Cancer Strategy

Debate between Bambos Charalambous and Lisa Cameron

Thursday 22nd February 2018 Commons Chamber

[Dr Cameron]

Absolutely. The hon. Gentleman makes an excellent point. These agencies are working on the frontline with people and families at their most vulnerable and deserve all our encouragement, praise and, of course, funding.

In addition to setting out how cancer alliances are to be funded and supported for the duration of the strategy and into the future, the all-party group strongly recommends that the 62-day waiting-time target be immediately decoupled from any release of funding to the alliances. The previously mentioned issues prevent progress in improving cancer care and treatment, which is not our collective vision. The all-party group also heard that improving transparency in priorities and accountability would help to support the delivery of the strategy. At the moment, a lack of clarity and lines of communication are delaying its implementation. Publishing a detailed progress update on each of the strategy’s 96 recommendations would be a positive step forward.

It is generally accepted that the 62-day waiting-time target has been treated as a higher priority among clinical commissioning groups and cancer alliance leaders than survival or stage at diagnosis, as shown by the linkage between funding and performance against the measure. Decoupling funding from process and target performance in favour of a greater focus on outcomes would strongly be in the interests of patients, not least because, if outcomes are good and survival rates increasing, processes will also be functioning efficiently and correctly.

[Bambos Charalambous (Enfield, Southgate) (Lab)]

The 62-day target has not been met since 2014, so the issue has been around for a while. Does the hon. Lady agree that more funding is needed if the target is to be met as soon as possible?

[Dr Cameron]

I absolutely agree with the hon. Gentleman. It is essential that the target be met and that resources be put in to ensure that it is.

The all-party group also found that access to detailed and timely data is critical for the strategy’s success, particularly in relation to data for rare and less common cancers. Strong concerns were also raised about how future data protection regulations might affect surveys, such as the cancer patient experience survey. The value of the cancer patient experience survey should be emphasised, along with outcomes from patients. We must hear from those who are experiencing services; they know how to improve things. In addition, the ageing UK population cannot be left out of the conversation. The cancer patient experience survey suggests that older people are less likely to have access to a clinical nurse specialist. Additionally, older patients are less likely to know the full extent of their illness. Age discrimination must come to an end, especially in cancer care.

The all-party group recommends that the NHS and Public Health England’s data team work to produce more timely cancer data and make them publicly available. It advocates that the Government ensure that the cancer patient experience survey and other such surveys can continue in a way that allows patient experience to be considered on a par with clinical effectiveness, rather than leaving patients without sufficient information regarding their cancer and care.

Furthermore, for specific cancers such as breast cancer, there are key priorities for delivery in the cancer strategy. It must ensure that data are collected for people living with incurable secondary cancer; that everyone with secondary breast cancer has a specialist nurse with the right skills and expertise; and that everyone has access to the right support after finishing treatment for primary cancer, so that they are able to live well after breast cancer. We should not ignore the fact that the strategy has had positive effects. In the last year, 16 cancer alliances and three vanguards have been established, and £200 million has been made available to them for earlier diagnosis and post-diagnosis support. In addition, 23 NHS trusts have now received new and upgraded radiotherapy machines. However, as the report makes clear, much more work still needs to be done.

In the few minutes that I have left, I want to speak a bit more about less survivable cancers. The Less Survivable Cancers Taskforce was in touch with me prior to today’s debate. It is made up of Pancreatic Cancer UK, the British Liver Trust, the Brain Tumour Charity and Action Against Heartburn, covering oesophageal cancer, and Core, covering all digestive diseases. The staggering 55% gap in morbidity is absolutely unacceptable. Much, much more must be done. Recently, I lost a very dear uncle to pancreatic cancer. As a family going through that experience, we know that we need much more research and much more specialist understanding. We need investment in those areas—it is absolutely crucial. I want to ensure that other families have a better chance of an improved survival rate, and I pay tribute to my own uncle for his courage in coping with that condition right to the end.

Hospice care is also absolutely essential. We must ensure that families and patients have dignity at the end of life. That is imperative. I have watched far too many family members die in hospital beds, surrounded by other patients with the curtain screens drawn, to know that that is not dignified and that where possible, we must improve services and access to hospice care.

