their information?