I pay tribute to the Teenage Cancer Trust—we often think of cancer as an illness that affects older people, but young people are also diagnosed with cancer—which does fantastic work. Vanessa Todd in my constituency is an absolute advocate for the Teenage Cancer Trust. Although GPs may not expect a young person to come with such symptoms, which are perhaps not easily identifiable, it is something that we can increase awareness of to make sure that diagnosis is very quick and timely for young people to improve their prognosis.

I thank everybody and, again, I thank the all-party group. It has been a privilege to open the debate for the hon. Member for Basildon and Billericay, who leads the group on these issues so well.

Disabled People and Economic Growth

Debate between Bambos Charalambous and Lisa Cameron

Thursday 22nd February 2018 Commons Chamber

[Dr Cameron]

The hon. Gentleman makes an important point, and only yesterday I was contacted by a number of people and organisations reminding me to highlight that very point. People with mental health difficulties, and often people with hidden disabilities or disabilities that are not always apparent, can find it a struggle to explain and raise awareness about their difficulties and the adjustments they require. We need heightened awareness among employers—and in Parliament, too, I would suggest. We must continue along that path to raise awareness, to make sure we can harness the skills and potential of everyone for our economy.

All too often, people with disabilities are portrayed as passive and unwilling to work, but that could not be further from the truth. I want to use this debate to change the narrative. I want to see meaningful action, rather than research and rhetoric. I want to see a welfare system that treats people with disabilities as a willing and able workforce. I want to see improvements to current access routes and the development of new workplace cultures that reflect a genuine appreciation on the part of employers of the positive contributions that people with disabilities make, and I want to see accredited business schemes that go further than ticking boxes. While I might not be able to cover all these points in my speech, I know that colleagues across the parties will be passionately advocating similar policy and attitudinal change, which is much needed. I hope the Minister will take on board all Members’ suggestions here today and that we will make progress moving forward.

I want to start on a positive, uplifting note. I have been greatly heartened over the past few weeks by hearing accounts of disabled entrepreneurs, employees and businesses that are champions of their fields. I would like to share but a few examples.

Hannah Chamberlain is a successful tech entrepreneur who recently won the £30,000 Stelios award for disabled entrepreneurs, which is run in conjunction with Leonard Cheshire Disability, after creating a video diary app that supports people to manage their mental health, called MentalSnapp. The app allows users to record short video diaries, rate their mood and name their feelings. It is an example of innovation at its finest, and I applaud Hannah for creating an app that will help so many.

John Cronin is an entrepreneur and now business leader who owns and runs his own sock company, which has made £1.4 million in its first year. John has Down’s syndrome. He runs the company in conjunction with his father and is the face of the brand. John is a business leader and manager, and nearly a third of his staff have a disability. John says his social and retail missions go hand in hand. He is a businessman and therefore is looking for good, reliable workers, and he believes the disabled community has a vast, untapped pool of great workers.

A number of larger corporations also understand the benefits of a diverse workforce. Corporations such as Channel 4 and Sainsbury’s are good examples of inclusive employers. Sainsbury’s and Channel 4’s workplace adjustment guides are second to none; both companies choose to focus on positive aspects of making adjustments, rather than their legal duty and minimal requirements to do so. Most importantly, these policies are distributed to all line managers, so everyone is aware of the adjustments they are entitled to, creating an open and inclusive environment and workforce in which both employees and company outputs can thrive. Channel 4 goes a step further by issuing “passports” for employees after receiving a workplace adjustment, so when the employee moves into a new role, or their line manager changes, the “passport” can be referred to and used in all future discussions with new line managers.

There are many other great examples of disabled business owners and entrepreneurs, and of inclusive employers, but I wanted to highlight those three, because each shows that in every corner of our economy, and in every type and size of business, inclusivity should be championed not just for ethical reasons, but because it makes good business and economic sense.

[Bambos Charalambous (Enfield, Southgate) (Lab)]

I thank the hon. Lady for securing the debate and for the examples she has given of good practices in certain organisations, but is she aware that only 16% of people with autism are in full-time employment and only 32% of autistic adults are in any kind of employment at all? Does she agree that much more needs to be done to close the autism employment gap?

[Dr Cameron]

I thank the hon. Gentleman for that important intervention highlighting the autism employment gap, which is far too large—much larger even than the disability employment gap. We must take extra strides to support people with autism into work, because they have great skills and abilities and they will be fantastic contributors to our economy given the appropriate opportunities.